cmreber Posted March 30, 2012 Report Share Posted March 30, 2012 A good friend of mine steered me to a great website and I just thought I would share with everyone on here. It's called "But you don't look sick.com".http://www.butyoudontlooksick.com/I'm sure every single person on these forums has dealt with this along the way and it is so helpful to share this experience with others who understand. One of the hardest things about POTS and many other disorders/diseases out there, is that you don't actually LOOK sick. Which makes people say, "I don't understand what's wrong with you, you look fine to me." So when you flake on your friends once again, or can't clean the house today, or couldn't manage to go shopping and make dinner, or just don't want to socialize with anyone, people can look at you with such judgment sometimes because they don't realize what is really going on inside. And if you are a young person (as so many of us are on here!), then it can be even more difficult to make people understand because somehow our society equates youth with good health.Hope someone can benefit from this! And hope everyone on here is having a "good day" Quote Link to comment Share on other sites More sharing options...
Wendy C. Posted March 30, 2012 Report Share Posted March 30, 2012 Thank you, that does seem to be a nice website! I just read The Spoon Theory article on there and will check out some more later. Quote Link to comment Share on other sites More sharing options...
cmreber Posted April 1, 2012 Author Report Share Posted April 1, 2012 WendyC, your welcome . I had never heard of it and I thought it might be nice to share. There are some personal stories on there I feel we all can relate to, even if our disorders might not be the same. (there is a really great one called The Girl Behind the Smile from someone with Lupus.) Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted April 2, 2012 Report Share Posted April 2, 2012 I think not looking sick can also be a benefit - its nice for people on the train not to be aware that you are a vunerable target as an example. Quote Link to comment Share on other sites More sharing options...
L4UR3N Posted April 2, 2012 Report Share Posted April 2, 2012 Also good if you need to keep your job, or get hired into another one! Quote Link to comment Share on other sites More sharing options...
cmreber Posted April 3, 2012 Author Report Share Posted April 3, 2012 You both have a good point! I also try to take it as a compliment when people can't tell because sometimes I work so hard to be normal, that if they think I am, I feel successful! ;-) It's also helpful to try & see the silver lining in any situation . but there are times when I don't even have the energy to act like I'm fine, & at those times people don't always understand & it can make you feel very alone. It's just nice to know that other people are in the same boat & it makes me feel less alone in this Quote Link to comment Share on other sites More sharing options...
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