Leigh8 Posted November 24, 2012 Report Share Posted November 24, 2012 How many ounces of water/liquids do you drink a day? Quote Link to comment Share on other sites More sharing options...
k&ajsmom Posted November 24, 2012 Report Share Posted November 24, 2012 I drink two 32 ounce sugar free gatorades and then fill them back up with h2o and drink those...and then I float away...lol if I dont drink that much I feel very dehydrated by the next am. Quote Link to comment Share on other sites More sharing options...
SeattleRain Posted November 25, 2012 Report Share Posted November 25, 2012 I try to get 2 - 3 liters a day which should work out to around 70 - 100 oz, or almost a gallon. Quote Link to comment Share on other sites More sharing options...
imapumpkin Posted November 25, 2012 Report Share Posted November 25, 2012 Can I recommend SmartWater? I know it's mad expensive, but it really has worked miracles for my fluid retention. tap water/regular bottled water runs right through me, and I definitely notice a difference in my blood pressure when I drink more. When I had my TTT done this week my neurologist asked me how much water I thought I was getting a day. She said that they want POTS patients to have 60-80 ounces a day! YIKES. That's a nice goal, but I'm petite, get full easily, and physically have nowhere to put that much! I am constantly drinking from my giant 33 or 50 oz bottle of smartwater all day and i just get full. I also have to eat so there's just nowhere to put 80 oz of water. Quote Link to comment Share on other sites More sharing options...
Guest Alex Posted November 25, 2012 Report Share Posted November 25, 2012 I've varied my fluid intake as an experiment, just to see if I notice any change in my symptoms - mainly hr and bp. I used to drink 1 gallon + of water a day, now I've settled for 2 liters (67 oz or so) but I've tried to go as low as 1 liter a day just to see if anything changes. I'll be honest, I wasn't expecting this, but I did not notice any major changes.More than that I've reduced my salt intake (I only consume what a normal person would, I'm actually quite at the low end of the "normal" spectrum of salt consumption and my stomach is quite grateful for this). I've also reduced my florinef intake from 0.2 to 0.1 mg a day. No changes in bp and/or hr ....actually, for the first time in a long time, my bp seems to have stabilized - I no longer experience horrible spikes in bp (I hope I haven't spoken too soon) and my headaches aren't as bad as they used to be. My hr is still elevated at times, but I've gotten used to it...I think.I won't see my dr for another 2 mo, but I'm quite curious to hear his opinion on this given that he diagnosed me with hypovolemic POTS (so florinef plus salt an fluid loading should help).Alex Quote Link to comment Share on other sites More sharing options...
Leigh8 Posted November 25, 2012 Author Report Share Posted November 25, 2012 imapumpkin - how much sodium is in smartwater? I haven't had it before, but maybe I should look into it. Thanks! Quote Link to comment Share on other sites More sharing options...
puppylove Posted November 25, 2012 Report Share Posted November 25, 2012 I love smart water! I don't think there is a significant amount of salt or electrolytes in it because on the bottle it says electrolytes added "for taste". It really does taste good though. Quote Link to comment Share on other sites More sharing options...
Relax86 Posted November 25, 2012 Report Share Posted November 25, 2012 I drink Smart Water also; 2/day. 0 sodium. Bottle says calcium chloride, magnesium chloride, and potassium chloride added for taste but it does not give quantity which makes me think it's so minute that it's not even measurable. I could be wrong. It was much cheaper before Jennifer Aniston was doing the commercials. But I can still get it at my local BJ's for a dollar ($11.99 for a case of 12). I buy 4 cases at a time. Sometimes at work I'll drink the first bottle and fill up with the water cooler just to try and save a little on cost. But my mental status thinks it helps and I try not to cross my emotional needs... Quote Link to comment Share on other sites More sharing options...
lynnie22 Posted November 25, 2012 Report Share Posted November 25, 2012 I have been drinking about 64 oz of water a day, plus two V-8 juices on bad bp days. Smart Water sounds like a good idea, since the regular water goes in and out very quickly. There are a few waters out there that claim to have lots of electrolytes in them which will probably be better for fluid retention and thus bp. I'm looking into them. Quote Link to comment Share on other sites More sharing options...
imapumpkin Posted November 26, 2012 Report Share Posted November 26, 2012 No sodium in smartwater unfortunately but V8 def helps with that. the electrolytes are really helpful or fluid retention. its the only thing i can drink that i don't have to go to the bathroom 20 min later with. Quote Link to comment Share on other sites More sharing options...
Leigh8 Posted December 5, 2012 Author Report Share Posted December 5, 2012 Wow I am surprised 4 people drink only 20 oz or less! I wonder why....I have always had doctors tell me to drink a lot of water to help with dysautonomia as dehydration can really enhance symptoms. Quote Link to comment Share on other sites More sharing options...
Ash Posted February 13, 2013 Report Share Posted February 13, 2013 I usually try to drink 30-60 oz of water a day plus Gatorade on bad days..I haven't really ever tried Smart water, other then just grabbing a bottle here and there, but I had a patient today tell me about electrolytes that you can buy at the health food store to add to reg. water. I was going to buy some to try and see if it makes a difference because if I don't start retaining some more water soon I am going to float away! Quote Link to comment Share on other sites More sharing options...
Mydoggielovesme2 Posted February 13, 2013 Report Share Posted February 13, 2013 Ash, please let us know what you are getting. I am in the same boat as you-----no pun intended-----but I feel like my eyeballs may even begin to float! And smartwater is so expensive. Quote Link to comment Share on other sites More sharing options...
Batik Posted February 14, 2013 Report Share Posted February 14, 2013 I just put salt into my metal water bottle. I'm being fancy and doing a mixture of half low-sodium salt, half sea salt. Quote Link to comment Share on other sites More sharing options...
TCP Posted June 25, 2013 Report Share Posted June 25, 2013 Four pints (80oz) of water in winter and 5+ in the summer. Quote Link to comment Share on other sites More sharing options...
shan1212 Posted June 27, 2013 Report Share Posted June 27, 2013 I think I'm currently drinking at least 150 ounces of nuun water a day. I'm just so thirsty all the time! When I exercise inside, I'll drink 16-32 ounces during exercise. When I jog outside, I'll drink 50-75oz, or more! And then I fill my 32oz. mug up several times a day. I do worry that it's a little excessive but I think I really need it. I've always (even before POTS, or before I had it bad) needed to carry water with me everywhere I go. And now that I"m taking florinef, I seem to be even more thirsty. Quote Link to comment Share on other sites More sharing options...
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