humbled_pie Posted March 30, 2012 Report Share Posted March 30, 2012 I follow Greg Page on Facebook and thought I'd share his most recent status update:Hi Everyone,I have seen some posts from people with POTS/Dysautonomia. I am very glad that my own story may have helped ins one way bring some attention to this relatively unknown disorder. Awareness, understanding and research is constantly improving, so hang in there! For me, I am so thrilled thy not only have my personal circumstances improved to the point where I no longer needed medication, but also to the point where I am able to do shows with the Wiggles once more. The shows are very physically demanding- there is no doubt about that- but this time around I am aware of the disorder that I have and how to manage it, so I am not expecting there will be any issues. I've seen my doctor already and she is pleased that I am handling things very well. So, for those out there suffering with POTS or similar disorders- hang in there- it is possible for life to return to normal or close to it and you will be YOU again even if you don't feel it now! For some more info, check out DYNAinc.org.I've been a bit obsessed with his return to performing since my girls loved the Wiggles when they were small, and now his recovery has been an encouragement to them! Quote Link to comment Share on other sites More sharing options...
MandyBrook Posted March 30, 2012 Report Share Posted March 30, 2012 LOVE this!!! What an encouragement!!!Thank you for sharing Quote Link to comment Share on other sites More sharing options...
derekliz Posted March 31, 2012 Report Share Posted March 31, 2012 I am so happy for him. Did he give any information about how he is keeping things manageable? do you hve the url to his FB page?liz Quote Link to comment Share on other sites More sharing options...
RichGotsPots Posted April 2, 2012 Report Share Posted April 2, 2012 you can read his story here http://dynainc.org/about/news/2012/m/wiggler-crusader Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted April 2, 2012 Report Share Posted April 2, 2012 As far as I am aware he just randomly improved after about five years. I dont think he actually has POTS. Quote Link to comment Share on other sites More sharing options...
humbled_pie Posted April 2, 2012 Author Report Share Posted April 2, 2012 You can just go to FB and search "Greg Page". He mentions that he "no longer needs medication now" - so clearly meds were a part of his recovery. He's also mentioned that it's not a curable condition and will be with him the rest of his life, but he's learned to manage his symptoms. So he has not just randomly improved. I don't believe he's ever said he had POTS; I think he's always referred to it as Orthostatic Intolerance. Since there are 3 categories of OI, of which POTS is one (according to ndrf) he may not have POTS in particular. But he clearly has some form of Dysautonomia and the symptoms I've seen him list in other articles are very similar to ones I have experienced with POTS. Quote Link to comment Share on other sites More sharing options...
Birdlady Posted April 2, 2012 Report Share Posted April 2, 2012 Hmm I am encouraged to read stories like this, but they also confuse me too. I always want more details on how someone got better. I don't really understand how a person could just come completely off of meds and be fine... That just doesn't make any sense to me especially if they have dysautonomia. I'm not on medication for my POTS atm (my choice) and I can live, but I'm still too sick to be considered normal and can't hold a job. That's a far cry from being able to perform in a band.. hahaRegardless of how or why he is better, I am very happy for Greg! Consider me jealous! Quote Link to comment Share on other sites More sharing options...
redoctober Posted April 2, 2012 Report Share Posted April 2, 2012 I can believe it...I no longer take Atenolol...since my HR would dip into the 40's for no good reason. Not sure how and why that happened...but it did. I exercise my butt off...so perhaps that might explain some of it. But I no longer need that med (for now, at least). Quote Link to comment Share on other sites More sharing options...
brethor9 Posted April 2, 2012 Report Share Posted April 2, 2012 I was actually diagnosed with severe OI/ moderate POTS and severe dysautonomia......so I guess they can all exist together under the same umbrella? Quote Link to comment Share on other sites More sharing options...
RichGotsPots Posted April 3, 2012 Report Share Posted April 3, 2012 As far as I am aware he just randomly improved after about five years. I dont think he actually has POTS.Rama, I meant to PM you this. I read that he actually got better with the help of doctors at the hospital where his foundation raises money for. http://www.bakeridi.edu.au/support/greg_page_fund/ I was going to send this to you in hopes you live near by... But knowing you, you already know about it Quote Link to comment Share on other sites More sharing options...
RichGotsPots Posted April 3, 2012 Report Share Posted April 3, 2012 I found the name of his doctor and I might try to email her for some answers, not on him but in general. It says in the article I posted he had shortness of breath too but in all of his TV interviews I've seen and in his People Magazine interview he just says he had tons of fatigue after shows that he wouldn't want to talk to anyone after them and he also felt dizzy a lot and that the final straw to quit was he fainted while talking to a 5 year old fan. He said he didn't want to faint on stage and scare all the kids. I saw a knew promo video he did were he is dancing and wow I wish I could do all that without symptoms. Really really wish he said what helped him... Quote Link to comment Share on other sites More sharing options...
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