ipad Posted September 1, 2012 Report Share Posted September 1, 2012 When my symptoms started, I also developed dry skin, eyes, mouth, and hair. Does anyone else have these symptoms? Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted September 1, 2012 Report Share Posted September 1, 2012 Yes to hair, skin and eyes - my mouth feels ok. I have assumed these are all related to neuropathy. Quote Link to comment Share on other sites More sharing options...
westernmass Posted September 1, 2012 Report Share Posted September 1, 2012 YES I do!! I hate it! I've always had kind I dry sensitive skin but since this started my eyes and mouth and hair are drier as well. Quote Link to comment Share on other sites More sharing options...
jackiemxoxo Posted September 1, 2012 Report Share Posted September 1, 2012 yes, i have to use eye drops but i tested positive for Sjogrens which can cause dry eyes, mouth, etc. Quote Link to comment Share on other sites More sharing options...
westernmass Posted September 2, 2012 Report Share Posted September 2, 2012 I allegedly tested negative for sjogrens. But suffer dry skin, etc. Quote Link to comment Share on other sites More sharing options...
yogini Posted September 2, 2012 Report Share Posted September 2, 2012 Just skin for me Quote Link to comment Share on other sites More sharing options...
Loulou Posted November 17, 2012 Report Share Posted November 17, 2012 Hair and skin for me...Lisa Quote Link to comment Share on other sites More sharing options...
arizona girl Posted November 17, 2012 Report Share Posted November 17, 2012 Yup, Eyes, nose, mouth, skin and girl bits. I have hashi thyroid, symptoms of sjogrens and lupus, been told it's undifferentiated connective tissue disease cause I don't meet sjogrens and lupus fully. Any of these can cause these symptoms I have no idea which one, on top of that I have sf neuropathy and vaginal lichen planus.We are trying to treat, but I'm still gritty dry. Quote Link to comment Share on other sites More sharing options...
ophelialit Posted November 17, 2012 Report Share Posted November 17, 2012 Dry as the Sahara over here....my hands look like reptile appendages most of the time, and NO amount of lotion seems to help. I have, however, fallen in love with Badger Balm....it's a kind of greasy, waxy hand treatment I found in a hardware store (I kid you not--I'm sure it's for lumberjacks or something). If I could buy it in bulk and soak in it, I would. :-) Quote Link to comment Share on other sites More sharing options...
k&ajsmom Posted November 17, 2012 Report Share Posted November 17, 2012 Yes to hair skin and eyes...mouth too if I dont constantly drink gatorade Quote Link to comment Share on other sites More sharing options...
rach73 Posted November 19, 2012 Report Share Posted November 19, 2012 Hi,dry eyes started when the POTS really got bad. Dry mouth constantly, skin has become uber sensitive and dry and flaky. My hair seems ok but I have a dry scalp.Great isn't it! Quote Link to comment Share on other sites More sharing options...
Gerrik1 Posted November 19, 2012 Report Share Posted November 19, 2012 I use to have very oily skin and hair. When it changed to dry I thought it was age but now that you say it, it did start to change after the POTS. Wow! My skin went from VERY OILY to VERY DRY. Major change. Also my hair. I could wash my hair 2x a day and it still looked greesy. But now it is very dry and I only wash it with moisture shampoo everyother day. Major change again. Part might be my low thyroid but now I need to rethink this as POTS. Thanks for bringing it up. Quote Link to comment Share on other sites More sharing options...
Batik Posted November 20, 2012 Report Share Posted November 20, 2012 Eyes yes, skin a bit, mouth no, hair not that I've noticed, though I consider it normal to dab a bit of oil on my hair from time to time anyway. I use eye drops throughout the day, and make my own moisturiser. Some of my friends say they don't bother to use moisturiser, so I must have dry skin compared to them, because I really can't skip a day on moisturiser if I don't want my face to feel painfully dry. I make mine by melting together solid coconut oil, cocoa butter and kokum butter, then adding a couple of drops of essential oil and putting the jar in the freezer to solidify again, if anyone's curious. Very fussy skin here! Quote Link to comment Share on other sites More sharing options...
micheller Posted November 20, 2012 Report Share Posted November 20, 2012 Yes to all but mouth. My eyes are always dry and makes it difficult to wear contacts. My skin is the worst. I could sit in a lotion bath and still be dry. Now that it's getting colder out, it's getting worse. Quote Link to comment Share on other sites More sharing options...
Canadiangirl73 Posted November 22, 2012 Report Share Posted November 22, 2012 Yes to all. However, they seem to get dryer when my symptoms are more acute, so to me there is a clear connection. When my symptoms started, my hair was extremely dry and my eyes burned so much from the lack of moisture that I thought at first the oxygen they were giving me was sneaking out of my nose and drying my eyes out. Nope! Just plain dysautonomia, It usually is one of my first symptoms when I have a flare-up. Quote Link to comment Share on other sites More sharing options...
Rachel Cox Posted November 22, 2012 Report Share Posted November 22, 2012 yes to all for me. I also notice that when i am having my worst dysautonomia symptoms I have terribly bad sebhorroic(sp?) dermatitis on my head and behind my ears. Unfortunately, ketoconazole (only thing that helps it) is contraindicated with mestinon. bummer. so i am a flake in more ways than one! tee hee! Quote Link to comment Share on other sites More sharing options...
POTLUCK Posted November 23, 2012 Report Share Posted November 23, 2012 Yes, not mouth Quote Link to comment Share on other sites More sharing options...
ladyt Posted November 23, 2012 Report Share Posted November 23, 2012 yes to all for me. I also notice that when i am having my worst dysautonomia symptoms I have terribly bad sebhorroic(sp?) dermatitis on my head and behind my ears. Unfortunately, ketoconazole (only thing that helps it) is contraindicated with mestinon. bummer. so i am a flake in more ways than one! tee hee!Is the same for me, ust that i have never fond any treatsment. My mouth dryness depens. Actually the only dryness that is always irritating is the eyes. I look like a vampire to often, and not the cullen type. And for me Its worse in the evning and during the nigth. During my pregnancy it was mostly ust my eyes. And now Its all comming back... Quote Link to comment Share on other sites More sharing options...
Batik Posted November 24, 2012 Report Share Posted November 24, 2012 I'm off my meds (mainly antihistamines) for a few weeks in preparation for a 24 hour ECG (Holter monitor), and my eyes are distinctly worse. I'm having more episodes of them suddenly stinging and swelling shut, just from the humidity in having a shower. It used to be that water in my eyes was bad enough, like getting soap in there, but now it seems that steam is too. Plus the eczema on my eyelids is back with a vengeance, which means steroid cream again. Quote Link to comment Share on other sites More sharing options...
RichGotsPots Posted November 25, 2012 Report Share Posted November 25, 2012 Yes to major dry mouth, that's what causes me to drink a gallon of water per day. Yes to dry skin but mainly the back of my hands. Not sure about dry hair.. Dry eyes when I wake up from sleeping. My blood test last year was negative for Sjogrens but I'm going to a specialist next week. I hope she orders a lip Biopsy, that's the only 100% test for it. Blood is only 50% accurate and I know ppl with POTS who have it and tested negative blood but positive lip biopsy..Mestinon has help a little with it so far... Quote Link to comment Share on other sites More sharing options...
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