Bed Rest May Make POTS Worse. Exercise Has Helped Me.

[McBlonde]

Lemons, you said "If You Want To Get Better You Have To Push. Exercise!" I walk 30 minutes a day. I exercise in the pool. I do resistance training. PUSHING to get better does not mean you will get better. Congratulations to you, but that statement you made is just NOT TRUE.

[brethor9]

so what if someone like me can actually go into anaphylactic shock from exercise does that mean I should just "push through" and ignore the horrible symptoms? I can't even get through a simple saline infusion without feeling like I am dying and having a massive reaction (if you want a visual see my post "scary pots attack after saline infusion") but should I just push through? or stick with it? I remember being nine months pregnant and still exercising 2 hours every night and not having any issues.....this illness can't even compare..... today I just found out I am having episodes of A-Fib do I just push through that with exercise even though the symptoms suck? for me exercise is getting through the day upright....that's more than enough right now .....again I think we have to be really careful about boxing everyone into the same corner...some of us really have tried all the SSRI's/SNRI's, exercise, homepathic, diet, whatever and still do not recover.....it is a wide spectrum illness and as individual as its sufferers.....and we are all not on the same level...what works for some will not work for others just like one chemo cannot cure every cancer...... just my opinion

[Lemons2lemonade]

The original post says consult your doctor and that I hope it can work for you. Sure, it may not work for everyone, but I was sharing my experience in hopes that it might help someone. It's not just my opinion, there is research backing this up. I'm not asking anyone who has been told not to exercise to exercise. I'm just saying that it was helpful for me. My purpose isn't to offend anyone, only to share a method that helped me.

[Mytwogirlsrox]

Yikes! Getting pretty heated

Everyone needs to do what best for them. I won't stop till I've tried everything that a Doctor (who is waaaay more educated than am) has studied that could potentially help me. Unfortunately mostly there is a lot of positive research on exercisizing helping. So I'm gonna try my hardest to exercise.

I think we all need to give doctors more respects and credit, they don't just come up with these ideas. They're scientific studies done by highly educated people. Peer reviewed and published.

Lemons, I think you were just trying to encourage people.. Not offend them. Im sure lemons knows we're all here with different root causes.

[Mytwogirlsrox]

Brethor -- they're treatments for a-fib. My dad had it for 30 years, just had a cardiac ablation.. He's symptom free! Granted he doesn't have pots mcas etc.. But I'm pretty sure a-fib is just from an extra electrical path

[brethor9]

Thanks my twogirls! yeah the a-fib is just one more new annoying symptom ;(

I also do have respect for doctors....I am blessed to have my specialists...but I have also dealt for many years with some pretty high end specialists who refuse to think outside of the box when it comes to patient care. Also alot of these clinical studies that are carried out the patients have been chosen and its a very small patient base....I would be happier if they did some papers on long term dysautonomia sufferers and why they are not recovering

and Lemons I realize you didnt mean to offend and I really am glad you have had improvement

[Dizzysillyak]

I raised a two year old on my own most of the time after coming down with me/cfs/oi and hardly ever rested.

It didn't help me. Now after 22 years, I'm mostly bedridden / couchbound and am finding that I feel better physically and emotionally

if I rest more. I'm even laying down while socializing now. It works great for my petite mals. I think so

much better this way.

I'm doing well to keep up with my daily tasks, but I'd try exercising

if I had a maid, chef and gopher tho. I have tried exercise routines several times only to realize I was in constant pem (post exertional malaise) and couldn't think. I was really short tempered too. But

I was determined to keep on exercising. It became addictive to me.

I respect doctors for their ability to learn but not what they learned. Most of what they're taught is based on which

drug or procedure can be used for a certain symotom not on finding the cause of the symptom.