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lumpchp

Orthostatic Headache?

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Does anyone else get bad throbbing headaches? Its been happening alot lately. Wake in the morning, and I'm totally fine until my head gets above heart level... Then stops when I put my head down. I've read a little, and seems it could be related to eds and/or low csf? Of course like many other strange symptoms, could be a potsy thing too I guess.

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I have a headache everyday, as soon as I get out of bed it starts. Nothing takes it away except to lay down. I assume it's poor blood flow to my brain. Sometimes they are severe, sometimes just annoying.

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When I went to the autonomic unit they said I have orthostatic headaches. They gave me no reason for them and were blasé about it so I presume it could be pots related and lack of blood flow. I also get the neck pain with it too.

Last year I had them so bad but they have eased for me if late thank goodness.

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