cupcakemomma5 Posted February 2, 2013 Report Share Posted February 2, 2013 I just found out today that I finally got an appointment for the autonomic lab in Montreal (good 2 hr drive...lol)Any one on this forum ever have Dr.Schondorf ?This is the non intravenous one, so lest eerie, but stress test and ttt are Freaking me out!Anyway to put this outta my head would be great!ThxTara Quote Link to comment Share on other sites More sharing options...
PetuniasMom Posted February 7, 2013 Report Share Posted February 7, 2013 Hi Tara, I dont want to post in the forum but would be happy to talk to you about my experience in Montreal...funny, I too am about 2 hours away... just send me a private message if you wish to chat! Quote Link to comment Share on other sites More sharing options...
Enid Posted March 3, 2013 Report Share Posted March 3, 2013 I am followed by Dr Schondorf - a complete fluke how I ended up finally getting a diagnosis of pots after numerous specialists etc...My GP had referred me to an endocrinologist at the JGH because she suspected a pheochromocytoma because of my high epinephrine levels and tachycardia . When I saw the endo he said I did not present as a pheochromocytoma pt because my symptoms came and went. He was the first person who used the terms POTS with me because he had heard Dr Schondorf speak on it just before my visit to him. Ironic that if I had got to see the endo earlier he himself would likely not yet have heard of POTS and I might still be floundering around for a diagnosis! I hope your visit went "well". Quote Link to comment Share on other sites More sharing options...
Canadiangirl73 Posted March 4, 2013 Report Share Posted March 4, 2013 Enid,What has been your experience with this doctor? I would like to know. Could you please PM me if you don't want to discuss the particulars on the forum? Quote Link to comment Share on other sites More sharing options...
Enid Posted March 5, 2013 Report Share Posted March 5, 2013 I first saw him in May 2009 en route to being diagnosed - He had me go off monocor, -a med a cardiologist had prescribed for tachycardia without any further work up ! - before I had the tilt table test in July which confirmed POTS and a mild autonomic neuropathy. He suggested conservative measures then, exercise and fluids etc...and fortunately I was much better and almost symptom free by August 2010 so I stopped seeing him for regular follow ups. I then had a relapse in December 2011 - he was sceptical that "it" came back so he arranged another tilt table test - largely I think to try to reassure me. Tilt table was still positive and off I went with conservative measures again. But I remained with significant symptoms so when I went back to see him again in November 2012 I was ready and armed to try and convince him that I wanted to try meds. I was surprised after explaining my current situation he said sounds like you need a baby dose of beta blocker to "cut the edge" (He never struck me as quick to prescribe) So he started me on 20 mg a day of nadalol which has the tachycardia under control (Although I still get headaches and vertigo nearly every day and the occasional wonky episodes but much less autonomic surge type episodes where I would get shaky, cold SOB etc... Quote Link to comment Share on other sites More sharing options...
cupcakemomma5 Posted March 6, 2013 Author Report Share Posted March 6, 2013 I Enid,I actually see him on Monday the 11th of March.We are trying to figure out the whole OHIP to Medicare thing....Did you like him, or was just a oh okay here we go....Sorry to bombard you...just never really heard anything about him.....Thanks for answering. I will def. Keep you posted. Quote Link to comment Share on other sites More sharing options...
Enid Posted March 6, 2013 Report Share Posted March 6, 2013 Hi Tara -I think he is a good match for me - I was so appreciative to finally have a diagnosis + he is one of the only autonomic specialists in Quebec (and I think Canada) which I find very reassuring. The tilt table test and autonomic tests are done by someone named Julie (I think that was her name) She is extremely calming, struck me as very good at her job and plays music during the test, interesting chit chat, she takes requests but I liked the jazzy stuff she had on! Good luck on Monday! Quote Link to comment Share on other sites More sharing options...
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