Jump to content
Search In
  • More options...
Find results that contain...
Find results in...
rmlyonsfamily

"kaybers" Met "pots93" Today!

Recommended Posts

Most of you know that pots93 has been in the hospital since Tuesday. She's having a rough time and they are very frustrated with the care they are getting (or lack thereof....) and the current treatment plan while she's at that hospital. The girls have been facebook messaging and texting the last several days and Kaybers has been praying daily for them. Since it's only an hour drive to where they live, her Mom and I decided that it was time for the girls to finally meet..... face to face!

They were able to talk about their disease, frustrations, worries, fears, and even just about girl stuff in the short 2 hours we were there! Us Moms enjoyed meeting too, and giving advice on how to handle our "potsies".

You can read a little more and see a few pictures we took at "Life With the Lyons Family: They Finally Meet... Face to Face!".

Know that Pots93 and her Mom are so VERY thankful (just as I was last year) for your support during these last few days! This forum has meant the world to them!!

Michelle

Share this post


Link to post
Share on other sites

That is so neat!! And the girls are beautiful. I hope POTS eases up for them, as they deserve to live a fairly normal life.

Share this post


Link to post
Share on other sites

Hugs to you all. What beautiful girls they are. How wonderful everyone got to meet and spend time. Thank you DINET for giving us all the opportunity to share the good and bad times. :)

Share this post


Link to post
Share on other sites

Aww, they're so beautiful. I wish these young girls didn't have to go through this nonsense. How nice they were able to meet eachother and spend time with another human being who truly gets it.

Share this post


Link to post
Share on other sites

That's so great that they got to meet! I'll have to show my Kayla. Sometimes I think she feels like the only kid with this illness.

Share this post


Link to post
Share on other sites

What a great experience, not only for the girls, but for the moms also. It's always nice to talk to another mom who understands how hard it is to watch your child suffer with POTS.

Share this post


Link to post
Share on other sites

jpjd59 - you are sooooooo right! It was very good to meet Kayla's Mom and talk about how we best advocate for our girls to get them the help they need when they need it. I left there feeling very refreshed!

Share this post


Link to post
Share on other sites

Wonderful for all of you...so good to see your beautiful smiles :) Kayla and Kayleigh, and to have a friend, who truly understands and supports you!! What an encouragement to all of you. God has truly blessed you :D

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


×
×
  • Create New...