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WyomingGal

People Magazine Article!!

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Didn't know if anyone has seen it yet, but there is an article about Greg Page from the Wiggles in the April 2nd issue! I haven't even read it all yet, but wanted to share with everyone and tell them to go pick it up...i feel like this is huge!!

I am so glad he has shared his story!

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I just read it. Says he's well enough to be off medication and rejoin the Wiggles. I don't understand how people recover from this. Has he talked elsewhere about how he got better?

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That's so nice of him to speak out. Will have to look for the People magazine article. Thanks for posting!

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I'll have to check that out. I have kind of wondered how he is doing and hadn't heard much of anything about him since he left The Wiggles. At least we have a celebrity who can try to bring some awareness for us

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Supposedly many people improve over time. My specialist has always said the average time to "recovery" from POTS is 4 years. Of course as we know this is not everyone. And Mr. Page may experience relapses, from time to time, even if generally feeling well enough to resume many former activities.

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I am constantly reminding people that POTS/dysautonomia is a spectrum, just like Autism or MS, or many other diseases. There are lots of people that do get better, and they are not online - they are out living! So we don't alway hear from them, and I did the same when I had a few year period of wellness, the online stuff got very depressing so I stopped going on the forums.

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I was diagnosed with NCS, OI, and IST about 4-5 years ago. My cardio also thinks I have POTS. I have never been sick all the time, and my symptoms come on randomly in flares. I'm able to hold a job and play sports, but I do have periods of days or weeks where I am pretty much incapacitated. I also have months and months with few to no symptoms.

I think it's just different for all of us. There was a period of time I was on midodrine 5 times a day to keep my BP up, along with 4-5 salt tabs and fludorcortisone. Now I don't take any of that, and I can manage just fine for the most part. Although now I'm having problems with my BP being too high.

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