DSM3KIDZ Posted April 7, 2005 Report Share Posted April 7, 2005 Here's a question, does POTS ever completely go away? Do you know of anyone who was diagnosed and than later is free from POTS? I was wondering because I my cousin said she experienced all the symptoms I have and she said eventually her body healed. She hasn't had any problems for 3 years now. Is this possible? Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted April 7, 2005 Report Share Posted April 7, 2005 Again, this topic has come up many, many times in the past. I suggest searching the forum using the words in your title "recovery" ... and then another search under "remission".the shortest answer is "yes" it's possible, and is more likely if you had sudden onset rather than having had symptoms from an early age.Nina Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted April 7, 2005 Report Share Posted April 7, 2005 Nina is right--this question has been posted countless times and the short answer is "yes".What I have gathered from what my specialist has told me on this topic, is that it takes on average 4 years to "recover" from POTS. However, (obviously) some people do not recover in that time or for quite a long time after that, or seem to recover at all. I guess it also depends on how "recover" is defined. I would categorize myself as recovered, as I have recovered virtually all of my functionality I had prior to the onset of severe symptoms in 2002. I am off all POTS medications. I still take salt and fluids in larger amounts than before. I still have mild symptoms and challenging days/hours. I don't have the exercise tolerance I had. What about in the long term? My specialist can't say. Maybe POTS will not "come back" for me and I will continue to improve. But, maybe it will. My specialist also told me that surgery is a common trigger for relapse of symptoms. He can have a patient doing wonderfully, and then they have to have surgery, and they become pretty ill again.I know it is hard not to worry about the future. This condition can be hard to predict and manage. For this reason, it may be most useful to focus on finding the treatments that will keep you as highly functional as possible, rather than worrying too much about unknowns. Most likely, you will get *better*. That's what my specialist told me when he diagnosed me, and I just hung onto and hang onto that!Katherine Quote Link to comment Share on other sites More sharing options...
Jenn202 Posted April 7, 2005 Report Share Posted April 7, 2005 I went into complete remission over the fall after I started Lyme Treatment again... I was 100% symptom free.... A bad virus in December retriggered my symptoms... So yes I believe its possible to gointo remission or possibly to completely recover... I also think it depends on how you got your Dyautonomia to begin with. Quote Link to comment Share on other sites More sharing options...
Ernie Posted April 14, 2005 Report Share Posted April 14, 2005 I agree with what the others have said. The short answers is yes and it depends on the etiology.Good luck.Ernie Quote Link to comment Share on other sites More sharing options...
Kitsakatsa Posted April 19, 2005 Report Share Posted April 19, 2005 The doc at Mayo said this to me: "You need to know, this will go away". I find that amazing because I work in the medical field and docs never issue promises. I believe it, but I also believe that I have to work my hardest at taking my meds and sticking to a routine in order for my body to heal. No more Saturday shopping, no more Summer outside activities, Chrismas shopping (internet- all the way!) and we have lots of medical hose action going on here! Quote Link to comment Share on other sites More sharing options...
Guest tearose Posted April 19, 2005 Report Share Posted April 19, 2005 I'm still waiting to get better....fourteen years and I still have hope.....call me pollyanna.Just glad I found a way to survive while I'm waiting....I truly think the medical profession has no clue what we really have to deal with and have not discovered the correct diagnostic tools to even diagnose us! tearoseP.S. Maybe, just maybe, they will have the tools and the answers tomorrow.......pollyanna Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted April 19, 2005 Report Share Posted April 19, 2005 I don't want to dash hopes, but many people never recover. I'm one of them. At least 36 years of my 40 years and counting.... (although probably more like 40 of 40, I was just too little to complain about my belly...but my parents will tell you I was never tolerant of heat, changes in my feeding schedule and needed more sleep than any of my siblings).Again, as mentioned earlier this week in another post, this board will likely have more of the people who've not recovered... those who DO recover, tend to move on with their lives and not hang out here. Quote Link to comment Share on other sites More sharing options...
morgan617 Posted April 19, 2005 Report Share Posted April 19, 2005 oooohhh there's always hope, but 50 years later, I've stopped holdin my breath. Never say never, but I have to be realistic, as I've been sick my whole life. So don't stop hoping, but learn to deal as well as you can in the meantime. Nina, I used to tell my mom about my stomach aches and I threw up at least a few times a week. She took me to a doctor who said I was an attention seeker at the ripe old age of 8. He told her to give me HALF a bottle of castoria everytime I complained and I would stop. She did and I sure as heck did. I sometimes wonder what that must have done to my gut. She gave it to me once when I had heat stroke. I learned to puke real quiet like as I didn't want the trots on top of that, sneaky me..... morgan Quote Link to comment Share on other sites More sharing options...
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