cindeebee Posted February 23, 2012 Report Share Posted February 23, 2012 This is my 4th Cardiologist, and I drive 50 miles ea way to see him because he told me he has treated quite a few patients with Dysautonomia. He's starting me all over in the diagnosing process...holter, echo, and another Tilt Table Test, which I don't mind since my other dr's didn't know anything about Dysauto, but when I mentioned back pain, all-over pain, and joint pain, he says Dysauto doesn't cause this and has never heard of this as being a symptom. He also said this regarding nausea (I get nauseous after eating - and yes, I've had my gall bladder checked...and isn't our stomach/digestion part of the autonomic system??? ) . I want to believe he can help me, but if he doesn't believe all my symptoms are related to Dysauto, should I run for the hills...again??? He agrees that I have Neurocardiogenic Syncope (as I passed out in 7min on TTT) but he doesn't think this would cause all my other symptoms. My energy and fatigue are horrible. I don't sleep well, waking every two hours and when I wake up, I can't wait til it's time to go to bed again (Lyrica works wonders for me, but only take it about once a week, when I really need a good sleep, because it causes constipation. Believe it or not I am able to ride my bike. It's really the only thing I can tolerate. I don't feel great afterwards or the next day, probably because it takes my heart rate to 200.... To make matters worse, for my work, I sit at a computer all day long, which I don't know how much longer I can take... low back and coat hanger pain are the worse!So my question to all my Dysauto friends, do you have pain and/or nausea and KNOW they are related to Dysauto? Could it be a neuropathy issue? What about fibromyalgia (I asked my regular primary doc if she thought I had fibro and she said 'no')?I'm soooo tired of going doctor to doctor to find someone who knows anything about Dysauto, let alone spending money I don't have This new doc asked me to start wearing compression stockings, which have really helped with my dizzyness, but what am I gonna do in the summer??? Thanks for listening and best of luck to everyone on here. It's nice to have a place where we can all relate and share all our information. I wonder if our "doctors" ever check out this site??? Wouldn't that be great! Quote Link to comment Share on other sites More sharing options...
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