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If My Son Has Pots Too...


khaarina
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After learning that I have POTS, I bought a blood pressure monitor and did standing tests on my two kids and husband. Mainly, I just wanted proof that my reaction to standing is not normal, but I also had some concerns about my 13 year old son. Sure enough, my son couldn't stand 4 minutes without almost passing out. My 9 year old daughter had no symptoms, so that is great, but now I am really worried about my son. Of course I will be taking him to a doctor, but I'm hoping the more I find out about my POTS, the less tests and doctor appointments my son will have to go through. Is there a particular cause or subtype of POTS that is more likely to run in families?

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If you are of jewish decent there is one called familia dysautonomia. However, there are also many causes of pots and syncope that could be considered genetic.

I've just started with a genetic doctor because we found I have a defective mthfr gene, which explains some things, but not all the autoimmune stuff. I suspect I have another defective gene causing that. I haven't posted on that yet because I don't know enough yet.

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  • 2 months later...

I have POTS (not officially dx yet) and I think that my 12 year old son may have it. Last winter our whole family was sick a lot with one virus after another. My 12 year old though stayed sick. He began to have all kinds of GI issues, complaining of feeling week and saying that he felt like he was going to pass out. He actually did pass out once. He also developed terrible anxiety. He would actually have full blow panic attacks. Before all this he would go anywhere do anything with anyone, but all the sudden he wouldn't leave my sight. He did have some weird liver stuff go on during all that but nothing ever came out of it. Of course, he's never really had that classic HR issue that I am aware of though. It's been a year and while he's much much better now he still has times where he doesn't eat well and he also is still hesitant to go places without us. He also did just recently pass out. It was actually the day I went to the doctor because my symptoms were so terrible. When we went to my mom's to pick up the boys ds was lying down on her couch and he got up and walked a few step to me and said, "man I am dizzy!" He leaned over on me pretty hard but I had no idea he was passing out. I just happen to step back or something and he hit the floor like a lead balloon! After my husband and I started to read all this POTS stuff he said it sound a lot like our ds, too. From what I have read, it sounds like some kids get it when they hit puberty. It won't surprise me if this happens to him when he does, but I pray it doesn't!

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I don't think they've studied it enough to know. I've asked several POTS specialists and while they say that they tend to think that it does run in families there aren't any studies to show that yet, except for the ones that Arizona Girl referred to above. Since the specialists can't even agree on sub-types of POTS yet or the fact that it runs in families, I think it'll be awhile before they can say which sub-types run in families. That said, I think my daughter has it too and my POTS neuro has said he'll see her once she has some basic work up done locally to rule out other things.

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Yes my mom and I both have POTS. Mine started at 18, hers started at 50 for whatever reason. We both see Dr. Goodman and he thinks its either autoimmune or a connective tissue disorder. My nana also used to pass out. It seems to get worse every generation. I pray my daughter doesnt get it

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There is def. a genetic pre-disposition to these sorts of conditions. My maternal grandmother had addisons, my grandmother had undiagnosised fainting spells with hypotension and my mom had mitral valve prolapse and if she were to be tested I have no doubt she'd qualify for Pots. I have autonaumic dysfunction since I was a toddler so there is def a possibility of passing it on. I am determined to figure mine out so I dont leave this confusing bag of tricks for my kids. My daughters been complaining of what I think is pvc's and my son has chest pains and "black vision" so eeek I hope the doctors can figure it out soon for them...sorry ur having concerns here. I hope he is just a dehydrated or somehting minor, and if not its a blessing u are on top of it now. Prayers and good thoughts ur way =) sarah

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