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StephL

Frustrated With No Answers

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I have a copy of this presentation saved.......its been very helpful! I live in Canada and we do not have a lot of mast cell specialists hanging about...in fact most of the allergists here won't even acknowledge you unless you have full blown mastocytosis :( I finally lucked out thanks to another patient and my internist and got referred to a specialist who is now dealing with patients with MCAS-POTS-EDS and is doing a clinical study on the comorbidity between the three syndromes. After 5 long years I am seeing a little light at the end of the tunnel ;)

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