hippychic258 Posted August 1, 2012 Report Share Posted August 1, 2012 I was just thinking how many times I have been to the emergency room due to pots and thought I would ask everyone how many time you have been. I have been there close to 30 times and out of those times only 3 times had any of the doctors heard of Pots. Quote Link to comment Share on other sites More sharing options...
Kellysavedbygrace Posted August 1, 2012 Report Share Posted August 1, 2012 4 times since onset last Sept. Quote Link to comment Share on other sites More sharing options...
peregrine Posted August 1, 2012 Report Share Posted August 1, 2012 Never yet - my dysautonomia neurologist told me to go if I actually pass out, but thus far I've just gotten very close a few times. I'm lucky, I guess... there have been times when I've been tempted, but I've read too many horror stories here, so I know it probably won't do anything for my situation.Edit - other than the time right after the spaciness started, when I fell, split my lip on the sidewalk, and cracked a tooth (and killed the root of another tooth, though the root canal is doing just fine a year later) - pre-POTS, but post-spaciness. Quote Link to comment Share on other sites More sharing options...
sue1234 Posted August 2, 2012 Report Share Posted August 2, 2012 I have never gone for POTS, even though I've had my husband "on call" at times. I've had him on the phone, telling him if I don't get better in an hour or so that we may have to make the drive to the ER. I have never gone. But, I have never fainted, just felt really bad.I went one time before POTS for my stomach bloating. It gets so bad I have trouble breathing. I was treated "nicely", but no help was really offered. I have had worse bloating since, but I won't go back.I told my husband I won't go back to the ER unless I pass out. Quote Link to comment Share on other sites More sharing options...
Katybug Posted August 2, 2012 Report Share Posted August 2, 2012 Never for POTS. Quote Link to comment Share on other sites More sharing options...
Lemons2lemonade Posted August 2, 2012 Report Share Posted August 2, 2012 Over 50 easy never been helped Quote Link to comment Share on other sites More sharing options...
McBlonde Posted August 2, 2012 Report Share Posted August 2, 2012 Never for POTs. Twice when I fainted & both of those times I was at a place where an ambulance was called by staff before I was awake & alert.(They couldn't get a BP on me either time) I tried to refuse the ambulance & just go home. Quote Link to comment Share on other sites More sharing options...
all4family Posted August 2, 2012 Report Share Posted August 2, 2012 Hi,Made me feel good to know I'm not the only one. When I first got sick I was a regular ER visitor. I was labled crazy. Never helped except when given an iv once in a while helped me pull out a little. After diagnoses once when I passed out in public, and was told by a mean nurse to go home and not come back. I do faint, but don't go to the hospital for it, unless I don't come to, then I won't have a choice....I just come to, and then lay down a lot.Suzy Quote Link to comment Share on other sites More sharing options...
brethor9 Posted August 2, 2012 Report Share Posted August 2, 2012 before I was diagnosed atleast twice a week by ambulance or the nurses at my work because I was passing out so over a span of 5 years alot!! In the beginning I was having terrible chest pain episodes, stomach issues etc and was so scared by the adrenaline surges I was sure each time I was dying.....after being diagnosed and getting on with a great specialist I never go...its been well over a year since my last visit and why bother most of the time they look at you like you have 3 heads Quote Link to comment Share on other sites More sharing options...
Guest Alex Posted August 2, 2012 Report Share Posted August 2, 2012 Plenty of times - close to 20. Sadly none of the drs knew what to do with me. I've always been told I'm having panic attacks (prior as well as post POTS diagnosis). I even had drs telling me not to bother coming back as it's clear for them I'm an attention seeker, so I should stay at home and take some ativan rather than bother them. Now when I mention POTS they seem to be very puzzled - one even took her phone out and googled POTS in front of me - it was embarassing. I knew more about the condition than she did, yet she wouldn't listen to me and kept insisting that because I don't faint there is no way I have POTS.Funny thing - during one of the visits there was this male patient (almost same age as me) with very similar complaints - racing heart, short of breath, chest pain ...the good stuff - he got a different kind of treatment altogether - talking about biased people! Quote Link to comment Share on other sites More sharing options...
brethor9 Posted August 2, 2012 Report Share Posted August 2, 2012 actually not that surprising that a male patient would get better or different treatment considering the medical establishment majority are men ;( I also received the panic attack crap they finally had to stop trying that one when my legs were turning purple for no reason and my HR was hitting 145....panic doesn't cause that Quote Link to comment Share on other sites More sharing options...
Mytwogirlsrox Posted August 2, 2012 Report Share Posted August 2, 2012 3 times Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted August 2, 2012 Report Share Posted August 2, 2012 Several times, prior to diagnosis. My husband finally insisted that I be admitted so I could be diagnosed (at that point I was unable to stand, and felt horrible/weak, even lying down). I was initially placed as a mental patient. It was somewhat of a humiliating experience but was vindicating when an EP evaluated me and told the attending dr my problem was physical not mental--and I finally had a diagnosis!After diagnosis I have been I think 2X for POTS. Both times I was given fluids and actually got reasonable treatment. Quote Link to comment Share on other sites More sharing options...
Hoshistorm Posted August 2, 2012 Report Share Posted August 2, 2012 2 Times for POTS. Passed out 5 times. The ER doc. thought I was crazy when I told her that I have dysautonomia-POTS. Quote Link to comment Share on other sites More sharing options...
puppylove Posted August 2, 2012 Report Share Posted August 2, 2012 4 or 5 times I think. I usually go when I have been awake for days and or dehydrated due to stomach problems. Quote Link to comment Share on other sites More sharing options...
NMPotsie Posted August 2, 2012 Report Share Posted August 2, 2012 A few times for bp spikes; they gave me clonidine, which made me feel terrible, so I quit going. I have a standing order for IV fluids now so if I need that I just take it in with me and skip the explanation. When I feel awful, trying to explain POTS just makes me feel worse.When I was given clonidine in fairly high does at the ER, I ended up having an additional spike within the next few days. Dr. says it's because of resultant hypotension, which can create rebound hypertension and can be a vicious cycle. So, no Clonidine/ER for me if it all possible. Quote Link to comment Share on other sites More sharing options...
anaphylaxing Posted August 3, 2012 Report Share Posted August 3, 2012 Twice, the first time (for anaphylaxis) I never left, headed to ICU then was an inpatient for 3 weeks. Then readmitted for a month 4 months later. Avoiding hospitals like the plague since. Quote Link to comment Share on other sites More sharing options...
Elenapap11 Posted August 3, 2012 Report Share Posted August 3, 2012 i've been to the ER 9 times in the past 7 months.Unfortunately the only thing they did was put me in a mask with Pulmicort and Betrovent for my asthma.They could do nothing else for my other symptoms(bloating,trembling,feeling like fainting)They just advised me to see my doctor and ofcourse in the few times i mentioned dysautonomia they ignored me and send me home.So every time i go i tell them the symptoms and that i have asthma,GERD and epilepsy.They take epilepsy more seriously. Quote Link to comment Share on other sites More sharing options...
delphicdragon Posted August 4, 2012 Report Share Posted August 4, 2012 Once for undiagnosed POTS. Thought it was psuedoseizures at first even though I had no blood pressure! Twice after that for anaphylaxsis related to contrast dyes from medical procedures (ERs are useless for that - IV prednisone did nothing!). And countless other times for joint dislocations due to Ehlers-Danlos; though I only go if I can't get the joint back in (ie hips) or if I'm not sure if I broke something, otherwise I find my old orthopedist and listen to him tell me again NOT to do something- lol. Sara Quote Link to comment Share on other sites More sharing options...
BSmith85 Posted August 4, 2012 Report Share Posted August 4, 2012 Considering it took a decade for my diagnosis. . . At least 10-12 times Quote Link to comment Share on other sites More sharing options...
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