blueskies Posted May 28, 2012 Report Share Posted May 28, 2012 Hi All,I went for nearly 6 years without sweating at all. 4 years after this symptom developed I was diagnosed with POTS. Anyway, after 6 years of virtually no sweating I started to sweat again. Just a little, and it would occur when I was exerting myself (like when cleaning kitchen). The ability to sweat continued to increase over the next few years but now I've gone way past normal -- to the other side -- to excessive sweating for more than a year and a half. The plus side is that I don't have to be concerned about overheating anymore. The negative side is that I'm almost always sweaty -- changing my clothes multiple times a day, having a number of showers etc. It's cold now in Australia and I had thought that with the end of summer I'd see the end of excessive sweating but seems that this is just not going to happen. I'm not feeling too good anyway so I'm not leaving the house much at the moment, but when I do it is impossible to dress for the cold properly as in 5 minutes or a half hour I'll be wanting to strip most of my clothes off because of feeling hot and sweating. And when I sweat I sweat everywhere, it even pours off my legs a lot of the time. And sweating on my face can feel like it's raining at times. I kid you not.I'm just wondering who else gets excessive sweating? And if anyone else has experienced going from not sweating to sweating too much over the years? Talk about a complete turn around.Many thanks,blue Quote Link to comment Share on other sites More sharing options...
comfortzone Posted May 28, 2012 Report Share Posted May 28, 2012 I am 54 and was on the very light side of sweating - I felt as if I almost never did sweat - but that wouldn't be normal - so I'd say I'd sweat so infrequently that I thought I never did. Then in 2008 my sx's began - I am female. So the heavy sweating I sorta attributed to menopausal type things - now I am post menopause and the sweating really troubles me... when at rest or with exertion - it will drip off my nose and eye brows - yuck... I have unstable or labile blood pressure and some orthostatic intolerance with EDS - I take propranolol and clonidine and dyazide along with my thyroid med and nexium - and pain meds. I am never told by my doctor what the sweating is about - the sweat test part of the dysautonomia testing twice was normal. I have no idea what this is about - unless it's just normal for women my age to sweat alot. Quote Link to comment Share on other sites More sharing options...
puppylove Posted May 28, 2012 Report Share Posted May 28, 2012 In general, I don't think I sweat excessively but for some reason whenever I have a TTT done I do. Maybe it's a symptom of presyncope? Quote Link to comment Share on other sites More sharing options...
blueskies Posted May 29, 2012 Author Report Share Posted May 29, 2012 Thanks nowhat and puppylove,I'm also post menopausal - officially postmenopausal at age 51. I do think that hot flushes have something to do with it but like pupply love I'm also thinking it also has to do with presyncope. I get the tachy, lightheadedness/'bursting' head, and feelings like i'm going to faint. I can actually feel like this and continue to stay on my feet for some time but I do feel dreadful when it's happening. Other times I sit down and put my feet up or lie down. Doing this will often bring my sweating, tachy under control. Then again, it happens in bed. I guess it's probably a combination of having pots and being post menopausal. Apparently, according to Dr Grubb (one of his patients told me), menopause will often see an increase in POTS symptoms. Quote Link to comment Share on other sites More sharing options...
Diannna Posted February 17, 2023 Report Share Posted February 17, 2023 The sweating is very annoying for me since it happens with rhyme or reason, bringing with it dizziness, nausea, blasting headaches, feeling like your bodily functions is about to explode, can't move because you are afraid of passing out. Having this happen 2-3 times in the space of an hour and half all day and night very frustrating, because you can't sleep. Then you go from hot to chills. Combine this with fibromyalgia, neck pain and lower back issues, knee issues all at the same time. Can someone please tell me how to get some relief? Yes I am coping but would love some feedback! Quote Link to comment Share on other sites More sharing options...
Pistol Posted February 17, 2023 Report Share Posted February 17, 2023 @Diannna so sorry you are experiencing this! Have you ever measured your HR and BP during these sweating episodes? For me this happens when my BP drops. When my BP goes up I have chills and tremors. Nausea usually occurs with the drops, and headaches when the BP goes up. Yes, I too go from sweating to cold when in bed, and it is NOT from menopause ( long past that ). Quote Link to comment Share on other sites More sharing options...
Diannna Posted February 17, 2023 Report Share Posted February 17, 2023 Yes I do, I have tachycardia at those times like I am having a heart attack but not. Then my heart rate bottoms out after I come out of it. Quote Link to comment Share on other sites More sharing options...
Pistol Posted February 17, 2023 Report Share Posted February 17, 2023 @Diannna before i was diagnosed with HPOTS I was diagnosed with neuro-cardiogenic syncope ( NCS ) from my first TTT. I became sweaty and lihghtheaded and felt faint, then actually fainted. The monitor showed a sudden and rapid increase in HR followed by a sudden drop, from 150 to 50. Thats when I passed out. Sweating and nausea are usually a part of my pre-faint symptoms. You may want to see a cardiologist and get a TTT ( Tilt table test ). Quote Link to comment Share on other sites More sharing options...
MikeO Posted February 17, 2023 Report Share Posted February 17, 2023 I do get very sweaty (more like drenched) when i become orthostatic or go into syncope mode. Pretty sure this is a normal response that the body does (just not sure why). I can note that my HR is always elevated when this happens. Quote Link to comment Share on other sites More sharing options...
Diannna Posted February 17, 2023 Report Share Posted February 17, 2023 Yes I do, I have tachycardia at those times like I am having a heart attack but not. Then my heart rate bottoms out after I come out of it. Quote Link to comment Share on other sites More sharing options...
Diannna Posted February 17, 2023 Report Share Posted February 17, 2023 Cardiologist says nothing is wrong with my heart it is an underlying medical problem. So they keep shifting me from specialist to specialist in a merry go round. I am at my wits end at this point. Quote Link to comment Share on other sites More sharing options...
MTRJ75 Posted February 17, 2023 Report Share Posted February 17, 2023 This is one of my worst symptoms still (not necessarily the sweating itself, but all else that comes with it) and can be triggered by almost anything. Sometimes, I would expect this type of reaction when I overdo it, but not from simple things like phone calls or just leaning forward to write something. Quote Link to comment Share on other sites More sharing options...
MikeO Posted February 17, 2023 Report Share Posted February 17, 2023 2 hours ago, Diannna said: Cardiologist says nothing is wrong with my heart it is an underlying medical problem. So they keep shifting me from specialist to specialist in a merry go round. I am at my wits end at this point. I get the same response. I do agree it is not my heart having the issue but some other issue. I do suspect it is from my body just trying to maintain it's homeostasis but the reason is just out of scope for most health providers. Quote Link to comment Share on other sites More sharing options...
MTRJ75 Posted February 18, 2023 Report Share Posted February 18, 2023 Most standard cardiologists will just tell you that the heart is healthy and it pumps blood the way it should, so their job is done. But it's the mechanisms surrounding the heart that are broken. It's like putting a new engine in an old car where everything else is broken. The engine works fine, but the car still won't function properly. And since specialists refuse to communicate on problems that cross systems, you end up in an endless cycle. Quote Link to comment Share on other sites More sharing options...
MikeO Posted February 18, 2023 Report Share Posted February 18, 2023 2 minutes ago, MTRJ75 said: Most standard cardiologists will just tell you that the heart is healthy and it pumps blood the way it should, so their job is done. Well i disagree. I did have a number of times my heart has not pumped well and my Cardio was all over that and did his job. Quote Link to comment Share on other sites More sharing options...
MTRJ75 Posted February 19, 2023 Report Share Posted February 19, 2023 Yes, when that heart isn't doing it's job, that's where they'll step in. But for most, the problem isn't the heart function itself. Quote Link to comment Share on other sites More sharing options...
Diannna Posted February 20, 2023 Report Share Posted February 20, 2023 I so agree I can feel the heart fluttering ,but when they attach the monitor it does not suit it. It did it for 24 hour s but not for the month. I do the stress and they can see the physical results but the machine shows nothing. They know something is wrong but they don't have any thing on paper to prove it. And the cop out is that they don't have all the answers. This I already know. Don't look at me like I am crazy. Quote Link to comment Share on other sites More sharing options...
Diannna Posted February 20, 2023 Report Share Posted February 20, 2023 Mike O you said standard cardiologist what did you mean. I went to the dysautonomia clinic in NYC and they said they couldn't help me. So what kind of heart doctor are you talking about? Quote Link to comment Share on other sites More sharing options...
MikeO Posted February 20, 2023 Report Share Posted February 20, 2023 3 hours ago, Diannna said: Mike O you said standard cardiologist what did you mean. I went to the dysautonomia clinic in NYC and they said they couldn't help me. So what kind of heart doctor are you talking about? Sorry for the slow response. My cardiologist is just that. we have tested the daylights out of my heart (stress tests, echo's, holters, and even a ILR) Albeit i was put on Ranolazine (ischemic heart disease) it is not the origin to my sweating. I am somewhat sure the cause is from my Dysautonomia I get the feeling that will never be proved testing wise. Maybe be from meds or a drop in BP (seen this before low pressure causing syncope) or my diabetes (low BG levels) at best i have been learning on my own to deal with it. Quote Link to comment Share on other sites More sharing options...
Diannna Posted February 21, 2023 Report Share Posted February 21, 2023 Same here. I have been learning to work around this as much as possible, but when the sweating comes I can feel it coming and if I am out and around people that is when it becomes a problem because they think I am having a heart attack, or that I have COVID. Even when I go to my primary care doctor and I am checking in and I have an attack the receptionist start panicing, even when I say it is from my condition they want me to wait outside of the building until I am called. This gets really frustrating. Quote Link to comment Share on other sites More sharing options...
MikeO Posted February 21, 2023 Report Share Posted February 21, 2023 8 hours ago, Diannna said: I have been learning to work around this as much as possible, but when the sweating comes I can feel it coming and if I am out and around people that is when it becomes a problem because they think I am having a heart attack, or that I have COVID. I can definitely feel it coming on as well. My worst public episode was at the Atlanta Airport i was soaking wet. Lucky i found AC vent as was able to dry off. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.