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Update - Research Re Pots/mcas/eds Link


Sarah4444

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Hello everyone,

One of my doctors is starting a study to see if they can figure out why there is such a significant overlap among people who are diagnosed with POTS, a mast cell disorder, and some form of joint hypermobility.

If you are interested in learning more or in participating, please go to the following link:

http://www.ednf.org/index.php?option=com_content&task=view&id=2087

Wishing everyone well!

Sarah

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I am not sure Issie. I know we'll have access to anything they publish obviously, and I will keep people posted about anything I learn if I have their email address in the group. He will be sending out the first questionnaire before long - I think they are just trying to learn about us to start.

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