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Cfs Pots Subgroup Paper


~Naomi~
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I've been saying this forever. My sister has OI and CFS. Even though I have all the markers for CFS except for one ---when I compare myself to her ---I don't think I have CFS. But, maybe the POTS counter-acts some of the symptoms of CFS. Interesting that a study was done about it. I find that I'm not nearly as fatigued as my sister is.

Issie

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Interesting! We have been on the POTS "journey" for 16 months now and my daughter was just diagnosed with CFS. The doctor just ran some tests and found out that her NK cells are extremely low. The doctor is now testing to see if the previous virus that she had damaged her immune system or if the virus is still smouldering somewhere in her body. The will determine what treatment he suggests for her.

Pam

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