FarmerAmy Posted May 5, 2012 Report Share Posted May 5, 2012 I have noticed that I do much better when my head is supported. It is very difficult for me to sit up, but I can sit for longer if I am either supporting my head with pillows or if I can lean my head back on a head rest (like in the car).Has anybody else experienced this? Do you have any thoughts on why this happens? Quote Link to comment Share on other sites More sharing options...
brownsea Posted May 5, 2012 Report Share Posted May 5, 2012 the past three years ive been like this amy. i can manage to sit up unsupported for two to three hours before symptoms take over. in the car i have a pillow to support my head, with the seat reclined which i find helps so much. at home im in bed with the support of pillows.thought it maybe something to do with instability in the neck. i have eds also. Quote Link to comment Share on other sites More sharing options...
tachyfor50years Posted May 5, 2012 Report Share Posted May 5, 2012 Add me to your list! Yes, but I don't know why. Quote Link to comment Share on other sites More sharing options...
bunny Posted May 5, 2012 Report Share Posted May 5, 2012 I don't know that I'd say it's difficult for me to not have my head supported, but I feel much better when it is. Especially when I'm dizzy, having my head supported feels much better. Hmm. Thinking this one through, I normally feel better in a reclined chair, but don't mind upright ones if my head is supported. I recall reading something about neck instability with EDS patients, but I don't have EDS myself. Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted May 5, 2012 Report Share Posted May 5, 2012 Me too. Quote Link to comment Share on other sites More sharing options...
Monstrosity Posted May 5, 2012 Report Share Posted May 5, 2012 I seem to do better when my head is supported. Quote Link to comment Share on other sites More sharing options...
FarmerAmy Posted May 5, 2012 Author Report Share Posted May 5, 2012 Thanks for the feedback everybody! I am fairly certain I don't have EDS. I am the stiffest person you have ever met! Quote Link to comment Share on other sites More sharing options...
Katybug Posted May 5, 2012 Report Share Posted May 5, 2012 I feel better with head support too but I have no reason why except that I have lost the cervical curve in my neck so all the weight of my head comes straight down my spine instead instead of being distributed throug the curve. I don't know for sure that is why the support helps but it's what I suspect. Quote Link to comment Share on other sites More sharing options...
yogini Posted May 6, 2012 Report Share Posted May 6, 2012 Me too. It cld bar for a lot of reasons. Sitting up without support is work on your body, so it is easier on your system in general...kind of like leaning against a wall is easier than standing up on your ow. For me I don't have EDS, but I am hyperfexible in my shoulders. Ihave terrible posture and my neck and shoulders always hurt. Any support is a big help! Quote Link to comment Share on other sites More sharing options...
peregrine Posted May 6, 2012 Report Share Posted May 6, 2012 I'm with yogini on this one - it takes a lot of effort to support your head on top of your neck, and when you have a limited amount of energy you may be able to put it to better use if you support your head, maybe? Not 100% sure. Quote Link to comment Share on other sites More sharing options...
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