Lemons2lemonade Posted March 6, 2012 Report Share Posted March 6, 2012 Hey all. Since I have had pots, I have tried to stay as active as possible. In the past 2-3 months I have been slowly increasing this activity. This has done wonders for me, and my tachycardia is almost gone. I haven't hit over 100 inappropriately for the past month. However, I am more fatigued, which is kind of a nice change to being wound up on adrenaline all the time. So more fatigue, less tachy. I prefer the fatigue, so I would call this a success Quote Link to comment Share on other sites More sharing options...
corina Posted March 6, 2012 Report Share Posted March 6, 2012 happy you're having success lemons! how do you recover from the fatigue?before octreotide i had very much trouble recovering from fatigue, it took days to weeks and sometimes months to get back to my baseline. now that i'm on octreotide i can recover much quicker which feels sooooooo good! i still have limitations (re exercizing and recovering from it) but am happy with what i have and am determined to hold on to! Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted March 6, 2012 Report Share Posted March 6, 2012 Im guessing you mean subjectively you are improving which is great. Keeping active definately helps - sitting around certainly doesnt help.Personally, my tachy isnt really a very good indicator of how im feeling subjectively. Neither often is my BP. Quote Link to comment Share on other sites More sharing options...
jangle Posted March 6, 2012 Report Share Posted March 6, 2012 That's great lemons. Is your hr still in the 90s though?Sorry to hear about the fatigue. I know lipoic acid gives me a lot of energy. Quote Link to comment Share on other sites More sharing options...
misstraci Posted March 6, 2012 Report Share Posted March 6, 2012 I'm glad your tachycardia is improving, what did you say you're doing that is causing the improvements? Quote Link to comment Share on other sites More sharing options...
Lemons2lemonade Posted March 6, 2012 Author Report Share Posted March 6, 2012 Jangle, it depends. Not usually. When I am laying down it is in the 70's. When I am sitting and standing in the 80's. Rama is right though, there are still all the other weirdo symptoms with pots. But to me the most troubling/uncomfortable was the tachy and adrenaline surges. I still get lightheaded from time to time when I am up and moving around but it is momentary and tends to resolve almost as quickly as it began. I think there are multiple reasons I am feeling better. First, I think I am on a good medication cocktail for my body. Second, I am anal about my pots lifestyle choices as far as water, diet, using compression when needed and exercise are concerned. However, I think the thing that has made the greatest difference is my own state of mind. I am staying calm if something happens rather than panicking. This took a lot of practice and time to see results from and no therapist, pain killers, high levels of ssri, or ativan could control this for me--however, I do believe that the celexa I take has helped me overcome this. Quote Link to comment Share on other sites More sharing options...
issie Posted March 7, 2012 Report Share Posted March 7, 2012 I'm glad you're doing so much better lemons. Amazing what time and finding the right mix can do for a person. Quote Link to comment Share on other sites More sharing options...
Lemons2lemonade Posted March 7, 2012 Author Report Share Posted March 7, 2012 I should also mention that I drove myself somewhere alone today for the first time in months. Quote Link to comment Share on other sites More sharing options...
Lemons2lemonade Posted March 7, 2012 Author Report Share Posted March 7, 2012 Also, thanks to all for motivation and hope Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted March 7, 2012 Report Share Posted March 7, 2012 You have hit the nail on the head! Stress 'feeds' this illness in a way. Im not sure how and ive heard many theories but making a conscious effort to let go, relax as best you can and not buy into stress makes a massive difference at least for me.Driving is important for feelings of control and stuff I think. When I couldnt drive recently (the first time with POTS, previouslyt I had just pushed through and endangered my life for better or worse) it was very frustrating. Quote Link to comment Share on other sites More sharing options...
anaphylaxing Posted March 7, 2012 Report Share Posted March 7, 2012 Way to GO lemons!! Do you mind sharing your exercise regime? Quote Link to comment Share on other sites More sharing options...
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