peregrine Posted February 25, 2012 Report Share Posted February 25, 2012 So my reaction to the TTT (as described elsewhere here) was weird - my doctor basically described it as "starting off with hyperadrenergic POTS and then adding some pooling on top of that." Roughly - I went from 80 bpm to 120 bpm in the first 30 seconds of the tilt (after which point it fluctuated like crazy), which she said looks like hyperPOTS, but then I started to visibly pool (and I felt it too) and got worse over the next 7.5 minutes before they tilted me back to lying flat before I was apparently about to pass out. Apparently the QSART results and my description of some GI tract issues are making her think small fiber neuropathy as well, which she said could be causing the pooling (I think?).I'm a little confused - it seems like most folks here talk about either being hyperPOTS or having pooling (or having other types), but not about having more than one etiology. Has anyone else been told this? If so, did treating one avenue of failure (sympathetic NS or pooling) help at all, or help only halfway, or what? Sooo confused. Quote Link to comment Share on other sites More sharing options...
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