HopeSprings Posted July 22, 2012 Report Share Posted July 22, 2012 Most of the things I listed make my existing "dizziness" worse. Just wondered if these things bother others with POTS. Quote Link to comment Share on other sites More sharing options...
sue1234 Posted July 22, 2012 Report Share Posted July 22, 2012 Most of those things I can live without except I miss the driving. My dizzy issues caused me to quit driving 10 years ago, even before POTS hit. Quote Link to comment Share on other sites More sharing options...
NMPotsie Posted July 22, 2012 Report Share Posted July 22, 2012 When I close my eyes in the shower or to wash my face, I totally lose balance and bump into the walls and am very dizzy. I cannot close my eyes unless I am laying down or I will literally fall over, so closing my eyes would be first on that list. Quote Link to comment Share on other sites More sharing options...
bellgirl Posted July 22, 2012 Report Share Posted July 22, 2012 I used to have dizziness/vertigo all the time and everything you mentioned above bothered me. With meds, I am so much better, but still get nauseated and have motion sickness with all of the above, but it isn't as severe anymore. I had two major episodes with vertigo where I was bedridden and throwing up constantly for days. That hasn't happened in about a year and a half now. Zofran allowed me to get on a boat just a few weeks back on vacation, which was amazing, and I even went para sailing!! I can drive short distances now, but before being diagnosed, I had several close encounters with curbs, and messed up my car twice, so it was time to get serious about a diagnosis!! I hope you can find a medication to help you!! I still have little vertigo bouts, but nothing like before. If I bend over too much, or stand up for too long without moving, lift up my arms, move too fast, I will still get dizzy. Some days are better than others... Quote Link to comment Share on other sites More sharing options...
heathmcev Posted July 23, 2012 Report Share Posted July 23, 2012 I checked every box! I get so bad just walking around my home sometimes that I feel like I'm going to throw up. Can't tolerate any of the dizziness meds either! SeaBands don't help. Acupuncture helps for a few days or so. Ginger candies help the nausea. This is unbelievably debilitating and I wish I could figure out how to tamp down these symptoms...(null) Quote Link to comment Share on other sites More sharing options...
Birdlady Posted July 23, 2012 Report Share Posted July 23, 2012 I have always had motion sickness, but it really is not an issue for me in my daily life. Whenever I go on long car trips, boats or anything like that, I take meclizine and I'm ok.My husband has the balance/dizziness issues and it's really awful for him. Quote Link to comment Share on other sites More sharing options...
Angela Posted August 30, 2012 Report Share Posted August 30, 2012 Dizzy especially when driving, try not to anymore. Even when just walking and once sitting I feel this weird sensation like the floor falls out from underneath me...you know like when you have a dream you are falling and you jolt awake but this is when I am already awake. I don't really have nausea just unbalanced and dizzy. Quote Link to comment Share on other sites More sharing options...
louloutinks Posted August 31, 2012 Report Share Posted August 31, 2012 I also get dizzy in really busy places with lots of people weaving in and out and lots going on. Like NMPotsie I too get it in the shower so have baths instead. Just walking I get giddy. Quote Link to comment Share on other sites More sharing options...
potsgirl Posted September 3, 2012 Report Share Posted September 3, 2012 I had a hard time answering question 3 because some of the activities I now avoid, and some don't bother me as much so I still do them. Good poll, though. Quote Link to comment Share on other sites More sharing options...
micheller Posted November 14, 2012 Report Share Posted November 14, 2012 Most of the things on the first question I haven't done since I've been sick. I also can't close my eyes if I'm standing. I had my husband install a bar in the shower for me to hang on to. I don't drive unless I have to and don't like being a passenger. Motion like that makes my symptoms worse. The sun, everything moving around me just sets me off. If I do have somewhere to go, my husband drives and I will play a game on my phone the whole time. Quote Link to comment Share on other sites More sharing options...
khaarina Posted November 16, 2012 Report Share Posted November 16, 2012 When I close my eyes in the shower or to wash my face, I totally lose balance and bump into the walls and am very dizzy. I cannot close my eyes unless I am laying down or I will literally fall over, so closing my eyes would be first on that list.Before I was diagnosed I kept falling in the shower because of this. I thought I was becoming a clutz. Quote Link to comment Share on other sites More sharing options...
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