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Does Anyone Have Dry Skin, Eyes, Mouth, Hair?


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  • 2 months later...

Yup, Eyes, nose, mouth, skin and girl bits. I have hashi thyroid, symptoms of sjogrens and lupus, been told it's undifferentiated connective tissue disease cause I don't meet sjogrens and lupus fully. Any of these can cause these symptoms I have no idea which one, on top of that I have sf neuropathy and vaginal lichen planus.

We are trying to treat, but I'm still gritty dry.

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Dry as the Sahara over here....my hands look like reptile appendages most of the time, and NO amount of lotion seems to help. I have, however, fallen in love with Badger Balm....it's a kind of greasy, waxy hand treatment I found in a hardware store (I kid you not--I'm sure it's for lumberjacks or something). If I could buy it in bulk and soak in it, I would. :-)

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I use to have very oily skin and hair. When it changed to dry I thought it was age but now that you say it, it did start to change after the POTS. Wow! My skin went from VERY OILY to VERY DRY. Major change. Also my hair. I could wash my hair 2x a day and it still looked greesy. But now it is very dry and I only wash it with moisture shampoo everyother day. Major change again. Part might be my low thyroid but now I need to rethink this as POTS. Thanks for bringing it up.

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Eyes yes, skin a bit, mouth no, hair not that I've noticed, though I consider it normal to dab a bit of oil on my hair from time to time anyway. I use eye drops throughout the day, and make my own moisturiser. Some of my friends say they don't bother to use moisturiser, so I must have dry skin compared to them, because I really can't skip a day on moisturiser if I don't want my face to feel painfully dry. I make mine by melting together solid coconut oil, cocoa butter and kokum butter, then adding a couple of drops of essential oil and putting the jar in the freezer to solidify again, if anyone's curious. Very fussy skin here!

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Yes to all. However, they seem to get dryer when my symptoms are more acute, so to me there is a clear connection. When my symptoms started, my hair was extremely dry and my eyes burned so much from the lack of moisture that I thought at first the oxygen they were giving me was sneaking out of my nose and drying my eyes out. Nope! Just plain dysautonomia, It usually is one of my first symptoms when I have a flare-up.

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yes to all for me. I also notice that when i am having my worst dysautonomia symptoms I have terribly bad sebhorroic(sp?) dermatitis on my head and behind my ears. Unfortunately, ketoconazole (only thing that helps it) is contraindicated with mestinon. bummer. so i am a flake in more ways than one! tee hee!

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yes to all for me. I also notice that when i am having my worst dysautonomia symptoms I have terribly bad sebhorroic(sp?) dermatitis on my head and behind my ears. Unfortunately, ketoconazole (only thing that helps it) is contraindicated with mestinon. bummer. so i am a flake in more ways than one! tee hee!

Is the same for me, ust that i have never fond any treatsment. My mouth dryness depens. Actually the only dryness that is always irritating is the eyes. I look like a vampire to often, and not the cullen type. And for me Its worse in the evning and during the nigth. During my pregnancy it was mostly ust my eyes. And now Its all comming back...

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I'm off my meds (mainly antihistamines) for a few weeks in preparation for a 24 hour ECG (Holter monitor), and my eyes are distinctly worse. I'm having more episodes of them suddenly stinging and swelling shut, just from the humidity in having a shower. It used to be that water in my eyes was bad enough, like getting soap in there, but now it seems that steam is too. Plus the eczema on my eyelids is back with a vengeance, which means steroid cream again.

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Yes to major dry mouth, that's what causes me to drink a gallon of water per day. Yes to dry skin but mainly the back of my hands. Not sure about dry hair.. Dry eyes when I wake up from sleeping. My blood test last year was negative for Sjogrens but I'm going to a specialist next week. I hope she orders a lip Biopsy, that's the only 100% test for it. Blood is only 50% accurate and I know ppl with POTS who have it and tested negative blood but positive lip biopsy..

Mestinon has help a little with it so far...

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