issie Posted August 12, 2012 Report Share Posted August 12, 2012 http://phoenixrising.me/archives/13083Thought this was an interesting article.Issie Quote Link to comment Share on other sites More sharing options...
Alan-pots-IST Posted August 12, 2012 Report Share Posted August 12, 2012 its looks like Dr. Theoharides is saleing NeuroProtek® for mast cell? have you tryed it ? http://www.algonot.com/neuroprotek.php Quote Link to comment Share on other sites More sharing options...
issie Posted August 12, 2012 Author Report Share Posted August 12, 2012 Not his product. But, I do take quercetin, olive leaf and occasionally rutin. Just have to make sure they are not from a citrus form. I use a quercetin from Kal and my rutin is from Life Extension - from a buckwheat source.Issie Quote Link to comment Share on other sites More sharing options...
Christy_D Posted August 12, 2012 Report Share Posted August 12, 2012 Very interesting article! My son will be starting quercetin next week.Thanks,Issie Quote Link to comment Share on other sites More sharing options...
songcanary Posted August 12, 2012 Report Share Posted August 12, 2012 Absolutely fascinating. Thank you! Will give this to my allergist and get his thoughts. And also my fibro specialist. Quote Link to comment Share on other sites More sharing options...
futurehope Posted August 13, 2012 Report Share Posted August 13, 2012 I have been diagnosed with MCAS. It is the only syndrome that explains the varied symptoms I've had over many years-----so much for POTS gets better as time goes on......I cannot wait to find out which medication regiment keeps me feeling best.It is exciting to realize that we are on the cutting edge of identifying the cause and the help for many disorders. I am glad to be a patient of an MCAS specialist. Quote Link to comment Share on other sites More sharing options...
diamondcut Posted August 13, 2012 Report Share Posted August 13, 2012 All my life even going back to PE lessons at school to walking fast for a distance now a days, i always use to get like this popping, prickaling itchy feeling on the backs of my thighs and bum, i always pressumed it was just blood circulation but it sound like the exercise anaphylaxis in this article to me. Interesting. Quote Link to comment Share on other sites More sharing options...
Alan-pots-IST Posted August 13, 2012 Report Share Posted August 13, 2012 ok, i tryed the H2 = zantac and h1 zyrtec the last two days and i was driveing today with out being dizzy and i feel someone better. When i got to were i was going to get my food i did not have to fight from passing out . Something is going on by takeing The h2 and h1. Now i did not see a drop on my heart rate i have pots and somekind of IST with a resting slow heart rate. im going to give this mast cell a shot and see what i can do. i feel good riht now,. you guys are a realy live saver. thank you. Quote Link to comment Share on other sites More sharing options...
issie Posted August 13, 2012 Author Report Share Posted August 13, 2012 The more research I've done on mast cells and the release of the different chemicals that they do - the more I wonder how much of a part this plays in POTS. I'm glad that I figured out that this is at least one of my problems. I hope that others will take a good, educated look at this. There are many discussions on this site that we've done over the years.I still am of the opinion that inflammation is a big player in our issues. Whether that comes from mast cell issues or autoimmune issues or maybe both.Issie Quote Link to comment Share on other sites More sharing options...
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