WyomingGal Posted March 24, 2012 Report Share Posted March 24, 2012 Didn't know if anyone has seen it yet, but there is an article about Greg Page from the Wiggles in the April 2nd issue! I haven't even read it all yet, but wanted to share with everyone and tell them to go pick it up...i feel like this is huge!!I am so glad he has shared his story! Quote Link to comment Share on other sites More sharing options...
WyomingGal Posted March 24, 2012 Author Report Share Posted March 24, 2012 ok-not the most informative article, but it is people magazine. it's a start! Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted March 25, 2012 Report Share Posted March 25, 2012 I just read it. Says he's well enough to be off medication and rejoin the Wiggles. I don't understand how people recover from this. Has he talked elsewhere about how he got better? Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted March 25, 2012 Report Share Posted March 25, 2012 Well, he talks more in depth here, but still doesn't say how he improved so much. Oh well. Nice website for kids with dysautonomia - hadn't seen it before.http://www.dynainc.org/about/news/2012/m/wiggler-crusader Quote Link to comment Share on other sites More sharing options...
Maiysa Posted March 25, 2012 Report Share Posted March 25, 2012 That's so nice of him to speak out. Will have to look for the People magazine article. Thanks for posting! Quote Link to comment Share on other sites More sharing options...
potsyturvy Posted March 26, 2012 Report Share Posted March 26, 2012 I'll have to check that out. I have kind of wondered how he is doing and hadn't heard much of anything about him since he left The Wiggles. At least we have a celebrity who can try to bring some awareness for us Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted March 26, 2012 Report Share Posted March 26, 2012 Supposedly many people improve over time. My specialist has always said the average time to "recovery" from POTS is 4 years. Of course as we know this is not everyone. And Mr. Page may experience relapses, from time to time, even if generally feeling well enough to resume many former activities. Quote Link to comment Share on other sites More sharing options...
Clairefmartin Posted March 26, 2012 Report Share Posted March 26, 2012 I am constantly reminding people that POTS/dysautonomia is a spectrum, just like Autism or MS, or many other diseases. There are lots of people that do get better, and they are not online - they are out living! So we don't alway hear from them, and I did the same when I had a few year period of wellness, the online stuff got very depressing so I stopped going on the forums. Quote Link to comment Share on other sites More sharing options...
Tuesday Posted March 26, 2012 Report Share Posted March 26, 2012 I was diagnosed with NCS, OI, and IST about 4-5 years ago. My cardio also thinks I have POTS. I have never been sick all the time, and my symptoms come on randomly in flares. I'm able to hold a job and play sports, but I do have periods of days or weeks where I am pretty much incapacitated. I also have months and months with few to no symptoms.I think it's just different for all of us. There was a period of time I was on midodrine 5 times a day to keep my BP up, along with 4-5 salt tabs and fludorcortisone. Now I don't take any of that, and I can manage just fine for the most part. Although now I'm having problems with my BP being too high. Quote Link to comment Share on other sites More sharing options...
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