Jump to content
Search In
  • More options...
Find results that contain...
Find results in...
LindaJoy

Facebook Page

Recommended Posts

Hi, everyone.

I just wanted to let you know that I have a FaceBook page and would love to have you visit it to see some of the pictures I put on there, mostly of my grandchildren (I'm so proud of myself. Took me hours to learn how to put pics on, and I have a few doubles (even had a triple of one at one point! I'm so not computer savvy)). Just look for Linda Burgess Parsons.

I'm not really all that sure about FaceBook rules. I think you might have to be a "Friend" to see my pictures. If so, don't hesitate to send me a friend request. Like I said, I'm new to this and am just learning my way around, but I'm enjoying it quite a bit. For so long, I've been pretty home bound, so having this avenue to actually talk with people in my community and family is pretty nice. I feel like a part of life again. I'm still hesitant to tell old friends how sick I am. It will come out in bits, I guess. I am thinking of putting something on there about Dysautonomia and Addison's, maybe even mast cell disease. It's a work in progress, I guess.

You all take care and I hope I'm able to share some of my pics with you all. I have a month old grandson and a nearly two year old granddaughter. They're both adorable, but of course Grandma would think that, huh?

Blessings,

Lindajoy

Share this post


Link to post
Share on other sites

I'll be your friend on Facebook. I'll send you a request!! :) There are also some face book sites that I actually volunteer to help others with Dysautonomia. It says I work there, but I haven't really worked in years, but I am an RN (retired). :rolleyes: Still like DINET the best!! :D

Share this post


Link to post
Share on other sites

Thanks, you all. Look forward to seeing you on FaceBook. Yes, I've been on the FB Dysautonomia site. Lots of nice people and information, but honestly, DINET is so much easier for me to use, and I know the people there, so....

You all take care and again, I look forward to keeping in touch with you.

Lindajoy

Share this post


Link to post
Share on other sites

I'll be your friend on facebook too. I play words with friends a lot so if you want to do that it could be fun. It passes the time and helps I think with the brain fog.

Lynne

Share this post


Link to post
Share on other sites

Carrie...she gave her full name, and we are on other dysautonomia sites together, too...You can usually figure it out :) Since this is public, I will not share my full name, since I've had a few creepers lately, but my first and middle name are already present, and I live in Alabama. Linda lives in Ohio, along with Montie. Hope this helps!! There is a site for just location for potsies on Facebook, too, so you may be able to find some there, as well!! There is also a site Dysautonomia/Pots Awareness and Support on Facebook which is public, but there is also a private one on FB, too, so if you send a message, you can get on the private one, too...

Share this post


Link to post
Share on other sites

If you want to share names in a more private setting you can send personal messages. Just click on the envelope (top dark blue bar) and you can work from there. Enjoy!

Share this post


Link to post
Share on other sites

I tried to be creative with telling people on fb how I'm sick. When I got my dx, I posted "hey, I just met you, and this is crazy, but I have POTS, so catch me maybe?" Then I added a youtube video about it, but most people didn't get it. One asked if there was a disease called kettle too.

Share this post


Link to post
Share on other sites

Sorry, that happened Millerla, but there are private Face Book sites that you can get on, that I also encourage and support others on, that is private, just for us POTsies. If you are interested you can PM me, and I can give you the woman's name that runs the site, and you can PM her to get on the private site. Tell her Kimbell sent you, and she will know who I am...I work on the site, too... :)

Share this post


Link to post
Share on other sites

You shouldn't be nervous....that's great :) I'll take a look!

Share this post


Link to post
Share on other sites

It was great...I wrote a comment for you to read on the blog!! :)

Share this post


Link to post
Share on other sites

They didn't post my comment...don't know why...I just checked. I even have a google account. Don't know why.

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


×
×
  • Create New...