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Tristessa

Pain - Feels Like A Bruise But There Is No Bruise

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I have just started havin this pain that starts at the bottom of my shoulder blades and goes across and down. It does not quite extend to my lower back/lumbar area. This pain feels like I am bruised and is very tender to the touch. Does anyone know what this is?

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I am still trying to figure out what this pain is. I (and my mother) actually have this pain in our skin all over our body. Mine is much more severe than my mom's. Every inch of my skin feels bruised but there is no bruise there. I am a touchy feely person but don't like to be touched now because it just causes me pain, like when you push on a bruise. At my last neuro visit, he said that he is going to think about testing me (skin biopsy) for small fiber neuropathy given this pain in my skin and my excessive sweating. He said its not the most typical presentation but that it is a possible explanation.

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Katybug....that is exactly the type of pain I have been trying to explain to my specialist :( like being sunburned or bruised..... he is now also referring me to have testing done for peripheral neuropathy...only I am opposite to you with the sweating thing....I hardly sweat at all anymore....weird and brutal in this heat :( he also just recently mentioned maybe trying IVIG to treat it? another mystery for us....... hugs

Bren

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Oh my. I really feel sorry for those of you who have to deal with this type of pain daily and/or all over your body. I also deal with excessive sweating myself. I wonder if my pains are the beginning of something like what you are talking about? Did yours start out in smaller areas or all over?

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Bren - I am sorry to hear you have this, too. It really stinks. I think peope think I am exaggerating when I say my skin hurts all over my body. I don't think most healthy people would make it a day with this stuff. Hugs back to you. Let me know if you get it figured out.

Tristessa - Mine did start in smaller areas but I can't tell you where anymore because I've had it for years at this point. This was one of my first symptoms, actually.

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One rheumy wants the dx to be fibromyalgia, but, I don't buy it in my case. I have an elevated anaphylatoxin, C4a, and I have had a biopsy of some weird bumps I get on my fingers come back as probable inflammatory connective tissue disease. My immuno thinks inflammatory connective tissue disease based on both of these labs and my clinical presentation. So, I am awaiting a call from a geneticist to see, if, after reviewing my med history, she will see me and the immuno also wants me to see a rheumy at Hopkins that helped another one of his patients that had a similar (although much more severe) presentation as I have.

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I have this right now - my bed sheets, clothes, stroking my skin is all very painful but with nothing to see and I have come across something called allodynia. I did have a test for peripheral neuropathy but was told people with EDS get this often but not sure if in pots.

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Tinks: yeah I had the same symptoms....just started out in small areas at first....my toes started burning especially at night (like sunburn or fire ants) now I have patches behind my thighs.....even just a light brush of anything and I am gritting my teeth in pain....both my specialists say peripheral neuropathy.....not much in the way of treatment of course :( waiting to go to Cleveland to see if they are of any help

Katybug :) hang in there! I feel your pain :( I will keep you posted if I stumble on anything....wondering if the IVIG may help you since you already have an autoimmune component? they have used it off label for CFS and neuropathy with promising results

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I had the test but no neuropathy. Haven't had it in sometime but now have it round my buttock, thigh and hip - but I have got a real painful hip too.....grinding, aching....

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ouch! poor tinks! have you tried any pain meds? perhaps you have some inflammation in that area that could be causing nerve irritation? Also I was told that skin biopsy for neuropathy can sometimes be hit and miss if they dont catch the right area.........

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Katy & Bren,

I have peripheral neuropathy and that is always how I describe my pain. Like my body is completely bruised- but they aren't there. Well, that's not true, with my syncope I'm always covered in bruises :) but not always matching up. I used to tell my parents I had a sunburn and they'd look at me and so.... Ummm... No.... And I'd say "No! On the inside." It is not always that way though... Sometimes the burning, sometimes the bruised and achy feeling, it could be anything,

I was first diagnosed with fibromyalgia and it's still technically on my records but it never seemed right to me either.

Gotta say, one of my LEAST favorite of m illnesses.... :)

Jen

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I also have this pain. I feel that no one in my everyday life understands. Just a slight touch and I’m in pain. I went to pay pcp and he is now sending me to a rumotologist. The pain is excruciating at times and I just wish I get an answer because pain all the time is very hard. So for you all that are feeling the same way I do what do you do to try to decrease it. 

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I hate to say this but look up the symptoms for complex regional pain syndrome (CRPS/RSD). I have that along with POTS, small fiber neuropathy, gastroparesis and EDS. Altho apparently less common, CRPS is more common with these other diseases.

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I have areas of my body that feel bruised, even though there is no bruise to be seen.   It's not every inch of me, just some areas.  And I've noticed that I am very sensitive to certain things that other people wouldn't be.  Sometimes I will hit my finger on something and it will be excruciating.  But I know I didn't hit it that hard.

And my lower legs are always numb and tingling, and sometimes there is a burning sensation in my feet.  (Already been tested for MS, don't have that.)

I don't know how long the lower leg thing has been going on, because I was on Cymbalta for years for depression, and once I came off of it, suddenly I had these sensations in my legs.  I think the problem causing them was probably there for quite awhile, I just didn't know it because the Cymbalta blocked that sensation.

I've been told that this goes along with having POTS.  However, when I have--or am going to have--a pre-syncope episode, my fingers and lips will start tingling as well.  But my legs feel numb and tingly all the time.

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Hello folks, wells sounds similar to what I have been suffering from for years, & I have systemic CRPD.  I was diagnosed yrs ago by the top doc in PA who unfortunately no longer practices. The other unfortunate thing is that many doctors do not believe in CRPD, which is sad. If you have never heard of ot look it up b/c that is what it sounds like to me. I have pain everywhere, my clothes hurt, I try to where only loose 100% cotton,  the sheets hurt when they are against me. I do also have neuropathy & fibromyalgia & I believe all these illnesses started from a medication I took when I was in my 20's.  I should say I KNOW, all these illnesses are from the medication I took when I was in my 20's but I can not prove it. Hang in there folks, & don't go on every medication a doctor wants to put you on b/c you will do better without a slew of medications. 

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Shop, could you post the "suspected" med? It might help some of us.  Like "Squirrel" above, there are times when I might hit fingers or toes [ Not hard at all] as an example and the pain is a screamer. sometimes my nail beds just hurt by themselves for no reason.  I've also been dx'd with gastroparesis and fibro, lipomas [more as I age ] adverse reactions to vaccines, heat and cold intolerance [both] and recently dx'd with pernio on my toes [ pain is really tough at night with the weight of sheets or blankets]

I often wonder if it is meds from the past or vaccines I have had. Doctors listen, but I don't think they process the symptoms. I've seen a top ENT for POTS symptoms, but no help there.

prayers for all,

 

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Hello All 

I am thrilled to find this thread.  especially as it seems to be current and active.

i have the same symptoms. I have been tested negative for neuropathy but i do have occasional numbness in my feet.  This was at its worst during the years i was taking tamoxifen. but since I have been off that,  the numbness has greatly reduced.  I get stinging like sunburn on my shins, and hate being touched because of the 'bruising' pain everywhere. I have also been tested (twice ) for  myasthenia gravis. I spend sleepless nights googling for any clues to what is wrong. My DR offers me a low dosage anti depressant for pain which i have so far resisted. I don't want to be taking that for the next 20 years.  Currently relying on magnesium and melatonin to help with sleep instead.

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This happens all the time. I never thought to mention it. I have a spot on my upper arm right now, but no bruise. It hurts for my shirt to touch my skin.

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