Tzipora Posted February 23, 2012 Report Share Posted February 23, 2012 Hey everyone,I haven't been round in a few months and was a newbie then anyway. I have a whole lot of stuff going on with my health. But I'm back tonight, despite my heavy fatigue because I'm really wondering about something.I'm 22 (well, I will be in a few weeks) and just got diagnosed with POTS/ Dysautonomia about 6 months ago though I've had a sinus tachycardia diagnosis for a few years now. And I've got a zillion other issues, primarily very severe digestive stuff. I have a younger brother who is 18, almost 19. He's started having severe headaches that are really scaring him. He just saw his PCP and found out he ha high blood pressure (as in he was running about 159/87!). Out of curiosity I asked him his heart rate and it's in the 50's, so the upper end of brady range. I hope I didn't totally scare him since I know he's absolutely terrified of ending up anywhere near as sick as I am. And unfortunately where he lives, his doctors will never figure out if it' Dysautonomia anyway. For that matter the University of Michigan diagnosed me but are clueless on treating me so I'm trying to get into the Cleveland Clinic... but I digress!So my brother has considerable hypertension, bradycardia, severe headaches, and stated he has palpitations sometimes. I realize it could be a lot of other things too but I'm kind of fascinated because the vast majority of my own health issues have the possibility of being genetic yet no one else in my family has any of the diagnosises I have... I know there's obviously possible genetic links with Dysautonomia and know that a number of you also have siblings with it. I'm curious though, what are the chances of siblings having different kinds of Dysautonomia and very different symptoms? Because my brother's symptoms are like the exact opposite of mine (minus the severe headaches and palpitations, story of my life too) but I have a lot of problems with low blood pressure (I'm always below 90/60) and I have tachycardia. Like I said, I realize my brother's issue could be something else entirely but given that he's my brother and I have Dysautonomia, seems like it might be worth considering that he does also. But is it common for siblings to present in entirely different ways? Also, because I'm personally very severe and extremely disabled by my health issues, even if my brother does have Dysautonomia, there's still a good chance his will never get bad like mine, I hope, right? I'm just really wondering and wanted to come on here and chat about it because as it is, I know my brother is terrified. He's always been the healthy one. But my issues first started when I was about the same age he is now too... So anyway, just wondering about all of this. Any thoughts? Quote Link to comment Share on other sites More sharing options...
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