Anoj Posted June 7, 2012 Report Share Posted June 7, 2012 how do you know if you have EDS? what kind of doc diagnosis this?can you have it without any symptoms? i have never felt "hypermobile," but lately my TMJ is getting worse and worse. my jaw has started locking up, painfully. sometimes it takes hours for it to slide back into place. it occurred to me suddenly that - DOH - this could be EDS?what do you think? Quote Link to comment Share on other sites More sharing options...
kjmom Posted June 7, 2012 Report Share Posted June 7, 2012 This article talks about TMJ in EDS:http://www.cda-adc.ca/jcda/vol-67/issue-6/330.htmlI would think that you'd have a few other symptoms in order to get the EDS diagnosis in addition to TMJ though. Have you looked at all of the symptoms? My daughter had many different symptoms that I didn't even know we're related until I looked at the list (high palate, dental problems, scoliosis, velvety skins, etc.). If you have a few of these, I'd get an eval with a connective disorders specialist. Quote Link to comment Share on other sites More sharing options...
sugartwin Posted June 7, 2012 Report Share Posted June 7, 2012 TMJ can be a symptom of EDS. And it is also possible to be hypermobile without knowing it. I measure 7 out of 9 on the Beighton Scale of hypermobility, yet I never thought I was any more flexible than anyone else until I was measured. If you are in the US, you need a geneticist to diagnose EDS, preferably one who specializes in connective tissue disorders (Marfan, Sticklers, etc.) in the UK, some rheumatologists can diagnose it as well. In the US however, most rheumatologist seem to be pretty clueless. Quote Link to comment Share on other sites More sharing options...
abbyw Posted June 7, 2012 Report Share Posted June 7, 2012 Anoj - From your response to my earlier post, I know that you are taking an SSRI. TMJ is a major side effect of Lexapro. There is a site crazymeds.com, and they list it as one of the most common side effects not listed in the package. I don't know if that's the med you're taking, but it may make more sense than looking for another disorder .Abby Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted June 8, 2012 Report Share Posted June 8, 2012 TMJ can he a symptom of inflammatory arthritis as well. And is commonly reported in Fibromyalgia. Quote Link to comment Share on other sites More sharing options...
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