L4UR3N Posted March 1, 2012 Report Share Posted March 1, 2012 Does anyone have this? My neurologist said that I have ankle clonus and I am wondering if this is a common finding in POTS? I could not find any research relating clonus specifically to POTS. Quote Link to comment Share on other sites More sharing options...
sue1234 Posted March 1, 2012 Report Share Posted March 1, 2012 Read my topic, "Head/neck issues possible contributor to POTS" from yesterday. I'm talking cranial nerve issues. Quote Link to comment Share on other sites More sharing options...
julieph85 Posted March 1, 2012 Report Share Posted March 1, 2012 I haven't been diagnosed with it but I suspect I have it. I also have a huge number of fascitulations that occur if I move my muscles Quote Link to comment Share on other sites More sharing options...
Chaos Posted March 1, 2012 Report Share Posted March 1, 2012 I haven't seen any research relating this to POTS either. Seems like that is usually more associated with CNS issues, if I'm remembering correctly. Quote Link to comment Share on other sites More sharing options...
L4UR3N Posted March 1, 2012 Author Report Share Posted March 1, 2012 From what I know about it, there is an association with either brain lesions or spinal cord lesions. No lesion has been found on any of the 3 brain MRI's that I have gotten, and now I'm wondering why no one has checked my spinal cord I'm really sick of having to be the one to suggest things to my doctor. 99% of the tests and care that I have received have been initiated by me...... this just shouldnt be. Quote Link to comment Share on other sites More sharing options...
Chaos Posted March 2, 2012 Report Share Posted March 2, 2012 Good thing you're so smart and know what to recommend!! I too am tired of seeing docs so I can educate them about my condition and then have to walk out and pay huge fees! I think they should start paying me for the continuing education course I'm providing for them. LOLI feel for all the people who may have this but don't know how to research and advocate for themselves . Quote Link to comment Share on other sites More sharing options...
skiberthoud Posted March 2, 2012 Report Share Posted March 2, 2012 I haven't seen any research relating this to POTS either. Seems like that is usually more associated with CNS issues, if I'm remembering correctly.Yeah, my first thought was CNS - upper motor neuron lesion typically. Although there are other causes as well. I've seen it med-induced. One of my children also had myoclonus for the first two years of her life. Never found anything and it self resolved. We'll see if it shows up as something else later in life...Sorry you have to add another thing to your list, Rissy Keep searching. Quote Link to comment Share on other sites More sharing options...
L4UR3N Posted March 2, 2012 Author Report Share Posted March 2, 2012 The other thing it mentions is serotonin toxicity, although I am not on any SSRI's to cause this.... . I'm so confused now . Quote Link to comment Share on other sites More sharing options...
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