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New Doctor - New Ideas - Could This Be The Answer, Or At Least A Part Of Our Puzzle?


issie

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Since diet is the main thing - that's a good starting place. The doctor feels that our magnesium is low because it is being used up by the protozoa and will balance out when it gets more under control. I'm no doctor and can't advise anyone about what to do about that though - as an imbalance can cause heart beat issues. For me, I used to take magnesium daily and haven't for months. I'm doing okay without it. There is magnesium in the foods that I eat and that seems to be okay with me. There is also calcium in veggies too. I just pay close attention to having a variety of veggies, fruits and whole grains. I mix it up and am really conscious of getting what I need and making sure I'm getting enough protein from my plant sources ---I'm doing good with this.

You can get too much fat with a vegan diet too. I have to watch my fat with what I have on this diet too. 20 g is not a lot of fat for a day. He has found with his research that more causes issues.

As for the low dose antibiotics - there are herbal alternatives. I also use anti-malarial herbs, enzymes and probiotics.

Issie

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Just a little update. The last few weeks I went on vacation. I snorkeled twice and didn't have hyperventilation either time. I did get POTS one of the times. in the water, but the water was a little rough and I think I got motion sick. I took a couple of very long walks (3 miles one day and 2 miles another day) and that was really, really good for me. I was able to go pretty much every day. At times, I had a few issues, but nothing to stop me and put me down. I'm for sure doing better and things are continuing to prove that to me. Even my husband now is telling me to stick with it and he tells anyone who is having health issues they need to do the diet. He hasn't completely converted, but is more that way than not. We are also doing gluten free and of course since it's a vegan diet - dairy is out. When I messed up on this trip with my diet -----I really felt it and paid for it. Amazing that we don't realize what we are doing to ourselves on a daily basis -----UNTIL ----we change what we are doing.

Issie

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what about the people who cant get the test :( if its not clear than its not beneficial to avoid magnesium, calcium, iron if its good for them?

do people who have it will get low lvl of magnesium in blood test? and calcium, iron?

what if the mag, cal isnt low?

anyway isnt lactoferrin good to fight biofilm but its from milk.

this similiar like candida diet but what they need also what us need.

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I have my iron levels checked regularly, that's one thing you have to watch being vegan. I eat two pieces of okra a day - pickled - for iron. No issues on that. I will have to look to see if he's checking magnesium and calcium levels - not sure he is. But, also not feeling like there is a problem for me either.

If you can't get the test, and few will be able to, just because of where they live, it doesn't hurt to try the diet. You may go into a herx with it and feel awful for awhile. That's the die off phase and also just adjusting to the new way of life and eating. But, if you feel a whole lot worse ----you can assume it's doing something and then after a few months you start to feel better. Know ----for sure ----- you get a whole lot worse on the diet to start with and then it gets better.

I know that lactoferrin does help and despite colostrum being from milk -----I'm still taking it. I use the Immune formula of Symbiotics Colostrum. It is also an alternative to IVIG which helps the immune system. I think my doc would prefer for me to use Transfer Factor - but, I think I need what's in this particular product ---so sticking with it.

Issie

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Oh, with this diet, I checked my nutrition levels before I stopped eating animal products with a program called SparkPeople - you can enter your foods and it gives you the nutrition value of what you eat. I have way more nutrition on this diet. Nearly all my levels are improved as for nutrition.

All my blood levels are improved. Science confirms that things are improving for me. And my activity level and improved POTS symptoms prove it too.

Issie

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i see. actually im already close to the diet cause i mainly eat veggies. but still carbs (potato, red rice) since eating veggies only tend to get hungry quick. but i still eat eggs, sometimes fermented soy, fish, fruits(low fructose). and i use olive oil. sometimes a little sesame oil. thats my diet. i did it cause i got bad reaction to many food.

but my issue with this theory was magnesium since i just bought a bottle of supplement that i heard positive things from people and hope it could help :( (also calcium)

also protein source.

do people who have biofilm will get low lvl of magnesium in blood test? and calcium, iron?

i know about colostrum used to take it years ago but stopped cause theres a controversial of it :(

also theres a product called immunocal i used to take but stopped and dont know if i should retake it or not

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I cant say whether or not the levels of magnesium with testing would show up low. You would think analyzing what is thought to happen with it being used by biofilms and what live in them - that might would be the case. I havent asked that question. But, I can.

I eat rice and potatoes, veggies and fruit and whole grains. I dont use soy - cause I react to it and its high in fat. Doc allows it, in small amounts but you have to plan for it ---same with nuts, avocado etc. Things high in fat. We are to use little to no oil. Some resturants sautee veggies in oil and I tell them to go low oil - just enough to cook without burning. We cant seem to avoid it entirely - all the time. But, you want to avoid it as much as possible.

I use protein vegetable source powder in smoothies for breakfast and that seems to hold me. I eat beans or peas daily and asparagus is high in protein. Lots of veggies are. You have to plan and know the nutrition value of things. You can find that out by using SparkPeople and entering your foods in there until you feel comfortable knowing you are doing this diet in a healthy way. It is very enlightening to do this journal there.

Know that if you do this, it will take time to see results. You may also have a die off and herxing and worse symptoms before it gets better. If this happens, you know you are doing yourself good. This in itself is a sign you are on the right track.

Keep me posted on how you do with it.

Issie

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Hi Issie

When you first started using the colostrum, did it cause some herxing? If so, how long before you felt better?

Rachel

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I dont really remember if it caused a herx because I had problems with herxing with the diet and low dose antibiotics already when I added it back to my supplements. If you use the Immune formula one, potentially it could, because it works like an antibiotic due to the olive leaf. The olive leaf is also known to lower the blood pressure in some people. The information from the company says to give it at least 3 months. Some people notice a difference pretty quickly and others it takes longer. I read of one person that it took 6 months. But, with me I felt something pretty quickly. I used it years ago. Not sure why I stopped taking it. We tend to do that when we get better, thinking maybe we dont need something. Right now Im on a maintenance dose and not taking it daily. I take it a few times a week now. I couldnt do the front load this time like the company suggest. I took it slower.

Colostrum tends to have a calming affect on the nervous system. But, at the same time, it gives energy. You are not to take it too late in the day - because it may give you too much energy.

Issie

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I asked Dr. Fry today if the labs show that people have low magnesium when we don't take it as a supplement - since it is being used by the biofilms and protozoa. He said initially it might show low and then as we continue the diet and get things more under control - it should come up. The foods we eat has plenty of magnesium in it and we don't need to supplement any more. We are not to take Epsom Salt baths either - because it is magnesium.

He suggested that I start trying to get into a dry sauna too. Very small amounts to start. He said that getting the core body temp up is very good for this. I asked about a heating pad on the stomach and he said that's not enough. We need to get warm enough to sweat. He said the dry sauna should be a little different with my POTS than a wet one - say with a hot shower. That will get me.

I also asked why I have to sleep sitting mostly upright. He said it has to do with the veins and their function. That is also why an abdominal binder helps me. He said that when we lie down it affects the jugular veins and he bets mine are not functioning properly - due to being clogged. He wanted to do an ultrasound to check it out - but, I can't do that right this minute. When I get some family things settled a little more in a few months - we are going to get a little more aggressive with my treatment. I don't need to take on more stress right this minute and what the next steps are could cause a herx and I don't need to be dealing with that right now.

Issie

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Hang tough Issie. You are making so much progress. I foud a Dr. York's book on Colostrum: A journey Towards Better Health. It's

quite interesting to read his story and how his life turned around. Here is the link if you have not read it. http://www.gotwater.net/ colostrum_report.htm. I will only be giving the colostrum in the morning, Tyler's fatigue issues are worse, so I'm hoping this will help.

Take care and post when you get a chance.

Rachel

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pleasee helpp i think its still related..

can wbc reduced from (almost) vegan diet? my wbc was reduce now is 3.55 usually it was high or higher though i havent checked for months and dont keep a record but found my result from january 2013 which is 6.5

please dont freak me out more since i already read bad info and pretty concern. im thinking of going to hematologist but im worried now. :(


lately around a month i do lack of sleeping, eating and lose weight pretty much in a month (not because i want to lose weight but because i do have food and chemical intolerance i usually cook by myself but i couldnt cook more lately so i had to eat less) and mostly eat carb some veggies 1-2 eggs only per day. fish, soy twice a week. but im worried if its because of that only or other cause.

just to add: my rdw also high but its always been high. and my temperature is low though its lower recently also bp low but now lower. my hb is normal although it was shown high last week also high (40) ferritin eventhough i dont take iron booster usually its low before.

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I think you probably should seek a doctors advice. Im not able to give advice, just here to comment on what is helping me. My hope is that it will help others.

Issie

yes i know i already arrange an appointment but still need to wait. but i read some people experience which correlates diet and low wbc. also i went to a doctor in my neighbor though hes not a specialist and he said that the diet plays a role. i do hope its only caused by poor diet. and i ask around looking if there are some other people who experience the same.
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Kisekis

Diet can help boost the immune system. How long has it been since you have had vitamin and mineral levels checked? Glad to hear that you will be able to see your doctor soon. Anything that you can do naturally with diet can be a big help. Issie has some great suggestions in this post that will help with diet, I have started using some of them with my son. If you have not done this yet, you might try and do a search on low wbc. There are probably some other post on the forum relating to this topic. Hang in there.

Rachel

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I think our diet may be one of our best medicines. Correcting poor habits and making sure we are getting as much nutrition as we can from what we eat. Correcting issues with flora with probiotics and maybe prebiotics. That old saying we are what we eat, may be a big part of our problems and maybe our solutions.

As Rachael pointed out, if you can read through this long post, I've included lots of information and lots of references with more information to back up whatever I've said.

You dont want to blame everything on POTS. I made that mistake recently and almost got put in the hospital with a very bad UTI. I think my system was detoxing too fast and I couldnt throw things off fast enough and got the infection. Same thing happened with another girl doing this same routine with diet and treating this protozoa. Dont hesitate to ask questions and check things out when your body is telling you that something is wrong.

Issie

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  • 4 months later...

This post was bumped up for Looneymom and for all the newbies that are hunting for answers.

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  • 8 months later...
  • 1 year later...

EDIT 2016 - I found that I am getting calcification in soft tissues. Research shows two things that could cause this. One is not using Vit K with Vit D. It helps keep the calcium in the bone. The other is lack of magnesium which moderates calcium. More current research on Lyme shows that yes biofilm does use magnesium to get stronger. But it also uses calcium and iron. Another Lyme doc I recently read about feels calcium is more an issue than magnesium. So knowing that my body is showing signs of a magnesium deficiency and too much calcium - I'm using transdermal magnesium spray a few times a week. Can't say that I feel any different, but maybe it's helping to get calcium more in balance. Also, added Vit K to my supplements. Another interesting note is Vit D can be low in your body to try to adjust too high calcium. If your calcium is high, likely Vit D will be low. It's a self regulating thing. I stopped mega dosing Vit D, it just wasn't coming up with more and now I think I know why. 

Issie

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  • 4 weeks later...
4 hours ago, RichGotsPots said:

Issie, not sure what you are getting at with your update.. What is your vit d level?

Rich, my Vit D is within the range that the labs consider normal, but Life Extension docs say it should be up around 80. Mine the last time had gone down from 50 to 30. Despite taking 10,000 a day. That's why I think it is my body trying to compensate for too high levels of calcium. If the D were higher, my calcium would increase even more. To keep calcium in bones and out of soft tissue and arteries,  while on Vit D, it requires Vit K to keep it there. And magnesium helps to keep the ratio of calcium to magnesium more balanced. 

You also asked in a PM about whether or not I am still doing the biofilm protocol. I felt it important to share that answer too. Yes, most definitely I'm still using enzymes and oils to break down biofilms.  Biofilms encase and protect protozoa,  bacteria and virus that it encases. First you have to break down biofilm to get to it, or nothing you do changes much. If it's shield isn't weakened for the immune system to be able to detect it then either, antibiotic or herbals can't get to what you are trying to destroy - it's pretty much a waste of effort and money. That being said, there is new research showing that POTS has a strong connection to autoimmune dysfunction. Some of these pathogens are so tricky for the immune system to detect. It is possible for them to take on some of our DNA and look to be a part of us and then the body attacks self. It knows something is foreign but can't detect what . Happens with vaccines too.  I've always felt a polio vaccine when I was around 8 triggered the start of my battle. I'll try to get the link to the new article. I have it in pdf form and can't print it. 

Issie

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