Jump to content

What Might Have Caused It?


imre
 Share

Recommended Posts

Has anyone had a sudden onset of pots in their early to mid twenties? If you know anyone like this, what has been the underlying cause?

I am 24 and was diagnosed in March of 2012 after an acute onset. Possible causes for me are virus, vaccinations, malaria prophylaxis ( I took while on medical mission in Asia) or neck injury sustained in November 2011 which is still bothersome.

Anyone with a similar experience or thoughts?

Link to comment
Share on other sites

I am sorry everyone is having such a hard time!!!!!!What symptoms is your daughter having that is keeping her bedridden and does she get up at all?

Thanks

Link to comment
Share on other sites

imre... sorry you're not well (and everyone else/their family too). I'm not sure about prophylactic or what that is.

I just wanted to say that my onset was mid-twenties, two years ago when I was 26. I thought it was because of post-pregnancy complications but anymore, I am just totally confused and have no idea.

Link to comment
Share on other sites

I also took mefloquine--in 1990-1992. I did not immediately present with symptoms. My first real symptoms appeared about 6-7 yrs later. However, looking back I did have symptoms that maybe started around that time--just very mild--certainly not acute. For me it is hard to imagine this is the explanation--but I of course also wonder what the cause was for me. I have one sister who also has POTS and she did not take this med.

Viruses are typically implicated and there are POTS patients who complain of neck problems or injuries.

Link to comment
Share on other sites

Hippychic258:

The symptoms of most concern right now are the difficulty breathing and feeling that her throat is closing up. However, she has a multitude of symptoms ranging from hives, skin and brain feeling like they are on fire, nausea, heart racing, unable to sleep, hair loss, and many others.

We are hoping for some answers soon (and hopefully a solution)!!!

Link to comment
Share on other sites

Nope never took plaquenil I just looked it up though and it is also anti malarial, and has some funky side effects from what I read. I can not say anything about it though because I don't know enough about the drug but it might be worth looking into.

Link to comment
Share on other sites

Hello

I'm 25 and was struck with a sudden onset in February 2012. I am doing about the same as I was then though my symptoms shuffle around a bit. I still work and am "functional" but at about 50% of the normal "me" I was before pots. Still looking for the underlying cause.

No illness, vaccines or serious injury before the onset. Very frustrating condition we have. I am grateful to be able to still get around ok and work, though it is not easy and I struggle every day. I know many here have it much worse and are bed bound or house bound or in wheel chairs. My heart goes out to those people.

It seems there are several different underlying causes and I wonder if the various subsets of pots have been linked to their onset; for example like is hyperadrenergic pots generally linked to post viral onset, etc etc.

Link to comment
Share on other sites

Thanks for all the responses guys, this illness is so bizarre nobody really knows the cause or the prognosis. From what I have read on this forum the range of severity is also very large. My heart goes out to all those suffering hopefully they will get better soon.

Link to comment
Share on other sites

Good question western mass I think I am in a similar situation as you. About 50 percent usually but still able to work, I have a lot of great family support which helps. I guess the original reason I posted was to find people similar to myself and get some sort of prognosis.

Link to comment
Share on other sites

So many possible triggers - I have been over it in my head a thousand times. Many problems began directly after being on Paxil and Klonopin. Also around this time I was positive for acute/active EBV infection and diagnosed with CFS. Worst symptom during that time (and still) was dizziness, spaciness, fatigue and cognitive problems. Really bad POTS symptoms (racing heart, trouble breathing, adrenaline etc.) started about 8 years later - possible triggers at that time were a neck injury caused by a chiropractor, a flourquinolone (Levaquin) that I took prior to cystoscopy (looking for cause of chronic blood in my urine), I had also been on steroids around this time trying to treat the inner ear/dizziness issues I had been having since the original onset of problems 8 years earlier. Or it's possible none of that triggered the POTS and it was all the same illness that just progressed. Too many things happened back to back - it's impossible to know what might have caused this. Or maybe all of that was just coincidental and POTS came for some other reason! So frustrating.

Link to comment
Share on other sites

Mid to late twenties here who experienced a sudden acute onset of POTS. I woke up fine that morning after a minor cold then boom, suddenly fainting and adrenaline surges everywhere later that day and it hasn't gone away since.

As for a trigger, I did have the cold but it was very minor. I was overseas at the time and had been flying a lot recently so that could also have been a trigger.. but then again I used to fly a lot for work and had always been perfectly fine. I've been told my POTS is probably autoimmune so maybe the cold stired something up? I also had stupidly high antithyroid antibodies at the time.

Link to comment
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

 Share

×
×
  • Create New...