Alan-pots-IST Posted August 5, 2012 Report Share Posted August 5, 2012 I no longer have it, but i wanted to find out if its something others have had are have now, and why. When i got pots back in feb 2012 i woke up dizzy and my life took a nose dive from that day. i rember for the next 4 months i had this grinding clcikng in the top part of my neck close to my skull i was sure at the tiime it was why i was dizzy and the pots stuff. my Dr told me no. snap crackle pop Quote Link to comment Share on other sites More sharing options...
abbyw Posted August 5, 2012 Report Share Posted August 5, 2012 Yes, when I turn my head, I often hear a "click". But not sure its related to POTS. I did have a bad pain in my neck for a few days before my POTS started, but somehow I think it is coincidence. If it isn't and all I need is a neck adjustment, that would be pretty sad.... Quote Link to comment Share on other sites More sharing options...
sue1234 Posted August 5, 2012 Report Share Posted August 5, 2012 Yep, I have/had the grinding and popping noises. Around the time my POTS began, I had some major neck popping randomly. It would sound like someone was popping one of those packing plastic things(well, it sounded that loud inside my head to me!). I also had that grinding noise, and I remember way back in nursing school when covering orthopedics, they said that is not a good sound. Maybe bone grinding on bone.But, still here I am. I just really avoid turning my head too much. Quote Link to comment Share on other sites More sharing options...
LMG Posted August 5, 2012 Report Share Posted August 5, 2012 I got whiplash in a car accident last July and had more migraines and then sudden onset POTS in last sept. My neck cracks and pops so much now. And it is mostly right sided. Had a chiro adjustment in Oct, same as usual, but felt much worse from then on. Now I just apply a lot of heat etc and try to ignore the noisy neck but do wonder a lot about it as causative/ or contributing to POTS. Quote Link to comment Share on other sites More sharing options...
Katybug Posted August 6, 2012 Report Share Posted August 6, 2012 Count me in...funny you said "snap, crackle, pop"...I say I'm the fourth Rice Krispie person. I always know its going to be a bad day when there's a lot of grinding in my neck. Quote Link to comment Share on other sites More sharing options...
Relax86 Posted August 6, 2012 Report Share Posted August 6, 2012 When I have a flare I often feel like my head is missing a ligament to my neck. If I go up the stairs (which I can barely do) I feel my head snap back onto my body - like it's floating. Who knows. I have no idea why I have the flaky symptoms I have. My neck has always had crepitus and I could always crack it at will. Sometimes alleviates a few symptoms, most times just improves headache. Quote Link to comment Share on other sites More sharing options...
Angela Posted September 5, 2012 Report Share Posted September 5, 2012 Mine is the same. Never used to crack and now just turning my head slightly it pops and cracks. Dr. Driscoll theory mentions this i believe...prettyill.com Quote Link to comment Share on other sites More sharing options...
angelloz Posted September 5, 2012 Report Share Posted September 5, 2012 Wow amazing you should bring this up...when I first became ill in 2010 I had the snap ,crackle, pop...whenI would try to turn over in bed my neck was popping like crazy..I also had crackling noises in my head, still have that. The neck poppingis better but I am not. What is the link here????? I wish I could figure something out.Angelloz Quote Link to comment Share on other sites More sharing options...
westernmass Posted September 5, 2012 Report Share Posted September 5, 2012 Around the time I got sick my neck started hurting. Top right, at the very base of my skull. Feels like something is wrong there. I have always cracked my ankles and back - but not my neck. However since this started I often have the feeling that I need to crack my neck- sometimes it does which always feels better immediately an often it just kind of feels stuck, almost swollen but no heat or other signs of swelling. The neck pain makes it hard to sleep. Quote Link to comment Share on other sites More sharing options...
yogini Posted September 5, 2012 Report Share Posted September 5, 2012 Yes get popping sounds all the time. There is a specific part of my neck that hurts right where my head juts forward. I was looking at a diagram of the neck the other day - and lo and behold - that's where the vagus nerve is. Can't help but think it is related. Quote Link to comment Share on other sites More sharing options...
jangle Posted September 6, 2012 Report Share Posted September 6, 2012 Yes, when I turn my head side to side I hear a clicking popping sound. Quote Link to comment Share on other sites More sharing options...
imre Posted September 6, 2012 Report Share Posted September 6, 2012 Yea I have a grinding sensation in the top right part of my neck close to the skull. I used to be able to just get a popping sound like when you crack your knuckles, this was before I injured my neck. A few months after the injury I suddenly got sick and have been since. So yea neck issues might have something to do with pots just don't know how to fix it. Quote Link to comment Share on other sites More sharing options...
sue1234 Posted September 6, 2012 Report Share Posted September 6, 2012 It would be nice if we could get something confirmed in some of us. If so many of us have neck issues, looking closely into it might show a trend of something, huh? I'm on a roll this year getting things looked at, so I might just have to ask someone. I'm NOT into having chiropractic manipulations, but I have to admit they seem to spot things better than conventional doctors. Maybe I need to make an appointment with one just for a consult and get an opinion on the cervical vertebrae and how the cranium sits. Quote Link to comment Share on other sites More sharing options...
AllAboutPeace Posted September 6, 2012 Report Share Posted September 6, 2012 I have this too and I never had it before POTS. When I roll over in bed I creak and crack from head to toe and I notice the popping/cracking in my neck when I turn my head through the day. Could it be related to a circulation issue (tissues around the bones)??? Quote Link to comment Share on other sites More sharing options...
yogini Posted September 6, 2012 Report Share Posted September 6, 2012 Many people with POTS have EDS, which could cause popping, pain, etc. I don't have EDS. I'm guessing there is more than one mechanism. Quote Link to comment Share on other sites More sharing options...
Angela Posted September 6, 2012 Report Share Posted September 6, 2012 even pots without eds this is common from what I understand. Dr. Driscoll has an interesting theory about high intracranial pressure causing this and suggests trying a soft cervical collar when you sleep, if that helps, than a prescription of diamox she recommends. Its a pretty interesting topic and what she suggests makes sense to me. Quote Link to comment Share on other sites More sharing options...
Angela Posted September 6, 2012 Report Share Posted September 6, 2012 To further explain her theory, she is saying that at night the intracranial pressure causes our kneck muscles to tighten in order to protect our brainstems, which in turn pulls down on scull just enough to cause "cranial setting" which in turn causes intracranial pressure to spike. She suggests using a collar to avoid the skull from being pulled down. Quote Link to comment Share on other sites More sharing options...
katieindixie Posted September 7, 2012 Report Share Posted September 7, 2012 I have it all the time....at the base of my skull.....I'm a hyper pots Quote Link to comment Share on other sites More sharing options...
spinner Posted September 8, 2012 Report Share Posted September 8, 2012 When i had wrist surgery back at around age 30 my orthopedist told me thats about the age where the ligaments in your neck start to make that popping noise. Its very unsettling at first, but im 50 now, so im used to all the aches and pains and stiffness of various body systems.Hopefully thats what your situation involves. Quote Link to comment Share on other sites More sharing options...
Angela Posted September 10, 2012 Report Share Posted September 10, 2012 well, i am willing to participate in dr dricscolls studies...allergy meds and antizieure and wierd allergy stuff...? better then what everyone else seems to be taking with no prevail. no offense meant please, anyone. Quote Link to comment Share on other sites More sharing options...
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