Anoj Posted October 12, 2012 Report Share Posted October 12, 2012 hi everyone. i got the results of my sleep study . no apnea, barely snored once - but alpha wave disturbance. i need to do some research. my initial results keep showing stuff about fibomyalgia. the dr. said alpha wave disturbance is frequently seen in fibromyalgia. i've never considered that i might have fibro. i don't have pain. however, it would be more likely that i would have chronic fatigue. i don't like that term (either of them, really). i consider them "trashcan terminnology," as one of my doctors said.i was just wondering if anyone had more info on this phenomenon? supposedly the alpha waves disrupt the deep sleep (delta waves), which means you don't get meaningful sleep. when i told the doc i need 9 hrs or i'm toast, she believed me and said the only treatment for this would be to sleep a lot - as much as my body needs - 9 hrs a night or more.who has time for that? i work and have a house to take care of, etc.i'm just curious to what all this could mean.thanks! Quote Link to comment Share on other sites More sharing options...
issie Posted October 12, 2012 Report Share Posted October 12, 2012 CFS, FMS and POTS are so closely connected. I think if we find an answer for one, we may find an answer for all of them. (Just my opinion.) I have issues with sleep and have been said to have FMS, EDS, POTS and the letters and DX's could continue on for a line. But, I also have apenea - both kinds - central and obsturctive. So, getting proper sleep is essential.Issie Quote Link to comment Share on other sites More sharing options...
bellgirl Posted October 12, 2012 Report Share Posted October 12, 2012 I have sleep apnea and very little REM sleep, and have to sleep 8-10 hours to feel rested even with a Cpap and Klonopin! I even nap on occasion, if I have overdone it. Quote Link to comment Share on other sites More sharing options...
bellgirl Posted October 12, 2012 Report Share Posted October 12, 2012 They are thinking I have fibromyalgia, as well. Here is an interesting article on the combination of fibro and sleep disorders...http://www.fmcpaware.org/r-v/sleep-disorders Quote Link to comment Share on other sites More sharing options...
issie Posted October 12, 2012 Report Share Posted October 12, 2012 They are thinking I have fibromyalgia, as well. Here is an interesting article on the combination of fibro and sleep disorders...http://www.fmcpaware...sleep-disordersNice article, thanks for sharing. Interesting the MCAS protocol works on the things talked about in this article.Issie Quote Link to comment Share on other sites More sharing options...
Anoj Posted October 14, 2012 Author Report Share Posted October 14, 2012 i don't have pain. is it possible to have fibro without pain? i didn't think so. i wonder if there are any other conditions that alpha disruption point to? Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted October 14, 2012 Report Share Posted October 14, 2012 According to this person, this Alpha wave thing also occurs in CFS. I know what you mean about the trashcan terminology, it's too easy to say CFS since there's no sure way to prove or disprove the diagnosis. However, I do believe CFS/ME is a real illness (I'm pretty sure I have it, whatever it is) and maybe you and many of us do too.http://chronicfatigue.about.com/b/2009/05/20/odd-sleep-patterns-in-fibromyalgia-chronic-fatigue-syndrome.htmCFS, FMS and POTS are so closely connected. I think if we find an answer for one, we may find an answer for all of them. (Just my opinion.) Totally agree! Quote Link to comment Share on other sites More sharing options...
issie Posted October 14, 2012 Report Share Posted October 14, 2012 My sister has CFS really bad and both of us are DX'd with FMS - but, I have EDS too. My sis. see's one of the world known docs for CFS in SLC, Utah. There is a lot of research going on with this right now and some possible studies coming up. Reading the criteria that my sis' doc gave her ---I only lack two of the points of having CFS myself. But, when I compare my tiredness to hers ----I think I don't qualify ---so never said I had CFS. She also has OI with low bp. I have HyperPOTS with high bp's. So, we both have autonomic issues - but - very different presentations. And now, 2 of her 3 kids are showing signs of some sort of dysautonomia. One is a fainter and the other is more like me. So, there has to be some sort of genetics at play here. Issie Quote Link to comment Share on other sites More sharing options...
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