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Jewish General Hospital.......


cupcakemomma5
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I just found out today that I finally got an appointment for the autonomic lab in Montreal (good 2 hr drive...lol)

Any one on this forum ever have Dr.Schondorf ?

This is the non intravenous one, so lest eerie, but stress test and ttt are Freaking me out!

Anyway to put this outta my head would be great!

Thx

Tara :unsure:

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  • 4 weeks later...

I am followed by Dr Schondorf - a complete fluke how I ended up finally getting a diagnosis of pots after numerous specialists etc...My GP had referred me to an endocrinologist at the JGH because she suspected a pheochromocytoma because of my high epinephrine levels and tachycardia . When I saw the endo he said I did not present as a pheochromocytoma pt because my symptoms came and went. He was the first person who used the terms POTS with me because he had heard Dr Schondorf speak on it just before my visit to him. Ironic that if I had got to see the endo earlier he himself would likely not yet have heard of POTS and I might still be floundering around for a diagnosis! I hope your visit went "well".

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I first saw him in May 2009 en route to being diagnosed - He had me go off monocor, -a med a cardiologist had prescribed for tachycardia without any further work up ! - before I had the tilt table test in July which confirmed POTS and a mild autonomic neuropathy. He suggested conservative measures then, exercise and fluids etc...and fortunately I was much better and almost symptom free by August 2010 so I stopped seeing him for regular follow ups. I then had a relapse in December 2011 - he was sceptical that "it" came back so he arranged another tilt table test - largely I think to try to reassure me. Tilt table was still positive and off I went with conservative measures again. But I remained with significant symptoms so when I went back to see him again in November 2012 I was ready and armed to try and convince him that I wanted to try meds. I was surprised after explaining my current situation he said sounds like you need a baby dose of beta blocker to "cut the edge" :)(He never struck me as quick to prescribe) So he started me on 20 mg a day of nadalol which has the tachycardia under control (Although I still get headaches and vertigo nearly every day and the occasional wonky episodes but much less autonomic surge type episodes where I would get shaky, cold SOB etc...

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I Enid,

I actually see him on Monday the 11th of March.

We are trying to figure out the whole OHIP to Medicare thing....

Did you like him, or was just a oh okay here we go....

Sorry to bombard you...just never really heard anything about him.....

Thanks for answering. I will def. Keep you posted.

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Hi Tara -

I think he is a good match for me - I was so appreciative to finally have a diagnosis + he is one of the only autonomic specialists in Quebec (and I think Canada) which I find very reassuring. The tilt table test and autonomic tests are done by someone named Julie (I think that was her name) She is extremely calming, struck me as very good at her job and plays music during the test, interesting chit chat, she takes requests but I liked the jazzy stuff she had on!

Good luck on Monday!

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