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In quotations because I'm not certain they are weird. I understand that different people experience different symptoms and that there are a large assortment of symptoms that come with POTS. The only other person I know with POTS is my sister, and I'm just going by what she experiences.

Two symptoms uncommon between us are:

  1. Momentary deafness, in one ear or both.
  2. Frequent UTIs and UTI symptoms when not properly hydrated. If I lessen what I drink by even the slightest, I'll experience discomfort. Which, while a good incentive for me to stay hydrated, is extremely annoying.

Anyone else experience these?

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I am just getting over a bladder "irritation" that felt like an infection, but the lab says otherwise.

Curious, I see you have the Factor II mutation. Did the doctors do anything for it? I have it and not sure what they do for it, if anything. I have not seen a doctor for it yet.

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Hi Star!

I have the" deafness"in my ears, it usually comes on very suddenly and has so suspected link to posture or any other symptoms for me. Its like this loud, humming, ringling, deafening pressure that starts on one side of my face and one ear and travels to the other sometimes. Then it fades away in less than a minute. WHen it hits me when I am walking it feels very similar to the cranial pressure I get right before I syncope.Very wierd and alarming when it happens, the first time I was walking to the car and it happened and I thought I was just having a syncope episode without the normal warnings so I quickly laid down next to my car and it passed.... my neighbors must think Im crazy sometimes.lol

In the beginning I had freqeunt utis however not since i've increased fluids. I never really thought about it being related to POTS though, just assumed if Im not retaining enough water = idea conditions for bacterial overgrowth, however I have read their are many people with urinary dysfunction with thier pots .... so ??? Take care =)

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I am just getting over a bladder "irritation" that felt like an infection, but the lab says otherwise.

Curious, I see you have the Factor II mutation. Did the doctors do anything for it? I have it and not sure what they do for it, if anything. I have not seen a doctor for it yet.

The same thing happened to me, initially. I went to a clinic because I couldn't get an an appointment with my physician that day, thinking that I had a UTI as I've had many times before, but the lab turned up negative. So the clinic doctor said I was probably dehydrated. Now, whenever I start to get symptoms I just drink more and it usually goes away.

I didn't really see a doctor, but my doctor gave some advice/information when he gave me the lab results. He said that there is an increased risk for blood clots especially during pregnancy and when taking birth control. And that's important to be attentive even during everyday things such as long car or plane rides. He said that a daily regimen of aspirin hasn't been proven effective, and since I'm not currently at high risk there's no point in trying. The only thing he suggested is to rotate my ankles when I've been sitting or lying for a while.

Hi Star!

I have the" deafness"in my ears, it usually comes on very suddenly and has so suspected link to posture or any other symptoms for me. Its like this loud, humming, ringling, deafening pressure that starts on one side of my face and one ear and travels to the other sometimes. Then it fades away in less than a minute. WHen it hits me when I am walking it feels very similar to the cranial pressure I get right before I syncope.Very wierd and alarming when it happens, the first time I was walking to the car and it happened and I thought I was just having a syncope episode without the normal warnings so I quickly laid down next to my car and it passed.... my neighbors must think Im crazy sometimes.lol

In the beginning I had freqeunt utis however not since i've increased fluids. I never really thought about it being related to POTS though, just assumed if Im not retaining enough water = idea conditions for bacterial overgrowth, however I have read their are many people with urinary dysfunction with thier pots .... so ??? Take care =)

Hi! Nice to meet you!

My deafness lasts about the same time. I get the pressure, but not the ringing. There was one occasion where everything sounded sort of mechanical and distorted. I will try changing position when that happens, thank you for the advice!

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The brief hearing issues happen to me too - especially in my left ear (funny as it's the better of the two). They predate the POTS - I think a lot of people have brief episodes of ringing/loss of hearing, but I'm not 100% sure. My partner (who doesn't have POTS or anything wrong medically) says it happens to him from time to time and is pretty common in other folks. I guess I personally wouldn't worry about it unless it increases in frequency/severity or you start having other symptoms, but that's just my take on it.

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