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Posted

I'm trying to understand your message but it is not clear to me.

I am not in Pittsburg and while it may be freezing there I don't think that is the kind of freezing you are talking about. Can you clarify?

Autonomic dysfunction has been extremely disabling for me and has changed my life. And my Christmas celebrations, actually most all celebrations, have been changed because of it. Dysautonomia is hard and made harder when people around me don't understand my condition. Nonetheless I have to make the best of my situation and find the blessings in it. You are right in how important it is to be grateful for the people in our lives who love us.

From Florida sending hopes of warmth your way...

Posted

My heart goes out to you. Pots is a difficult illness that changes our lives daily. It makes us different people, but maybe it makes us better survivors because we have to deal with so much. I hate this illness but I think hopefully it has changed me to be a nicer more understanding person(just with a little more anxiety and depression). I don't know what you have been though, all of our episodes and circumstances are so different but it sounds like you have people that you love and love you. I agree Christmas with pots is a challenge, that most family and friends don't understand, but with pots the only thing you can guarantee is that every day is different and hopefully tomorrow will be better.

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