PetuniasMom Posted May 9, 2012 Report Share Posted May 9, 2012 Does anybody take Florinef and Midodrine both? Quote Link to comment Share on other sites More sharing options...
rmlyonsfamily Posted May 9, 2012 Report Share Posted May 9, 2012 Yep - my daughter does. She takes 0.3mg Florinef each morning and 7.5mg of Midodrine 4x a day. Quote Link to comment Share on other sites More sharing options...
roxie Posted May 9, 2012 Report Share Posted May 9, 2012 I am. Ive been on Florinef for a while & started Midodrine last week Quote Link to comment Share on other sites More sharing options...
WyomingGal Posted May 9, 2012 Report Share Posted May 9, 2012 .1 mg florinef and midodrine (10mg, 5mg, 5mg) Quote Link to comment Share on other sites More sharing options...
Guest Alex Posted May 9, 2012 Report Share Posted May 9, 2012 I did for about 3 weeks right after being diagnosed with POTS.It didn't really work out for me - side effects from midodrine (itching, tingling etc), plus the combo increased my BP and pulse too much. Alex Quote Link to comment Share on other sites More sharing options...
PetuniasMom Posted May 10, 2012 Author Report Share Posted May 10, 2012 Thank you. My daughter takes .01 (or is it .1?)mg of Florinef and her cardiologist has recommended adding in 2.5mg of midodrine 3x a day. I trust him with her life, would trust him with anything, just looking for a bit of feedback. I guess I should monitor her blood pressure for the first little bit when we add it in, and see how she feels. She did initially start out with midodrine a year ago when she was diagnosed, but it didn't do enough for her, so he switched to Florinef. Thanks everyone! Quote Link to comment Share on other sites More sharing options...
jenglynn Posted May 10, 2012 Report Share Posted May 10, 2012 I've taken both for close to a year. I've had significant side effects from both I've gotten so much worse in that time I wonder why I take either.. Lol.. But everyone reacts differently.My problem has really been with Florinef. I take .2 daily and it's a night more. It does retain fluids and salt but it gives me such a terrible headache and this incredible pressure in my head. I am actually trying to getting off Florinef.. I have had migraines as long as I can remember and I have Post-Concussion Syndrome after 10 concussions. I want to determine how much of my daily headache issues could be related to Florinef.I take 15mg of Midodrine 3-4x a day. It DOES lower my BP but not enough. My BP is rarely over 50-60/30-40 range. Without Midiodrine it's lower. That's what I've been experiencing the last month. It seems like every other month this happens. Then my "high" will be 75/60 (just generalizing- these are not my actual #) sometimes in the 90/70 range. I get all the yucky side effects... Itchy scalp, freezing all time (If you take Midodrine don't live in Wisconsin although this winter wasn't so bad) hands and body tingle, some people complain about over active bladder!!!!! I have a severe case of urinary retention so I might not mind that one. I wish it worked better, but I love of issues and am completely bedbound so who knows? So far it's the only thing that's helped even a little.Good Luck with your daughter!Jen. Quote Link to comment Share on other sites More sharing options...
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