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Rachel

Changes: Living With Postural Orthostatic Tachycardia Syndrome

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Hi Lisa, There could be so many reasons for why you're feeling the way you do, and I would encourage you to find a doctor who is willing to work together with you to figure it out. Sometimes it's a matter of finding better treatments through trial and error (under care of a doctor). Other times, there's a problem that has yet to be diagnosed and addressed.

I will tell you that in the years I've been on this site, that many people here share some or all of your symptoms. I would encourage you to ask your questions of others here, either in topics you see that interest you, or start your own topic. If you're not sure how, see the topic at the top of the forum called helpful hints for forum participation.

Welcome!

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I never saw this video before, but it shows me that there are doctors in the world who know what Dysautonomia is and how you can possibly treat people with it. It gives me hope for the future.. And i'm thinking about showing this video to my doctors ... Is that a stupid thought? In the Netherlands the doctors know so little about POTS and there are just so few patients with it, that i may think it will help the doctors understand what we're dealing with..?

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Thanks so much for producing this video. I was able to share it with a friend who is passing out and has a possible diagnoses of NCS & POTS. It has been a blessing and an easy way to share with people who want to know what I have. It's easier to ask someone to watch a video then to read a bunch of stuff they don't understand. Thanks for being a blessing!

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