jangle Posted July 3, 2012 Report Share Posted July 3, 2012 http://www.psychosomaticmedicine.org/content/65/5/796.fullSeems the results of this study showed that biofeedback can actually increase HRV as well as baroreflex gain. These results were maintained even without practicing the technique i.e. it led to long term changes in HRV and baroreflex responsiveness. They speculate it's because of neuroplasticity and that might be the case.I guess it couldn't hurt to try their technique. I don't have access to their biofeedback software but they made it seem like you just do one natural breath every 10 seconds exhaling through pursed lips for 20 minutes a day. Quote Link to comment Share on other sites More sharing options...
roxie Posted July 3, 2012 Report Share Posted July 3, 2012 theres definitely something to it. i did a post a while back with a bunch of links to it, including dr grubb. it also has a link to an affordable hrv machine Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted July 3, 2012 Report Share Posted July 3, 2012 I tried biofeedback when I was very ill in 2003, with a therapist. I did get better, but I didn't think the biofeedback had much to do with it. I was also prescribed an SSRI, beta blocker. But that is interesting--maybe it was more helpful than I thought. Quote Link to comment Share on other sites More sharing options...
Lemons2lemonade Posted July 3, 2012 Report Share Posted July 3, 2012 I agree with this to a point. I think that biofeedback can help a little, almost as much as compression with myself. However, when I was not medicated or on the proper medications biofeedback could not control my symptoms. Now though, i still get pots like feelings and am able to use biofeedback to control them. The big things I say to myself are: this isn't going to kill you, its okay, it will pass soon etc. It helps a lot but I have to believe what i am saying otherwise it doesn't work. Also, I have recognized that the less I acknowledge pots symptoms, the easier I can navigate activities of daily living. Sometimes pushing through them creates the best results. Other times though, pushing makes it worse. Quote Link to comment Share on other sites More sharing options...
jangle Posted July 4, 2012 Author Report Share Posted July 4, 2012 Well I did 6 breath/min with the pursed lips for 20 minutes twice today. I can honestly say that I did feel better after doing the technique, but I slowly went back to feeling the same. If I could maintain the "high" all the time that'd be great. It felt like what Lemons mentioned - about the same effect as compression stockings. Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted July 4, 2012 Report Share Posted July 4, 2012 Im interested in the idea of using biofeedback to improve particular bodily functions but since no one really knows what is causing POTS I struggle to see how it can be applied at the moment. perhaps in the future when we have a better understanding of POTS it might be more useful.I thought exercise was your ticket? Quote Link to comment Share on other sites More sharing options...
jangle Posted July 4, 2012 Author Report Share Posted July 4, 2012 Im interested in the idea of using biofeedback to improve particular bodily functions but since no one really knows what is causing POTS I struggle to see how it can be applied at the moment. perhaps in the future when we have a better understanding of POTS it might be more useful.I thought exercise was your ticket?I was feeling great late March and April no doubt. But in May I got a pretty bad relapse and it's continued. I still feel better than January and I'm jogging 5-6 miles + weights + stairmaster and all that. Hopefully I'll get back to how I was in April. My doctor stopped my Losartan in early May so that might have been why. I'm going back on it. Quote Link to comment Share on other sites More sharing options...
Ashelton80 Posted July 4, 2012 Report Share Posted July 4, 2012 Why did your dr take you off of the medication? That's one reason I am hesitant with meds. It's seems the minute your getting relief they want to wean you off. If I start feeling great with say fludrocortisone and exercise then there is no way I'm gonna want to change things up if it's working! Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted July 8, 2012 Report Share Posted July 8, 2012 Im interested in the idea of using biofeedback to improve particular bodily functions but since no one really knows what is causing POTS I struggle to see how it can be applied at the moment. perhaps in the future when we have a better understanding of POTS it might be more useful.I thought exercise was your ticket?I was feeling great late March and April no doubt. But in May I got a pretty bad relapse and it's continued. I still feel better than January and I'm jogging 5-6 miles + weights + stairmaster and all that. Hopefully I'll get back to how I was in April. My doctor stopped my Losartan in early May so that might have been why. I'm going back on it.Losartan helps a friend i know from canada so yeah could be a good call mate. goodluck Quote Link to comment Share on other sites More sharing options...
yogini Posted July 8, 2012 Report Share Posted July 8, 2012 There is definitely something to biofeedback. I have tried it. I think it can help, it is a tool to improve overall health and manage/reduce symptoms, but it is not a cure. To me it is not even as effective as compression stockings, because you don't have to think about the stockings once you put them on. If you were feeling better on a medicine, makes sense to get back on it. Quote Link to comment Share on other sites More sharing options...
RichGotsPots Posted July 10, 2012 Report Share Posted July 10, 2012 Sounds like the breathing technique Ive been using. I started it because of dr Stewart's theory on hyperventilation. I know now I don't have this but the way they treat this is by doing this type of breathing for 5-10 minutes 2-3x a day.. Jangles it takes about 2 weeks for it to work, so don't expect miracles right away..Jangle- why did you start taking losartan in the 1st place? Haven't heard many trying it... Quote Link to comment Share on other sites More sharing options...
Angela Posted September 17, 2012 Report Share Posted September 17, 2012 I did something similar, a cd called COHERENCE whereas the concept is like Jangle said, 5 or 6 breathes per minute. It works to lower my bp very well, but only when I am actually doing it. When I stop, the symtoms come back and there's no way one can breathe like that during a normal day. Quote Link to comment Share on other sites More sharing options...
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