puppylove Posted April 30, 2012 Report Share Posted April 30, 2012 I'm starting mestinon. Is anyone else on it? Has it helped you? Thanks. Quote Link to comment Share on other sites More sharing options...
roxie Posted April 30, 2012 Report Share Posted April 30, 2012 I took it for a few years and thought that it helped! I did the best on it the first couple of years. The last few, idk my body is weird Quote Link to comment Share on other sites More sharing options...
chipper Posted April 30, 2012 Report Share Posted April 30, 2012 Made my stomach hurt, but for sum a very good medication. Hope you are one of those! Quote Link to comment Share on other sites More sharing options...
skiberthoud Posted May 1, 2012 Report Share Posted May 1, 2012 There's been lots of threads with this same topic...you should be able to find plenty of helpful information Quote Link to comment Share on other sites More sharing options...
Guest Alex Posted May 1, 2012 Report Share Posted May 1, 2012 Hi puppylove,I've posted before about my mestinon experience, hut here it is in a nutshell.I take it 3 times a day, 4 hours apart. When I started it I had a ton of side effects (took a while for my dr to find the right dose for me - sweating, running nose, abdominal cramps, muscle twitches, blurred vision, dilated pupils, drowsiness, and at times I felt like I was stoned - there might have been other issues I cannot remember now. It helps me to take it with food - the stomach issues are not that bad. I still get some of those side effects but very randomly, as I have seen no pattern/correlation to anything I do, eat or drink.Does it help me? I'm not 100% sure. I definitely felt a difference when I started it, I could say I had a couple of almost normal days. Not so much now. My pulse still jumps over 100 (at least 30 bpm) when I stand and I feel exhausted by the smallest effort I make. Like tablet said, try to search the forum - there should be a bunch of relatively recent posts on mestinon that might give you more info.I hope this helps.Good luck.Alex Quote Link to comment Share on other sites More sharing options...
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