juliegee Posted February 21, 2012 Report Share Posted February 21, 2012 For those of you in the states, have you ever seen those Cancer Care Centers of America TV commercials? You know, the ones that offer late stage or complex cancer patients HOPE. I LOVE their comprehensive, patient-centered, immediate, get-down-to-business approach. I LOVE how all of the caregivers meet with the patient at one time...instead of having exhausted, deathly ill patients trek all over town, chasing one doc after another only to find little or no help. Wouldn't it be wonderful if WE had something like that?...A place where we could meet with an autonomic specialist, an exercise physiologist, a nutritionist, a supportive psychologist, and ANY other specialist we need- geneticist, connective tissue, mast cell, rheumatologist, endocrinologist, mitochondrial, nephrologist, GI, etc. AND, they ALL "get" how their specialties interplay with dysautonomia. A place where we were treated respectfully and believed. A place where we received prompt help and didn't have to wait years for a DX... Gotta go buy a lottery ticket now. Quote Link to comment Share on other sites More sharing options...
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