Rachel Posted October 24, 2012 Report Share Posted October 24, 2012 Dysautonomia SOS has invited DINET to join them in a tweet-a-thon this Sunday, October 28th! Claire has been planning this for many months, and I'm excited about joining in on Sunday evening.We'd like to get #dysautonomia trending on twitter, spread awareness, and thank research centers for researching dysautonomia.Want to join us? Find information about the tweet-a-thon here: http://dysautonomias...nomiatweetathon Quote Link to comment Share on other sites More sharing options...
corina Posted October 24, 2012 Report Share Posted October 24, 2012 Oooh, I'd LOVE to join but am afraid that 1.00am (London time) won't be the right time for me! Maybe we can set up something like this in Europe too! Quote Link to comment Share on other sites More sharing options...
Rachel Posted October 24, 2012 Author Report Share Posted October 24, 2012 Feel free to tweet earlier in the day if that works better for you in your time zone. I wouldn't want to wake up at 1am either! Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted October 24, 2012 Report Share Posted October 24, 2012 I'll do my best to be there and tweet...would be only the 3rd tweet of my life despite a twitter account that is at least a few years old Quote Link to comment Share on other sites More sharing options...
corina Posted October 25, 2012 Report Share Posted October 25, 2012 I don't have a twitter account yet but will get one for this occassion, I hadn't thought of tweeting earlier Rachel, hahahaha brain fooooog! Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted October 25, 2012 Report Share Posted October 25, 2012 Count me in! Quote Link to comment Share on other sites More sharing options...
Rachel Posted October 27, 2012 Author Report Share Posted October 27, 2012 The tweet-a-thon is coming up tomorrow! If you're joining in, feel free to share your twitter name so that we can follow you! If you don't want to share it here, but you want DINET to follow you on twitter, you can send me a PM with your twitter name. DINET's twitter name is @DINETorgMy personal twitter name is @cttRachel Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted October 28, 2012 Report Share Posted October 28, 2012 @NaomiNJ Quote Link to comment Share on other sites More sharing options...
roxie Posted October 28, 2012 Report Share Posted October 28, 2012 Is there something specific we're supposed to tweet? I want to, I just don't know what to say Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted October 28, 2012 Report Share Posted October 28, 2012 Bananas - if you go to Rachel's first post above and click on the link, there are instructions. You can copy and paste the suggested tweet statement from there. This is what it says (I copied below) and they give you suggested people to tweet to. I hope I have this right - I haven't done much tweeting either, so I've been giving myself a crash course!@<insert celeb here> Pls RT! 1 in 100 US teens affected by this, know the symptoms! Support Global #Dysautonomia Awareness: http://bit.ly/U5TykM Quote Link to comment Share on other sites More sharing options...
roxie Posted October 28, 2012 Report Share Posted October 28, 2012 Thanks, Naomi Quote Link to comment Share on other sites More sharing options...
Rachel Posted October 28, 2012 Author Report Share Posted October 28, 2012 10 Minutes until the tweet-a-thon starts! See you over on twitter!Rachel Quote Link to comment Share on other sites More sharing options...
Kellysavedbygrace Posted October 29, 2012 Report Share Posted October 29, 2012 I just tweeted - my first time since medical leave last Sept. Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted October 29, 2012 Report Share Posted October 29, 2012 I don't know if most of mine made it through - I sent many more than I saw pop up at #dysautonomia. Quote Link to comment Share on other sites More sharing options...
Rachel Posted October 29, 2012 Author Report Share Posted October 29, 2012 The tweet-a-thon was great fun! Thanks to everyone who joined in. It was really neat to see so many people with dysautonomia get together and tweet for awareness. We may be tired, sick, and/or homebound, but we can still be seen and heard!Naomi, I saw several tweets from you! They went through just fine. Sometimes it takes a few seconds for them to load, and with all of the #dysautonomia tweets at once it may have taken a moment for your tweets to show up on the #dysautonomia stream. Quote Link to comment Share on other sites More sharing options...
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