Sheila1366 Posted November 7, 2012 Report Share Posted November 7, 2012 On top of my gastroparesis getting much worse and on an all liquid diet..again, I am so very tired. Not the usual tired, like a wave of heaviness over my head and body. Feel so weak. Friday I came very close to fainting. Threw up a few times. Stomach is huge and not working very well. But the dysautonomia is getting worse to I think. The physical pain is different than my usual fibromyalgia. Dropping things all the time. Knees buckling.I go to Vandy in Jan. Hope I can figure out what is going on with me. I get scared often , things are getting worse. Quote Link to comment Share on other sites More sharing options...
SeattleRain Posted November 7, 2012 Report Share Posted November 7, 2012 I really hope you can find some sort of relief soon. I can't imagine going through all of that. Hang in there! Quote Link to comment Share on other sites More sharing options...
Sheila1366 Posted November 7, 2012 Author Report Share Posted November 7, 2012 Thanks. I just want to be ok. So tired of being sick. Quote Link to comment Share on other sites More sharing options...
corina Posted November 8, 2012 Report Share Posted November 8, 2012 Hope Vandy can give you the answers you need Sheila! Quote Link to comment Share on other sites More sharing options...
ladyt Posted November 8, 2012 Report Share Posted November 8, 2012 I hope vandy will be abel to help u too. I know one whit fibro that also have periods that she doesnt walk straith, cant hold on to stuff and bigg issues whit food. But then she will hae better time. I hope that will be the case for u. Its not fun when the body trow u for a loop and twist stuff upp even more.best of luck and a bigg hug from me Quote Link to comment Share on other sites More sharing options...
JenLR Posted November 8, 2012 Report Share Posted November 8, 2012 I'm sorry you are having such a hard time. I developed gastroparesis about a year ago, and it made my POTS a hundred times worse. I spent a lot of time in the hospital because I felt like I was constantly losing consciousness. I was also receiving TPN through a PICC line until I asked my doctor to prescribe domperidone for me. I don't know if that is something that you've tried, but it was a miracle drug for my gastroparesis. Hope you find some relief very soon. Quote Link to comment Share on other sites More sharing options...
Sheila1366 Posted November 10, 2012 Author Report Share Posted November 10, 2012 Thanks everyone. I have not tried Domperidone. My motiltiy dr. didn't suggest it after I had a bad reaction to reglan. So glad it is helping you Jen. Quote Link to comment Share on other sites More sharing options...
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