Sarah4444 Posted March 21, 2012 Report Posted March 21, 2012 Hello everyone,One of my doctors is starting a study to see if they can figure out why there is such a significant overlap among people who are diagnosed with POTS, a mast cell disorder, and some form of joint hypermobility.If you are interested in learning more or in participating, please go to the following link:http://www.ednf.org/index.php?option=com_content&task=view&id=2087Wishing everyone well!Sarah Quote
issie Posted March 21, 2012 Report Posted March 21, 2012 Sarah,Will we have access to the reports and findings in regard to the findings of the data? I've printed the info out and will try to participate with the study. I think we need some answers.Issie Quote
Sarah4444 Posted March 22, 2012 Author Report Posted March 22, 2012 I am not sure Issie. I know we'll have access to anything they publish obviously, and I will keep people posted about anything I learn if I have their email address in the group. He will be sending out the first questionnaire before long - I think they are just trying to learn about us to start. Quote
issie Posted March 23, 2012 Report Posted March 23, 2012 Okay, I'm working on all the information. It will take me a little while to put it all together - but, will get it to either them or you. I'll also PM you about it later.Issie Quote
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