Possible / Chances ?????

[Achilles2323]

What is the Possibility or chances pots can go away within time?

or is there even a chance?

i am 24 year old male

diagnosed 2 weeks ago

[k&ajsmom]

Of course there is. Pots is so broad, it can be chronic or it can be secondary to something causing it. So if whatever is casuing it goes away or gets treated or better...its poss Pots can resolve. Some people expierence it and it goes away and they never know why. I hope for all of us it can go away. Dont give up that fight u have to get to the bottom of it. =) take care

[Achilles2323]

i am praying mine can go away

it is so debilitating at the moment

they cant find any cause for mine

with a lot of blood test

not sure what to make of it.

[cupcakemomma5]

I sure hope there is a diagnosis to "cure"

I was diagnosed in august, spent 21 days in the hospital. And after all that time, by deduction of everything else.A POTS dx was done. Nothing else, just meds. And then said play with the dosages. I am currently awaiting a transfer to a specialist. 2 hours away! Oh well, if he can figure just to get me to stop feeling like crappy, would be fantastic!

[Achilles2323]

i am praying this goes away...

i would love 2 hear from people that got better

and it went away

[corina]

Achilles, most people who get better leave this board. Now and then someone comes back to let us know they are doing well which is always a bonus. Give yourself some more time, to keep yourself sane Some get "better" through medication, others get better through time! My doctors haven't been able to figure out why I have this (I think they wouldn't know how to) also but gave me the opportunity to try different meds. Are you on any medication right now?

[MomtoGiuliana]

Getting better is usually a slow process with this condition. The literature claims that most people do recover. Keep in mind as corina says that most people who are well are not on DINET. I got better over years. At one time I took an SSRI which helped a lot. I still take a small dose of beta blocker. Most of the time I am 90%+. Rarely I have relapses. But overall I live a normal, active life. In 2002-2003 I was bedridden.

[Relax86]

I also got better with time and trying a few meds. Based on my symptoms the meds that worked for me were hydrocortisone, prilosec (I think I needed to tolerate the HC), and midrodine. It took a year. This is my second and worst flare. The first flare lasted a few weeks and was totally gone in about 6-9 months. This flare I was bedridden for about a month, finally figured out what was wrong with me and began to treat. It took a full year to get to 90-95% better. I was functioning by March/April but still feeling bad. By September I started to have more good days than bad. Another big reason I think I got better is that I halted all blood work by March. Too much blood work was causing so many symptoms for me and I had already been medically cleared of all the 'bad' stuff. So I decided to stop looking for a little while as I was pretty sure I was a POTs candidate. Good luck with your recovery ~ it can happen.

[Mytwogirlsrox]

Achilles-- anything is possible.

I can't speak for anyone else, because everyone's pots is seemingly different. BUT, I slowly (over 9 months) recovered greatly. Reducing stress, hydrating, increasing salt, taking supplements, increasing exercise. A SSRI really helped me in the beginning. It's been a year since my symptoms began, and honestly I feel so much better. I function at 98%, I would say that I still have a little anxiety and feel palpitations upon standing, or in situations. Dr said I might have a mild case of orthostatic hypotension ( still get fuzzy vision if I stand up too fast -- I've always had this though)

Anyways. Always have hope! It just takes time.. There are studies that say most POTS patients will have improvement within on year of diagnosis. I think in time, you will find what works for your body and you will improve.

[Achilles2323]

up

[Joann]

Question - those that have gotten better. Are they hypo or hyper or?

I tend to have hyper and am wondering if any get better?

Thanks.

[badhbt]

I haven't had a flare in 10 years, so I went 10 years with no symptoms. So it is possible! I have had symptoms since August. I am ready for this flare to be gone too!

Stay Postive

[Altruism]

I love this thread - so positive!!! I needed to read this!

badhbt, I had no idea this is your second flare. Sorry to hear this, but good to know you managed to recover once. That means you can do it again!!

I'm curious about hyperPOTS recovery status too.

[Alan-pots-IST]

this started with me back in Feb 2012 it was bad for me, i did jujitsu ran was in ok shap for my age i thnik.

i got a staph infection on my knee from jujitsu i ended up going to get a shot for the staph and a tetanus shot.

The Crazy part about this, and i dont like to tell ppl becuse it makes me sound crazy is the guy at the ER told me when he was giveing me the tetanus shot not to worry about the pain to wory more about whats in the shot.

well i got pots standing low blood pressure . my heart was going crazy but now i feel like im going to recover.

[Angela]

from what i understand hyper have a worse dx as far as recovery, but it s possible. plus, with hyper especially i think there are more components so the sooner youn can get to the root cause the better, that being said, anything is possible!!!!! from my experience and reading a lot we go thru good periods g00d & bad..not talking aunt flow here, but you will have better times and worser,,,,so wait and it will happen 4 u, i am sure you will be off this forum soon:)

[Achilles2323]

keep em coming

[Hoshistorm]

I have pots and have had symptoms of it my entire life. I was not diagnosed until last fall, however, I have gotten a lot better at managing it. It was very debilitating last fall. My doctor does not think mine will ever completely go away, however, I have been working with her to manage the symptoms. That is a blessing in itselt; being able to manage it and live with it. You just have to achieve balance, and be very aware of what causes symptoms to flare. I wish you the best of luck! Don't give up!