HopeSprings Posted April 23, 2012 Report Share Posted April 23, 2012 My primary care Dr. is dropping our insurance. How on earth am I going to find a new Dr. (in network) who gets this whole confusing situation? I like my Doctor. My husband was happy with him too. He has a nice personality, has followed my long ordeal, can deal with my annoying, inquisitive ways and is open to testing for new things & trying new things. He's the one who decided I probably have CFS based on testing he did - after searching for a million other things. I doubt most Dr's even believe CFS is real or have ever heard of POTS. I don't really have a POTS Doctor (no good ones nearby) and the CFS lady is out of network, expensive, and far. Sigh... I see many frustrating appointments ahead of me. Any suggestions? Quote Link to comment Share on other sites More sharing options...
puppylove Posted April 23, 2012 Report Share Posted April 23, 2012 I'm so sorry . I know how you feel- my cardiologist is dropping my insurance because the insurance company doesn't believe in POTS. I don't know what I'm going to do either, sorry. Just wanted let you know I'm going through the same thing. Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted April 23, 2012 Author Report Share Posted April 23, 2012 I'm sorry Puppylove. Finding a good POTS specialist is much harder than finding a good general Doc I think. I hope you'll be able to find a good alternative. You know the more I think about my predicament, maybe this is a good thing. While he has a great bedside manner and an openmindedness that I appreciate, he hasn't actually helped me or uncovered anything groundbreaking. Maybe I'm just so used to bad Dr's that he seems great in comparison. Hopefully I'll luck out and find someone who is nice and can actually do something for me. Ok, I realize I'm talking to myself here. Quote Link to comment Share on other sites More sharing options...
Katybug Posted April 23, 2012 Report Share Posted April 23, 2012 Naomi,You might ask him to give you the name of some docs he feels are good doctors who really are about their patients as he does. If you know anyone else in your area with a chronic illness, maybe you can ask them too.Hope you get it worked out.Katie Quote Link to comment Share on other sites More sharing options...
LindaJoy Posted April 24, 2012 Report Share Posted April 24, 2012 Naomi, I'm sorry you're having to go through a change, but as you then said, it may be a good thing in disguise. I've been dropped by so many of my doctors over the years, I am honestly numb to the rejection anymore. I now have a new allergist that I'm just crazy about. He listens to all of my symptoms and is really trying to find a way to help me. He's the best doctor I've been to in awhile, and while I like my pcp, she just isn't too up on any of this autonomic stuff to really be of any help. My last pcp told me I was at the end of my life and sent me home to die, as did the last internal med. doc I saw in the hospital. Needless to say, I was glad to get away from them! I hope you find a new doctor who is supportive, knowledgeable and good with testing and planning. Good docs are truly hard to find, but when we finally come across one, what a good day.Linda Quote Link to comment Share on other sites More sharing options...
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