Trying Something Totally New Today!!! A Chiropractor

[jenglynn]

Well, not sure if I mentioned this or not- but I recently had some friends/family do a benefit/fundraiser for me- totally against my will! They started planning in Nov. and I think they waited until April Fools Day to tell me- so I thought they were joking until one of the kids showed me a flyer they found walking home. I just get embarrassed, nervous, etc, about such things..... But anyway- someone donated a first visit and a years' worth of visits. So I thought- okay I've been BEDBOUND and crawling around since Nov. no one can figure my very complicated case- involves autonomic dysfunction, POTS (which now is considered a symptom??? Still don't understand that), a very aggressive unknown autoimmune deficiency/disease, and a connective tissue disorder that the genetic doctor told me was EDS but she can't say that because this major facility does not and will link not link EDS w/ autonomic problems and believe its strictly autoimmune. I disagree, but regardless if I had.... Say... Gout. Would they not list the gout along with my autoimmune and autonomic issues? I've asked 1000x and still haven't gotten an answer. My DX list is more than a page long- who cares if it says- Connective Tissue Disease or EDS? I know, I've also had 12 concussions so I digress quite frequently....

So today is the big chiro day. I've been told by all my medical doctors that he's not allowed (I thought that was funny... Am I 15 on my first date???) to touch me or give any adjustments, especially in my neck area. Until I figure out my EDS it is best anyway. The main reason I'm going is this chiro specializes in autonomics.... I didn't even know there was such a thing. He's supposed to be in th top 3 in the country (who knows, I always hear that). He must be good though because his new patient list was booked out until mid- Nov!!!!!! Not to mention his initial visit cost is $450.00!!! That seemed incredibly high to me but I've never been to a chiro so what do I know??? I'm glad someone (an anonymous donor) thought so much of my health that they would suggest some alternatives. WHY not??

I will update when I get back later. See if he's worth the money!!!! I know it is true because I called as someone else to make an appt and she said Nov. 9th at the time and quoted that price!! Wish me luck! I told him ahead of time about the 'No Touching" rule LOL and he said- still, please, please come!!! I do know he has had my records a long time so has probably put a lot of time studying me.

J

[hholmes13]

Good luck! I sure hope you can find something to give you some relief! Sending positive thoughts your way!!

[sue1234]

Good luck, and definitely want to hear all about it!

[jenglynn]

Well... This was about the strangest experiences I've EVER had. So we go in his office, and he starts telling me that all my problems are caused because my neck flexion goes all the way to the right vs. left. Okaaaaaaaay! Up until VERY recently I've never had neck problems, however, ironically and every day my neck is excruciating. So I'd said no manipulation but I would listen. So he says that when the brain stem is blocked by- something- it can cause problems. And basically it depends on how bad it is but the brain stem stores the nervous system... Etc.... I don't want to say too much because I will misquote him.

So he looks at me ad we do the tests- look straight- look right. Vice versa. Eyes closed. Those are always disastrous for me. So he says he can tell by looking at me that I have serious alignments issues. He asked my hubby to come look at my face and what does he see?

He says," I see my beautiful wife who has suffered way too long and I just want you to fix her!!!" suck up- we've been fighting all week LOL. He says okay- (chiro) Right eye? What do you see?". The look on my poor husband's face was like "great, now I'm screwed!!!!!" well, when I got there they took a picture for my file and I asked him if I could look at it. Chiro says "Sure!" So I found the oldest picture I could find of myself on my phone when Heakthy-.3 years ago. I absolutely am SHOCKED! How have I missed this? I then have Hubby take another picture. The 2 from today my right eye is so droopy I have NO clue how I couldn't see it. Well, lately my sleep has been awful and that increases the eye droopiness. I didn't sleep for 1 min. Last night or 2 nights before. My insomnia is so bad I am sleeping maybe 4 hours 3 nights a week and up all night the others. So then he says, what else do you see? NOW Rob!s getting into it thinking he isn't going to get in trouble. And he said her face is tilted... Chiro tells us both to look at my jaw- it is so out of alignment I don't know I was even managing to say a word. HOW could we miss this. So he does the x- rays and he says (of course, story of my life) he has never seen anything like I but the curve in my neck was in the complete opposite way than it should be. I can only get my jaw on the right open 30% of the way.. So he says how VERY few autonomic doctors recognize this tx but I gotta tell you- today alone he had people from Ausa, Peru, 9 states, And New Zealand. SOME doctors will suggest it when all else fails, but for the most part chiros are witch doctors (I will admit- I'm a skeptic!!!) I have these 3 major illnesses and your going to fix me my re aligning my neck?

He tells me he has read my chart and can't imagine my frustration, understands my skepticism Abd he KNOWS how sick I am right now. He tells me not to underestimate the importance of the neck, spine, brain steam, nervous system and how they work together. I also have EDS and he believes in that connection and I wish I could recall his explanation. I asked about my Autoimune disease Abd how that factors in. He says it attacks your body- I just don't believe it's attacking this part, if it was the IVIG would have helped. Other measures would have. It's a theory - like we alll have. But I've watched so many people get their lives back I'd love you try it.. These "manipulations" are so minor you won't feel them. So, he says, if I name 10 symptoms not in ANY of your charts but I can tell by looking at you that you have or get- will you try it? I had to laugh. He was so nice, trying to help me, FOR FREE!! And he is so good natured about me questioning him- not like any of my neuros- I said "Okay, why not. Whatcha got, Doctor? " And he starts talking about symptoms I've never told a soul. Like I bet your right leg starts trembling so bad when you try to go pee that it's numb and blue after 10 min. Okay- score 1 for him but anyone could figure that out. Then he says that my jaw has always been maligned like that and it would come out of socket even as a kid... Ok- nother one- but that's easy. He said I bet you've had bladder infections since under age 2 and every cath makes it worse. Hmmmm.... True but is that in my records???? No, it's in my OLD ones from Cali. He guessed which joints I'd dislocated and how many times. Never been brought up. Guessed I had at least 1 of my 4 had EDS like me. Tried to think but no- not in any records because she hasn't been DXed. Then he asked if she was born with any heart defects- ummm, Wow. HevdoescNZoT have those. The final one- he guessed (because he asked Rob-my hubby if we chart my fluids which we do) and said he could tell me by looking at me how many ounces I'd had the last 3 days, what my sitting HR Abd BP would be right then. He was right with the ounces for each day- with 1-2 each day. BP was exactly on the money and HR off by 2 beats.

I'm thinking.... WOW. This is his vacation morning. He came to help me because he saw my story. I'm not paying him a dime. I asked what he wanted in return. His reply: "I want to see Jennifer Glynn happy and healthy again. He said I read your chart, Jen. I know what you've been through. I CAN help. Just let me try. " I'm thinking-- commercials, brochures, testimonials- he said again "JEN! Nothing. I can't treat the patients I have now- hence Nov. Bookings! Not a lot of people can do this procedure. All I want is to see you walk and look healthy and happy- you are a nice woman with a nice husband and a beautiful blended family of 8 kids- your best friend is your husband's ex-wife and you put the kids first." Forgot about our TV interview!!!!!! We can't escape it round here!"

Long story short- left without face or neck pain. No numbness in my feet. No double vision. No ringing in my ears and no ANNOYING electric buzzing in my head. For the first time in 14 months I had NO headache and my face was symmetrical!!!!!. I have a LONG way to go. In fact- NOThING can change for 45 days. At THAT point, if I'm still aligned, I'm READY to start the hard road toward healing. If I'm not aligned- then he admits he is wrong and he helps me find plan B medical doctor . But it was sure worth a try. He had compassion. He listened. He cared. I just heard him call my husband to make sure I'm okay. Oh, and I had to stay an hour after the alignment and just lie in a recliner- within 2 min. I was sound asleep!.

Bottom line- so glad I tried it and what a kind and generous man to do this for us! If anyone wants more info- just PM me.

Jen

[Katybug]

Hi Jenn. I was one of the people that told you I love my chiro (he's just too far away now.) I'm so glad you tried and it helped. Even if it doesn't fix everything, you have been so sick that getting some relief has got to be a wonderful feeling! I am so happy for you that this went well...it has been a long time coming for you.

[jrlehnardt]

jen, i just wanted to add my two cents when it comes to chiropractors, take it as you will. i have tried so many different treatments, eastern, western medicine and natural, homeopathic. i do find that chiro can help, if done properly. i have hyper pots, eds, factor v leiden, osteoarthritis, degenerative disk disease, fibrocystic breast disease, anemia, and the list goes on. anyway had major daily headaches for 6 years. i am now down to only headaches when it is from a side effect with a new medicine, lack of sleep, etc. but very far and in between. the biggest change was an amazing chiro, that found that my occiput was so far off. i started with seeing him 3x a week and even than that was not enough cause my neck would sublux a couple times a day. never thought i could ever get to a point where i would only see him weekly. and in fact i can go 3 weeks without seeing him now. it isnt all from chiro though, but it has been a combination of him and doing prolotherapy, which than keeps me in place longer. the only advice i have though is that i found that the regular adjustments would vause extra "trauma" even though it felt amazing and it was back in place, i would be in pain for days. after taking the suggestion in dr. tinkle eds book of usng the activator instead of manual adjustment. my chiro was willing to try. and even though i dont feel amazing when he gets it back in like i can feel with the manual adjustment. i notice within a couple hours my headavhe is mot getting worse and eventually it is gone i feel better and it stays in longer and there is no soft tissue trama. it was trial and error with us , but i can now go easily 2-3 weeks without seeing him and headaches are so far and inbetween. and the biggest thing is he saw on my first appointment what many doctors had missed for years that ,(and i dont remember all the terms) but at the base where the spine goes into the skull was twisted and and tilted to one side. i had seen spine specialists and physcal therapists, other chiros, neurologists and even did injections from the neurologist and it was the chiro doing adjustments with the activator and in combination with prolotherapy. best of luck. so glad you are headache free for once!

[bellgirl]

I've always been sceptical, too, but with my kyphosis, I'm not sure I can be fixed. Bones on bones Glad it seemed to help you.

[McBlonde]

Jenglynn ....wait.... what's that about the heart defect?

Edited June 6, 2012 by corina

[AllAboutPeace]

That sounds like an amazing experience, Jen! Please keep us posted on how you are doing...

[HopeSprings]

Long story short- left without face or neck pain. No numbness in my feet. No double vision. No ringing in my ears and no ANNOYING electric buzzing in my head. For the first time in 14 months I had NO headache and my face was symmetrical!!!!!.

I think I missed how he accomplished this? What did he do? Glad to hear something helped! Hope he can do more for you.

[corina]

Really hope this will help you Jen, I'm glad it startted off well!

[jenglynn]

I am sorry about that post. I confused myself with that. Not quite sure what happened. I re-read it and thought that maybe I must have erased a few lines my mistake? Although, I hadn't slept in over 30 hours at the time I wrote it.... that was more likely the problem...

The heart defect. One of the things he guessed is that one of my kids were born with EDS and I said yes..... and he knew I had EDS and and guessed at least one of us was born with a heart defect. I said Yes, we both had holes in our upper chamber of our hearts. He said- very common for EDS babies- tissue gets torn and they can be born with a hole. Luckily, both my daughter and I had our ASDs (which if you are going to have a hole is the best kind- upper chamber) heal on their own without surgery. I didn't even know about mine until it had already healed and they saw on an echocardiogram some kind of scar maybe that indicated it??? My daughter's was more severe/symptomatic but she had minor surgery for something else and reacted so badly to anesthesia we were trying to avoid it at all costs. She outgrew it (as usually happens with ASDs- many never even get diagnosed actuallY) by age 4. We both have harmless murmurs but healthy hearts. He also guessed that I had a bladder issue- and I DO! Major problems with retention especially but also incontinence occassionally. From the time he did the correction- I used the restroom successfully 3 times. I am sorry about that post. I confused myself with that. Not quite sure what happened.

Anyway, with his treatment. It is called "Upper Cervical Care" that they use. First they look at you to see if they visually see any alignment issues. Take x-rays- then did some kind of "correction" they call it. I felt really nothing, other than his hands and he had some metal adhesions on my ears and he was finished in less than 5 minutes. So I lie on this table for 5 minutes and then we go back, take the xrays again to see if the alignment is fixed. If it is- mine was- then you go in this quiet room with recliners, blankets, just very quiet ambience, and wait an hour. Totally painless. But like I said the things that went away immediately: double vision, headache, misalignment of right side of face, ringing in my ears ( I have an almost constant ringing in my ears and a hard to explain electrical sounding buzz in my head- I would say I have them 80% of the time). Both were gone and had been present. I know there was more but now can't think of the rest. He also asked about my sleep, which is terrible and getting worse. I usually sleep 3-4 hours about 4 days of the week and do not sleep at all the other 3 nights. He said he could tell (before I even answered) that he could tell I hardly slept because of where my cervical "bone" I guess (I am so ignorant about this stuff) was pressing on my brain stem. Then he said when I fell asleep last night, the day of the correction- it may take me some time to fall asleep (and I was awake most of the night.... ) but he was pretty sure that I would sleep and sleep until someone had to wake me up...It was pretty amazing, because I slept until late afternoon when my husband finally woke me so I could get some fluids and take essential meds. He did an x-ray of his neck so he could compare it to mine. Our necks were facing different directions. So if his was like this: ( then mine was like this: ) Apparently, it should not look like mine. He said it was putting all this pressure on my brain stem- and all of specifically on my nervous system. So it could be, and in his opinion WAS, causing all of my autonomic symptoms at this point because of the level where they are. Every week I am getting more severe. Two weeks ago, I kept waking up with one side of my body totally numb and my jaw locked. It took me 3 days to work my jaw back to the point where I could open it enough to talk. When my husband called my neurologist he just said "That's neuropathy for you. Just never know what to expect." Really? Last week, every syncope spell was accompanied by either extreme tremors and like a convulsion or a seizure because I wasn't still and had incontinence and do with every syncope spell now. I did make an appointment with the doctor who just moved to Milwaukee- I am sorry I can't remember his name but he and his wife both specialize in autonomics. Dr. Chemeski or am I even close? He agreed to see me but not until September. Everything seems to be advancing. That is why I tried this chiropractor because he specializes is autonomic treatments.

I am not sure if I should post websites but it is easy to find. Just Google NUCCA and you will find their direct website and about a zillion pages about it. I will tell you a LOT is negative. Most medical doctors who commented that I saw were extremely negative. I did talk to all of my neurologists that I have seen since my ordeal started and they all told me DO NOT let him TOUCH me. One actually threatened to not see me again in his practice if I was " lowering myself to chiropractic care." Little did he know I never planned to go back to him again anyway. I am not recommending this at all because I know very little about it. Some people call it a scam. Some call it dangerous. Some swear it saved their lives. All I can tell you is what happened to me and I think to say it was dangerous is definitely overkill. I hardly felt it at all, let alone pain.

It is based on the NUCCA practice- and it is the group of doctors that do this kind of adjustment. Stands for National Upper Cervical Chiropractic Association. It also discusses a lot about how nerves are related to body systems and each symptom can cause different symptoms. This kind of sums up their belief and it comes right from their website. I hope it is okay to post and if not, I am sorry and feel free moderators to remove: "The focus of the NUCCA work is the relationship between the upper cervical spine (neck) and its influence on the central nervous system and brain stem function. It is this relationship that affects every aspect of human function from the feeling sensations in your fingers to regulating hormones, controlling movement, and providing the ability to hear, see, think, and breathe." In my personal case, as I viewed with my own eyes, my cervical spine was applying extreme pressure to my brain stem and on the opposite side that it should be on.

I am still confused and unsure what to do. Does this mean that I don't have autoimmune autonomic dysfunction neuropathy and an aggressive autoimmune disease anymore? According to Dr. McNally (the chiro) all he is doing is relieving the pressure on the brain stem that should not be there. I am still going to have to rehab the illnesses I have and won't leave cured after these "corrections". And he was honest and said mine was so bad he wasn't sure he would be able to get the corrections to hold. The first one didn't in fact. I woke up yesterday, and when my husband came in to get me up, I saw tears in his eyes. He told me that my jaw was drooping and my whole right side was as well. It isn't uncommon for the first few not to take. So if it isn't better this morning, I go back today and try again. I am not sure how many times they try and if it doesn't take- if they just write you off. I asked and he said that has never happened before and it won't with me. But this is ME. LOL. So time will tell. Anyway, I wanted to clarify what it is they do. If anyone wants to look into more, like I said, GOOGLE NUCCA and you will find so much info! Be warned- most of it is probably negative and who knows? I don't know yet if it should be or not. I DO know that this doctor spent 6 hours with me. Called me that night when I got home to see how I was feeling. And called me 3x yesterday to check on me after he heard my alignment had slipped. He also gave up his last vacation day to fit me in because just watching me on the interview he was so worried by what he saw- and didn't charge me the almost $500 he charges others just because he knows what I have been through. And as far as compassion- I've yet to meet a doctor that comes close. He was professional and knowledable. He knew everything I knew about autonomics, EDS, POTS, you name it and I am sure a LOT more. I will leave it at that and update after adjustment #2. All I know is I want SOMETHING to work.

Jen

[Dizzysillyak]

Great to hear you responded to this treatment. Has he said anything about home traction or a way to hold your neck in position ?

I'm sure finding some relief and then losing it has to be hard too. hugs ...

He sounds like my doc when it comes to compassion and intellect. It's nice when you find that combo in a medical practitioner.

Personally, I wouldn't listen to the practitioners who are negative about this. It seems that many people in the medical field have inflated fragile egos and can't hear what anyone tells them that doesn't match what they believe. So making an intelligent interpretation of the results isn't possible for them. What a waste of intelligence. It's too bad med school doesn't teach them this ...

Tc ... D

[Birdlady]

That's awesome news. I hope it continues to help you! My husband came across upper cervical adjustments a few months ago and I have been wanting to try it out. For those who do not know, an upper cervical doc is totally different than a regular chiropractor who crunches your bones. Someone correct me if I'm wrong though!

[jenglynn]

Yes... I have to keep my head in a brace type thing for 5 days- and because mine has progressed pretty far- he said after I'm "aligned" I have to exactly what I've been doing- absolutely nothing- for 60-? days depending on my response. I had failure in almost every body system so maybe he just wants to be extra cautious. I thought it was very interesting how be didn't discount the medical profession. First thing he told me is my body is healing from 38 years of trauma. He can remove the pressure from my brain stem, but my treatments will need treatment. He said it could be 1-3 years until I am well - but I will feel "normal" much sooner. I don't think I've ever known a pain free day. Everything he said and showed me had an answer and was logical. Every other doctor always has the "Shut up! Do what I say because I'm a doctor!" Really, have you EVER experienced MY symptoms in MY body? All I i have Ever really wanted was simeone to listen to ME, not make assumptions from a patient they heard about 5 years ago.

I think the medical community would know a lot more about these conditions if they listened to US more Abd each other less. They have to classify us and research. When I started going numb, having seizures, my jaw locking up, not being to stand even w/o the hypotension - and my neurologist says these things- a,ong with my floaters, double vision, and horrible mismatched pupils that all I need was an extra manesium pill a day and my eyes will be fun. He said next I'm in Walmart check in their vision center just be sure. Medical doctors? chiropractors????? Can you DO both? Ow I'm just skeptical of everyone.

Jen

[puppylove]

When you were getting the corrections did it make a crack noise? I went to a chiropractor who did stuff on my neck I'm not sure if it's the same or not?

[jenglynn]

No, no cracking. I have always believed they were "less than" an MD. But, this man was pretty amazing. As soon as he's as me he said "oh, I was afraid of that.." we'll, what does mean.., He started talking about pressure on the brain stem, etc. I was confused and be showed me a mirror ( he had it touched me yet) and started my husband what he could see and what I could see- then we saw my whole right side was droopy. SO obvious! When we kef it was perfectly symmetrical.

It's worth a try, right? If anyone know why it isn't please share!!!

[Dizzysillyak]

Hi jen,

I'm not sure anyone can tell you what you can expect with this doctor. Have you considered asking for a second

opinion from a chiro ? I certainly would if I were you. If nothing else, it may calm your fears.

I have a few auto immune diseases, meaning my body is attacking itself, so I know why I didn't respond to

chiropractic care.

I couldn't walk or stand without falling into things for 16 1/2 years and nothing helped. Until I eliminated gluten

, etc. That was probably gluten ataxia but I don't think we'll ever know for sure. No one ran the proper tests. I still have my auto immune diseases but so far, they're in check.

Did you watch dr terry wahls ted video ? She explains all this.

Tc . D

[jenglynn]

Well, here is my opinion on this guy. First if all, I DO know this for a fact- is one if about 5 or 10 people in the world who can do this. He sets aside 2 weeks a month for other chiros around the country to come work with him to learn his technique. I know this because this is how I got in to see him. I know a girl who has a brother who is a chiro in Colorado. He was here in May working w/ Dr. Mcneely. They came over to see me and when he saw me (my friends brother- from CO who is a chiro) his face went white. He told me I HAD to see him ASAP because my spine was putting pressure on my brain stem. Just from looking at me be could tell? To be honest, I wrote both of them off as quacks and didn't think about it again, well, my sister (who is the good friend of Jessica- chiro in CO) would not let up. He was on vacation. Like I said, somehow he saw our interview and Ge said he knew as soon as he saw me on TV, So he got me in- he was on vacation. His LAST day. For this whole process, it's expensive. First visit- $500! When I told the receptionist who had come in as well to help- before I brought up money, she said this was his gift to me. I could see him for the rest of my life- he will NEVER charge me. So not sure what he would be scamming me or? He's actually losing money. I asked- "what's the catch?" Ge just kept saying "Jen, NO catch. I have been thinking about you and worrying since I saw you on TV. I feel God us calling me to help you. That us IT.". I asked if he wanted commercials, statements, be in brochures, etc... He said "Oh my goodness... NO! Can't have the business I have now!' he showed me his appt. schedule, He does have people from all over the world. He had names hidden but I saw a few towns bd countries. I saw Peru, Cosa Rica, and Germany before he closed. I had put on my Facebook I was seeing him and I had several people over the week comment, A friend I went to high school with in CA and was shocked because he lies out here at leat 2x a year to see him and has for a long time, Small world!

I do have an appt. with another chiro on Thurs for X-rays. I want to know if he notes the same thing. But I'm not letting him touch me. And no... He is not a cracking type of chiropractor. He and his son have EDS. He would never do that. When I asked him about that he just looked at me and said- "YOU have EDS! DO not be cracking your back, girl!!!!" but he said for others: "if you must crack your back (in my opinion, don't, but if someone must) you have someone lighter than you walk on it like when we were little kids. " Abd he was very quick to note that is HIS opinion people go see them all the time- fine. But he is NOTHING like that and be did a residency in a hospital and was THE most knowledgable doctor I've seen about this yet!.

Not sure if I shared this but after we did all the x-rays we sat there looking t them. He had his nurse do an X-ray if his neck and out it next to mine, The curves of our necks are 180 degrees of each other. Then he got out textbooks. he showed my husband and I every single spot that my cervical spine was applying pressure. He said see this? ANS. we wherein that room just going over my X-rays for 2 hours. I actually hope he isn't right because his prognosis is not good if he can't fix me. Plus I have all this fluid in there applying pressure. But I know deep down he is. He knows I'm a skeptic. He was prepared, AND I told him right away.

He said we need to get started. There is not a lot of time. He asked me 'I would say in the last 2-4 weeks you started getting your first seizures, am I right?" NO ONE knew that. Only my husband, we looked at each other in awe. I didn't even go to a doctor be use I'm in the middle of switching facilities. I am so tired of being talked down to when I am progressing negatively so much, they see it but blame me. Because they can't fix it. And the last conversation I had with my neuro about an incident I had was so hurtful, that was the last straw. I had fallen, hit my head during syncope (now I'm having twitching or maybe seizures because I've had incontinence) and a gash. He said to have Rob look at my pupils and they determined yeah, another concussion. So I get back on the phone with him and my speech is slurring, I asked if I needed to come in. His response- keep in mind first part his tone was stern, almost mean- last part jovial: " JENNIFER!!! ( he never calls me Jennifer- I was being reprimanded) how many concussions have you HAD, helmet or not??? I CANNOT give you another CT scan, you know that. (I had 10+ CT scans last year-plus another 5 or 6 w/ contrast and oodles of MRIs but I don't know if they are dangerously) so what, you now have Concussion #13 that we know of. Will your life change? NO. You are just going to be a little less intelligent than you were before. Move on." he was trying to make me feel better, it did not work.

LONG LONG story short- that's the plan if I continue and t thispkunt, i see no reason not to. He corrects me until it can hopefully realign me and remove the pressure. Then he said- the hard part is recovering. You will still have an autoimmune disease, EDS, autonomic dysfunction. He handed me my DX list/scroll and said I'm not curing these. I am hopefully just making you able to do so. He said I needed to report my seizures as ell, ASAP because it could mean things are worse thn he thought or nothing, he DOES NOT discount traditional medicine but gets frustrated that it doesn't work both ways- although MANY MDs will refer patients to him. Before I let him do anything, he said he would guess 10 things that I have happen to me that no one knows.. I told him- why not? He came up with more than 10 ur it was pretty amazing, I do t get brain freezes (actually I will brag a little and say my 11 year old figured that out researching the ANS because since Mommy has gotten sick, Josh's goal is to cure me, poor kid, o unless he's on the ice plating hockey during hickey season, doing homework, he is researching) but how when I bump my hand my other hand will immediately let go of anything it may have been holding, that I will go 3-4 nights with NO sleep and not even be tired the next day (pressure on that part if my hypothalamus ) it was amazing.

I'm not saying he would work for everyone, maybe not even me, but WHAT if he CAN? A life, ANY kind if life, back??? Thanks for listening to my novels everyone, as usual. Believe it or not, my rambling Abd babbling has to do with the number of oncussions I've had Abd Pist concussive disorder.

Jen

[yogini]

If it is helping, and you feel comfortable, then keep going. Doesn't matter what anyone else thinks. I hope it really helps you!

[misstraci]

Jen..... Do you have an update on your health and the Chiropractor? I am curious because I recently read a very informative and encouraging book about how it can help and I've made an appointment for later this week. I was curious to see how you've been with it.

Thanks

Traci

[RunningWild]

Traci- What book?

I've been seeing a chiro for a few weeks, and while I don't think it's helping the POTS as much as I hoped, he is certainly optimistic that it can.

[arizona girl]

Traci, I don't know if you noticed but Jenn hasn't been online since July. She was very ill and I hope things didn't get worse. I always worry when a member like her suddenly drops off.

Why don't you pm your question to her and see if there is a response.

BTW I do go to a chiropractor. Mine also offers massage (no tip required) and I can use my fsa account to pay for it. I recently went through (pt) physical water therapy and got worse. Recently found out I'm hypermobile and was probably pulling my hip out with the water resistance. Anyway my chiro didn't just adjusment me, he did some pin and stretch techniques on my hip flexor muscles and calmed the whole thing down after a few visits.

I'm still struggling to figure out how to do exercises without hurting myself. My rheumy doesn't want me in the water and wants me to do isometrics and 10 minutes of cardio on a seated bike or such, and to work up one minute a week.

Also becareful what chiro you go to, they are not all good.

[misstraci]

RunningWild, It was a book my friend got me from the thrift store, I believe it was called "One Minute Wellness", It had other healing chapters as well but I just so happen to flip directly to the one talking about chiroprator and the testimonials from patients. I hope it's a reputable book I hope it begins to help you, It's a plus that the DR is being optimistic about it, I hope it turns out good results!!! Keep us informed

Arizonagirl, ok, I will PM her. I hope everything is ok, maybe she got healed from her visits and that is why she hasn't been on lately!! I also worry about people I don't see anymore. Whatever happened to the lady named Lieze or something liek that, she frequented here quite often and then disappeared. also Kayleigh's mom or Kaybers mom, I hope her daughter is ok too, I don't see her post lately either.

Sorry about your hip and the water making it worse. I hope the isometrics work better and don't irritate you. Mmmmm massage! And thanks, I will, I have heard that too, my mom, for some reason, has always felt less of them like they aren't real dr's or can hurt us which she may be right but I feel at a point where I will try almost anything. I will stay away from those who are too abrasive. My only encounter with a chiro before was not good, he was very rough and I didn't like it, he caught me off guard and I ended up accidentally shouting out profanity in his office, ooops!

[misstraci]

http://www.amazon.com/One-Minute-Wellness-Natural-Happiness/dp/0785288341/ref=sr_1_1?ie=UTF8&qid=1357655437&sr=8-1&keywords=one+minute+wellness