plaxico6 Posted June 10, 2012 Report Share Posted June 10, 2012 I have had the constant NAUSEA for going on 6 years. As far as I know we have tried everything with hardly any results.NOW the neuropathy has started, probally really bad within the last 6 months. Burning all over but really severe in one area around my spine in the upper to mid back. It steadily gets worse and spreads amd has even caused shakes / tremora similar to Parkinson. We have tried iv fluids, zofran pill and iv,kytril,phenegran,reglan,steroids,marinol,domperidone,mestinon and some I cant remember.I have a feeding tube for nutrition in my small intestines and never can take anything by mouth due to the nausea.(except for meds I cant crush) For neuropathy we have tried neurotin,depakote, and lyrica. As all of you are, we are just trying for some relief. I have a really great doctor that is open and willing to lsiten to new ideas! Any ideas??? Quote Link to comment Share on other sites More sharing options...
Katybug Posted June 10, 2012 Report Share Posted June 10, 2012 Bufffy,Did you see this thread that was posted the other day? It may help you quite a bit if your doc is open to it:http://forums.dinet.org/index.php?/topic/20647-could-small-fiber-neuropathy-be-cytokine-rather-than-autoantibody-mediated/ Quote Link to comment Share on other sites More sharing options...
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