tachyfor50years Posted May 22, 2012 Report Share Posted May 22, 2012 Does anyone know of a Dysautonomia Clinic in California? I really need to be seen by a Dr. who is familiar with POTS, I have been suffering in silance for decades.I also want to know if they have major autonomic testing equipments, because my insurance does not cover for Vanderbilt or Mayo clinics.Thanks in advance! Quote Link to comment Share on other sites More sharing options...
jpjd59 Posted May 22, 2012 Report Share Posted May 22, 2012 Dr.Jaradeh, who used to be at a clinic in Wisconsin is now at Stanford. He is a neuro who specializes in theses types of disorders. I don't no if they have set up an actual "dysautonomia clinic" but he is very knowledgeable about POTS. Quote Link to comment Share on other sites More sharing options...
icesktr189 Posted May 22, 2012 Report Share Posted May 22, 2012 My insurance was not covered by Mayo either, but my cardiologist filled out a prior authorization form and now I see Dr. Goodman at Mayo. Quote Link to comment Share on other sites More sharing options...
Dizzysillyak Posted May 23, 2012 Report Share Posted May 23, 2012 How about these doctors ? I've been reading Dr Vikki Peterson's blog for years and love the way she explains things. I didn't see a dysautonomia reference when i looked just now but I'm assuming she knows what it is since she knows so much. If not, she's in with a group ... ps .. the bolding isn't my idea .. it just happened this way ... tc ... d http://www.healthnowmedical.com/2011. HealthNOW Medical Center, Inc.1309 S. Mary Ave, Suite 100Sunnyvale, CA 94087Phone: 408-733-0400 Quote Link to comment Share on other sites More sharing options...
tachyfor50years Posted May 23, 2012 Author Report Share Posted May 23, 2012 Today, I called Dr. Safwan Jaradeh's office which is in Stanford, California (I don't live there), his nurse was so nice and honest, she told me that he is knowlegable about POTS but he is still working on establishing the lab and all the other equipments. I think he will be my POTS Dr. in the future.Thanks for your replies. Quote Link to comment Share on other sites More sharing options...
Guest Alex Posted May 23, 2012 Report Share Posted May 23, 2012 Tachy,have you checked dinet's list of physicians? - main page left side of the page, under physician list http://dinet.org/physicians.htmscroll down the page and you should find CA list of drsthere are quite a few listed there - maybe one of them is close to where you live.if not mistaken UCLA has an autonomic lab hope this helpsalex Quote Link to comment Share on other sites More sharing options...
tachyfor50years Posted May 24, 2012 Author Report Share Posted May 24, 2012 Alex,Yes, I have seen it but I don't live in California, I live in mid United States.My insurance will not cover for Mayo clinics or Vanderbuilt and there is no POTS Dr in my state.Thanks though! Quote Link to comment Share on other sites More sharing options...
jpjd59 Posted May 25, 2012 Report Share Posted May 25, 2012 So happy that you were pleased with Dr. Jaradeh's office. My daughter has met with him once and is due to go back in a month. He seems very knowledgable about POTS. When you meet with him, let me know how your appointment goes. Quote Link to comment Share on other sites More sharing options...
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