Annaliese Posted February 13, 2012 Report Share Posted February 13, 2012 I almost certainly have excessive symp activity. My eyes hurt with too much light, i cant stand noise and smells. I have terrible anxiety (not cognitively induced). Initially i had high standing bp but now its low (im about to be tested for adrenal fatigue as it was over a year that my standing bp was high). Since i now have low BP, its a bad idea to use clonidine on its own. My Qs are1. Has anyone ever been prescribed clonidine WITH florinef to address the excessive symp activity but to avoid very low blood pressure? 2. What other sympatholytics have people been prescribed other than clonidine?Ive tried the SSRI lexapro and had a very bad reaction to it (terrible anxiety and diarrhea). Ive tried AVANZA and this did nothing for my anxiety.Thanks guys Quote Link to comment Share on other sites More sharing options...
Annaliese Posted February 13, 2012 Author Report Share Posted February 13, 2012 Btw, i use valium, but it no longer has much if an effect on me anymore. Quote Link to comment Share on other sites More sharing options...
mully2014 Posted February 13, 2012 Report Share Posted February 13, 2012 Be careful with the clonidine...I was on it before and it made my symptoms worse. My BP dropped way too low and we couldn't get it back up. My cardiologist had me come in and they had to give me two bags of iv fluid and monitorfor a period of time before they could release me. If you end up trying it make sure that it is at a time when you can be flexible with not doing anything at all and have someone around to keep an eye on you and monitor your vitals closely.I wish you the best of luck and hope it all goes well for you! Quote Link to comment Share on other sites More sharing options...
issie Posted February 13, 2012 Report Share Posted February 13, 2012 I couldn't use the clonidine either. But, Tramadol has lowered my bp and helps with the over active sympathetic system. They aren't really sure why it works - but, for me it does. First, you will probably have to see what happens when you come off the clonidine and if your bp comes back up. I've had some people say it doesn't work for them at all. Everyone is different. I don't use it all the time either - because you can get addicted to it and it will stop working. So, I take between 1/2 and 1 at bed time and cycle on and off of it. Quote Link to comment Share on other sites More sharing options...
Annaliese Posted February 13, 2012 Author Report Share Posted February 13, 2012 Issie when you say i dont use it all the time either - because you can get addicted to it and it will stop working..... Do yoh mean clonidine or tramadol? Quote Link to comment Share on other sites More sharing options...
Annaliese Posted February 13, 2012 Author Report Share Posted February 13, 2012 Thanks for th warning mully, i have to say, i am a bit scared of it. Ive got a scrip for it but never tried it since my p is now low. Quote Link to comment Share on other sites More sharing options...
kclynn Posted February 13, 2012 Report Share Posted February 13, 2012 My Son uses it with good results (not perfect, but good). He also takes Midodrine and Florinef. Really helped the Anxiety and the myoclonic jerks. Quote Link to comment Share on other sites More sharing options...
issie Posted February 13, 2012 Report Share Posted February 13, 2012 Issie when you say i dont use it all the time either - because you can get addicted to it and it will stop working..... Do yoh mean clonidine or tramadol?Tramadol - it has additive warnings - because it helps with pain and works on the opioid receptors - but, is not an opiate. Quote Link to comment Share on other sites More sharing options...
Schorobi Posted February 13, 2012 Report Share Posted February 13, 2012 I take florinef and clonidine which has been a great combination for me. I have significant hypovolemia and hyperadrenergia. For me, the clonidine patch is much better...too much BP fluctuations with the tablets which are much shorter acting than the patch. Quote Link to comment Share on other sites More sharing options...
jangle Posted February 13, 2012 Report Share Posted February 13, 2012 I don't think the right approach is to reduce sympathetic activity rather I think the objective is to boost parasympathetic activity.Exercise has been shown to do that. I'm currently studying other ways as well. Quote Link to comment Share on other sites More sharing options...
DoozlyGirl Posted February 13, 2012 Report Share Posted February 13, 2012 Has anyone run across the concept of breathing excercises similar to yoga style breathing to boost parasympathetic activity? Quote Link to comment Share on other sites More sharing options...
Annaliese Posted February 13, 2012 Author Report Share Posted February 13, 2012 Good point jangle and doolzygirl. Thanks! Schorobi, do you mind me asking what your diagnosis and symptoms were? Quote Link to comment Share on other sites More sharing options...
Annaliese Posted February 13, 2012 Author Report Share Posted February 13, 2012 Jangle, can you post on the other ways you find? Quote Link to comment Share on other sites More sharing options...
Dizzysillyak Posted February 13, 2012 Report Share Posted February 13, 2012 (edited) Eliminating any possible toxins from your diet may help this too. Gluten was causing this forme. Tc .. D Edited February 13, 2012 by MomtoGiuliana medical advice Quote Link to comment Share on other sites More sharing options...
julieph85 Posted February 13, 2012 Report Share Posted February 13, 2012 You could try magnesium. I've been on it for 4 days and I've noticed a big reduction in heart rate and I feel a lot more calm. Quote Link to comment Share on other sites More sharing options...
issie Posted February 13, 2012 Report Share Posted February 13, 2012 . Quote Link to comment Share on other sites More sharing options...
Annaliese Posted February 14, 2012 Author Report Share Posted February 14, 2012 Thanks Julie. Yeah i take magnesium but im not sure what the max dose is i can take. How much do you take? Quote Link to comment Share on other sites More sharing options...
Annaliese Posted February 14, 2012 Author Report Share Posted February 14, 2012 I dropped gluten, dairy and soy out of my diet a year ago.....thanks for the suggestion though, was a good one Quote Link to comment Share on other sites More sharing options...
Schorobi Posted February 14, 2012 Report Share Posted February 14, 2012 Annaliese, dx hyper POTS. my symptoms were tremulousness, dizziness, fatigue, nausea, brain fog, BP spikes (highest to 177/121...my BP used to be always 100-110/60-70), flushing, rapid weight loss 103-->97# in 2 days at onset due to hypovolemia (my clothes fit the same). I am also on month 4 of dr Levine's protocol and a very high salt diet. With this, I feel nearly normal, but still have BP spikes just not as bad Quote Link to comment Share on other sites More sharing options...
julieph85 Posted February 14, 2012 Report Share Posted February 14, 2012 How does someone learn about "dr Levine protocol"? Do you have to be a patient of his to try it? Quote Link to comment Share on other sites More sharing options...
Annaliese Posted February 17, 2012 Author Report Share Posted February 17, 2012 Schorobi, how did the clonidine patch compare to taking beta blockers in terms of reducing anxiety in particular but other symptoms also? Quote Link to comment Share on other sites More sharing options...
Annaliese Posted February 17, 2012 Author Report Share Posted February 17, 2012 Julie, im not doing the levine but started recumbent cycling and its really helped with everything really. I started at 2 mins at resistance consistent with a hr between 95 and 105. I increased 2 mins every week or second week depending on how i felt. The key i reckon is to make sure not to overdo it. If i ever got palps i stopped for eg. I also never did it whilst sick. I put the buke seat way back so i was almost lying down so i could get my heart rate that low. Quote Link to comment Share on other sites More sharing options...
Schorobi Posted February 17, 2012 Report Share Posted February 17, 2012 Julie, go to potsrecovery.com and you will find the contact info for dr Levine's staff. If you have your physician contact them, they will send you the protocol if you qualify. Takes a few weeks to hear back b/c they do the worldwide registry on their own time. This protocol is difficult but has produced amazing results for many people. I started to feel meaningfully better at the end of two months ( I felt consistently safe to drive) and now in the fouth month I feel great.Annaliese, I tried propranolol for about a week very early on and didn't notice any benefit, but i think it's worth trying both. Quote Link to comment Share on other sites More sharing options...
Annaliese Posted February 18, 2012 Author Report Share Posted February 18, 2012 Ok, thanks Schorobi Quote Link to comment Share on other sites More sharing options...
Annaliese Posted February 18, 2012 Author Report Share Posted February 18, 2012 Has anybody compared clonidine, beta blockers and mestinon ( since mestinon increases parasympathetic activity)? Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.