funnyfrog Posted March 27, 2005 Report Share Posted March 27, 2005 Hi Everyone - I just have a quick question - For about the last week, I have had this annoying twitch in my right eye, mostly when I am blinking but sometimes when I am not. I am not under stress or anything like that so I know its not a nervous condition and I have been extra sleepy and fatigued for about a week now also - I have had POTS since March,2002 and also have Epstein Barre Virus but this twitch is new and I was just wondering if any of you get these involuntary twitches and is it because our autonomic nervous system is so screwy that all of a sudden this is starting now? Happy Easter to Everyone that is celebrating tomorrow!!!! Beth in NJ Quote Link to comment Share on other sites More sharing options...
steph37822 Posted March 27, 2005 Report Share Posted March 27, 2005 oops Quote Link to comment Share on other sites More sharing options...
funnyfrog Posted March 27, 2005 Author Report Share Posted March 27, 2005 Hi Steph - Thanks for answering me - That is strange that you said the same thing about 20 minutes ago - Isn't it annoying? This twitching is driving me up the wall. I wish it would go away the same way it came!!! Have a great night! Beth Quote Link to comment Share on other sites More sharing options...
morgan617 Posted March 27, 2005 Report Share Posted March 27, 2005 I get it a lot, then go along time and don't. I ask my doctor about it and he said you can get these teeny inflamed nerves, like around the eyes or mouth and that sometimes it can take up to six weeks! for them to get better, but they always do, and are very benign. morgan Quote Link to comment Share on other sites More sharing options...
funnyfrog Posted March 27, 2005 Author Report Share Posted March 27, 2005 Hi Morgan - Thanks for easing my nerves - I'm glad that its probably nothing to worry about then - Thanks again for your reply. Good night! Beth Quote Link to comment Share on other sites More sharing options...
briarrose Posted March 27, 2005 Report Share Posted March 27, 2005 I get them too. I can go 6 months in between them happening but they are extremely annoying. I chalk it up to another weird POTSY symptom. Quote Link to comment Share on other sites More sharing options...
dizzygirl Posted March 27, 2005 Report Share Posted March 27, 2005 Hi! i get these weird twitches in my left eye too... I agree that they will drive you looney!!Good luck to youLinda Quote Link to comment Share on other sites More sharing options...
EarthMother Posted March 27, 2005 Report Share Posted March 27, 2005 I also talked to my doc about these (though lately mine have been lip twitches -- I feel like a fish caught on a hook!) the doc said magnesium (i take a powder supplement) and potassium (o.j. or bananas).Good luck in finding something that works!EM Quote Link to comment Share on other sites More sharing options...
funnyfrog Posted March 27, 2005 Author Report Share Posted March 27, 2005 Hi Earthmother - I just turned on the computer and read your post and you gave me my laugh for the day about feeling like a fish caught on a hook - glad that the POTS hasn't done anything to your great sense of humor!! I am going to go food shopping today with my husband and get some bananas-unfortunately, my stomach cannot handle orange juice though. Maybe I will look into the magnesium supplements too-Thanks for your advice and hope your lip twitching stops soon - you know,its get warm out and fishing season starts soon,watch out! Beth Quote Link to comment Share on other sites More sharing options...
blackwolf Posted March 27, 2005 Report Share Posted March 27, 2005 I twitch almost everywhere, though my left side(and eye) are by far the worst.blackwolf just another potsy thing for me. Quote Link to comment Share on other sites More sharing options...
Guest tearose Posted March 27, 2005 Report Share Posted March 27, 2005 Hi Beth, yes, I get an eyelid twitch and it is so annoying! It will also happen on and off for a few days and then go away. I do notice it comes on when I have been unusually busy and I am very tired, from lack of sleep not fatigue.I guess since it happens only 2-3 times a year I have been able to live with this annoyance. I hope you don't have this a lot.best regards, tearose Quote Link to comment Share on other sites More sharing options...
yogini Posted March 27, 2005 Report Share Posted March 27, 2005 I used to have this sometimes years ago when I was working around the clock (way before POTS). My doc told me it's a common symptom of fatigue and also from caffeine. Quote Link to comment Share on other sites More sharing options...
Christine Posted March 28, 2005 Report Share Posted March 28, 2005 Hello,I too have the "twitches". I get them in my left eye. I once had it for 3 weeks and I just about went crazy. No one could see my eye twitch but I could feel it. I also get twitches all over my body. They don't hurt and actually I am used to them. I don't know what they are but I know when I am tired or I have put too much stress on my body they become more frequent. They are weird but I guess it is part of POTS. I remember going to different doctors telling them that I have body twitches they thought I was strange. The only time they paid attention was when they thought I had MS. Well, it turned out to be POTS. Christine Quote Link to comment Share on other sites More sharing options...
funnyfrog Posted March 28, 2005 Author Report Share Posted March 28, 2005 Hi Christine & Everyone that answered me today - I am so glad that I am not alone in these weird twitches, it sounds nutty if you don't have POTS so I'm glad you all didn't think I was a total nutcase for asking my question - The twitch today wasn't as bad as yesterday or the rest of this week was,although it is still here - I was afraid to mention it to my doctor, he probably thinks I am nutty already anyway - I'm sorry though that you have these twitches too though.. I can't fall asleep, like usual, I am wired in the middle of the night and exhausted all day so here I am on the computer. Good night everyone Beth Quote Link to comment Share on other sites More sharing options...
Christine Posted March 28, 2005 Report Share Posted March 28, 2005 Goodnight, Beth! I hope the twitches go away soon!Christine Quote Link to comment Share on other sites More sharing options...
calypso Posted March 28, 2005 Report Share Posted March 28, 2005 I have periods (months, weeks, days, etc.) where I twitch in various places. I get them in my abdomen, feet, legs, eyes, arms ... and I also have certain days here and there where I have a hand tremor that looks just like a Parkinson's tremor (but isn't).I agree that the autonomic overactivity does some crazy stuff to stimulate nerves.Amy Quote Link to comment Share on other sites More sharing options...
geneva Posted March 29, 2005 Report Share Posted March 29, 2005 The timing of your post is amazing because in the last month my right eye has started this twitching and driving me crazy! I wondered whether it might have something to do with all the allergies in the air but I guess maybe it falls in the POTS bucket....like all the other weird things. Glad to know that no one else has found this to be something more serious. Quote Link to comment Share on other sites More sharing options...
Ernie Posted March 29, 2005 Report Share Posted March 29, 2005 I have this twitches also but I never asked the doctor about it. It started when I was 12 years old.Ernie Quote Link to comment Share on other sites More sharing options...
joyce68 Posted March 29, 2005 Report Share Posted March 29, 2005 I occasionally get the eye twitching, it will go months and not happen and then all of sudden it will do it a few times a day, pretty annoying when it happens, but I 've never heard of it being dangerous. good luck Joyce Quote Link to comment Share on other sites More sharing options...
funnyfrog Posted March 30, 2005 Author Report Share Posted March 30, 2005 Hi Everyone- Can you believe all the twitches we get?Thanks for the replies!!! I didn't realize that this was such an annoying problem for so many of us - Either its a real big coincidence or our autonomic systems are on overdrive and this is just a new POTS symptom for me that I guess I will have to learn to live with - the twitching has gotten a lot better in the past 2 days and thankfully, is almost gone for now I'm glad too that nobodies twitches have been found to be anything serious - Thanks Joyce,Ernie and Geneva for answering me today, I appreciate it!! Beth Quote Link to comment Share on other sites More sharing options...
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